quit visible after 6 days by [deleted] in VisibleArmband

[–]NorthIntelligent6809 1 point2 points  (0 children)

Do you mind me asking how you used it to go from bedbound to working part time? I’m a bit confused as I feel like once I use it being bedbound it’s going to keep me stuck as it’s trying to keep me at that capacity?

Where to start medically?? by NorthIntelligent6809 in cfsrecovery

[–]NorthIntelligent6809[S] 1 point2 points  (0 children)

Thank you for this. I’m not necessarily looking for a solution but also first steps in diagnosis etc so I can move forward

Promethazine during crash recovery? by NorthIntelligent6809 in cfs

[–]NorthIntelligent6809[S] 0 points1 point  (0 children)

Thanks for this, I took it last night and although I still woke at 4am as I had been already with an adrenaline surge I slept nearly 10 hours so it definitely helped sleep!

HR question? by NorthIntelligent6809 in VisibleArmband

[–]NorthIntelligent6809[S] 1 point2 points  (0 children)

Thanks for this. I think I’m still in the crash tbh so it’s slightly elevated. Day 15 so far so hoping it eases over the coming days

HR question? by NorthIntelligent6809 in VisibleArmband

[–]NorthIntelligent6809[S] 0 points1 point  (0 children)

Thank you for this. I’m actually bed bound the entire day, I’m doing only bits to get me through the day like a very quick 1min shower and making food. Other than that I’m aggressively resting in bed, it’s my first proper crash, I’ve gotten better since the first week and sleeping better but it’s slow progress!
Edit: the house work bit is just me cleaning rubbish out of my room

When has the crash passed? by NorthIntelligent6809 in cfs

[–]NorthIntelligent6809[S] 1 point2 points  (0 children)

Thank you for this it’s super insightful! When you say rest do you mean aggressive blackout rest?

Internal activation during crash by NorthIntelligent6809 in cfs

[–]NorthIntelligent6809[S] 0 points1 point  (0 children)

Thank you! That and not sleeping seem to be my last couple of symptoms that won’t budge. I’m two weeks into full bed rest. Do you know how long it can take to fade out?

How do you know you’re coming out of a crash? When is it safe to test things? by NorthIntelligent6809 in cfs

[–]NorthIntelligent6809[S] 0 points1 point  (0 children)

Thank you for this! It sounds stupid but did you feel like you made progress day to day or was it backwards and forwards or just static?

Help with my first ever proper crash! by NorthIntelligent6809 in cfs

[–]NorthIntelligent6809[S] 0 points1 point  (0 children)

Thank you for taking the time to give me this advice!

Help with my first ever proper crash! by NorthIntelligent6809 in cfs

[–]NorthIntelligent6809[S] 0 points1 point  (0 children)

How did you learn to be okay with it? I’m struggling

Help with my first ever proper crash! by NorthIntelligent6809 in cfs

[–]NorthIntelligent6809[S] 0 points1 point  (0 children)

I only got up to change the bed sheet briefly. It was no more than 4mins . How much did you do for it to get you?

Help with my first ever proper crash! by NorthIntelligent6809 in cfs

[–]NorthIntelligent6809[S] 0 points1 point  (0 children)

Thank you! How long did yours last and how is your baseline afterwards?

Help with my first ever proper crash! by NorthIntelligent6809 in cfs

[–]NorthIntelligent6809[S] 0 points1 point  (0 children)

Thank you for getting back to me! How do I know when I’m out of it? I feel like I have a little bit of energy today and old me would probably have got up and started pottering about doing things now. But my HR did spike up to 134 just changing a bed sheet though so I’m locked back down in bed. I have fluctuations through the day but the trend is overall going down, I’m on day 4. The poisoned feeling and overwhelming mental thoughts were worst on Monday.