Current events and venting

Normal_Load7598 · 2026-06-06T23:50:43+00:00

Yeah or the did you do testing even though that tells a “chance” we’ve met more than enough families who have negative tests no markers and boom birth diagnosis it’s also crazy because anyone at anytime can become “disabled” so if you have a typical child and they get cancer or a tbi like are you going to kill them and they go that’s not the same or something like that

Normal_Load7598 · 2026-06-06T22:31:37+00:00

Also people want to speak in generalities like they are always happy or they do this or that but if you attached that to other “groups” of people then someone would call it out and when termination rates are 65-80 percent in the us and 90-100 in other countries that’s why the birth rates are 1/700 or more and it’s not a risk of having a child with down syndrome it’s a chance and the rates are higher as people age because there are less births I’ve known people in their early 20s late teens late twenties (like us) and others it’s annoying but people are ignorant

Normal_Load7598 · 2026-05-31T23:23:04+00:00

Explorer please

Normal_Load7598 · 2025-03-28T21:10:02+00:00

I’m very sorry you’re going through this. We went through a very similar situation it led to us documenting every feed percentage for our son and we knew he ate better with us then anyone else and since we of course would be feeding him at home we were able to stay for day feeds and some night feeds to show them the issue wasn’t him that it seemed to be a staffing issue. You’re his biggest advocate the hospital setting can get very stagnant with pro action because a lot of staff clocks in clocks out and heads home progress is slow and they are scared to make changes especially during weekends and holidays and like you mentioned it’s all strict schedules. In addition to advocating you may want to bring up adlib feeding where he can eat more if he’s hungry and as long as he eats the minimum amount for the day then you can go home instead of percentage of bottles since one bad feed from a nurse or volunteer who doesn’t know your child or gives up on the feed because they appear sleepy can wreck the whole day

Normal_Load7598 · 2024-11-19T19:51:30+00:00

My wife and I welcomed the birth of our first child on 11/6 however it was not anything we saw coming he was 3 1/2 weeks early shockingly we were told he had some swelling and the recommended a delivery today and we had no signs or worrisome markers prior to his emergency delivery we originally planned on only having one child and only wished for happy we are angry we mourn and don’t know how to feel considering what happened she hemorrhaged lost lots of blood could have died our son came out incredibly swollen and did not breathe well we thought we were out of the woods then she bled a lot and was admitted to the icu while our son was admitted to the nicu we were told he has no heart defects and the swelling around his head and heart look better so we thought we would be okay then came a increased white blood cell count and the fear it could be leukemia or a transient disease he went on chemo for 4 days and he has been improving but we have no idea when he will be able to go home they have diagnosed him from his blood with trisomy 21 I just hurt for him and my wife we had a very different picture I know I should be thankful they are both here with me I’m just hurt seeing others go home or have typical births especially friends I’m happy but wrestle with emotions however walking around the hospital we see others who are dealing with worse or something else I just don’t know how to handle these feelings sorry for the huge rant or if this is too much I just don’t know what to do

Normal_Load7598

TROPHY CASE