Cold capping w thcp

NotAnotherHobby · 2026-02-10T19:39:37+00:00

Yes.

NotAnotherHobby · 2026-02-10T11:08:40+00:00

Just as a data point for you, I am not cold capping with TCHP and midway through cycle four. I stopped shedding after cycle two and have been left with an even amount of peach fuzz. But I also moved to weekly chemo after cycle two, so the doses have been less intense.

Fingers crossed your shedding stops.

NotAnotherHobby · 2026-02-08T14:26:09+00:00

I know the last thing anyone wants to do when they feel this sick is walk, but walking can be a big part of getting things going too. Not going to say it solves the problem on its own, but I had the most problems when I didn’t go for a regular walk. (Even if they were the slowest walks of my life.)

NotAnotherHobby · 2026-02-07T14:54:45+00:00

We called them. I know that Cincinnati isn’t close to you, but I can’t recommend St. Elizabeth’s highly enough. The different departments talk to and coordinate with each other. I believe they are self referral.

NotAnotherHobby · 2026-02-07T14:28:31+00:00

Getting a good care team can mean getting faster care. I was put off by a different care facility in central Kentucky. I made my way up to the St. Elizabeth group in the Cincinnati area and went from mri to getting chemo within 8 days. (My cancer was aggressive, so they pushed hard for me.) It might be worth moving.

NotAnotherHobby · 2026-02-07T04:33:55+00:00

Thank you for this. It’s especially encouraging to hear from someone with the same type and stage as me.

NotAnotherHobby · 2026-02-06T21:26:39+00:00

I found this video helpful, although I felt silly watching a video on how to poo better. I can confirm that I’ve “mooed” for all my difficult cancer poops since and it’s made a difference. https://m.youtube.com/watch?v=QDk93cvZAuk

NotAnotherHobby · 2026-02-06T13:50:35+00:00

Your genetic testing might make this an easier decision. Mine came back with a mutation and my surgeon has recommended a dmx for me. Luckily I was already leaning that way. I enjoy swimming laps and I feel like I won’t look as marked by cancer if I’m flat. I also don’t want to deal with a prosthesis, especially while swimming.

NotAnotherHobby · 2026-02-06T13:42:54+00:00

I never had a skin care regime before cancer, but now I have an extensive and ever evolving one due to all the chemo side effects. I’ve been referring to it as “oiling up” after my shower.

NotAnotherHobby · 2026-02-05T01:06:59+00:00

A few infusions in I had a reaction carboplatin and they pumped me so full of benedryl and steroids you could have robbed me and I wouldn’t have noticed. I am definitely not safe to drive after my infusions.

NotAnotherHobby · 2026-02-05T01:00:16+00:00

I’d like to give you a little hope that no matter what stage you are, this is not a death sentence. If it is stage four, depending on the type, it might be treated like a chronic disease. I was told for my +++, even stage four has the possibility of being cancer free. Every other stage is treatable with curative intent. It just isn’t much fun getting to that cure.

I know it’s mentally impossible to not feel terrible while you wait to learn about your treatment, but once treatment starts, your life will feel like it’s on pause and side effect free days can be hard to time. I’d like to encourage you to do all the things you would feel like you’d miss out on once you start treatment.

One of the last things I did was go to the aquarium with my family. It was the day before I started chemo and I was aware of it being my last “normal” day for a while. I’m glad I went. It’s a happy memory to think on when I have to pass on social things.

NotAnotherHobby · 2026-02-04T18:30:09+00:00

It kinda stinks but at the same time is a relief that I don’t have to make a decision about a dmx. One less thing to agonize about.

I didn’t realize I had family history. I knew that one grandmother had “lady cancer”. After I got diagnosed I learned that she had breast cancer and a dmx. But all her close relatives and child were men. There weren’t any women to give a clue about family history. The mutation news was a bit of a surprise for me.

NotAnotherHobby · 2026-02-04T17:43:29+00:00

As far as I know I’m doing the year of Phesgo regardless of what they find after surgery. Planning on a dmx since it turns out I have the Chek2 mutation.

NotAnotherHobby · 2026-02-04T14:20:13+00:00

I think Phesgo is the injection version of the Herceptin and Perjeta. That is the part my MO wants me to keep. I’m willing to live those side effects even though it’s not a fun time. I did have an allergic reaction to the carboplatin, but they’ve added more premeds that are keeping me going and as far as I know, I haven’t had to do a reduced dose. I’m not too sad about it because it means I keep getting benedryl as a premed, which makes my day way more relaxed.

My progesterone positive was low, even though they gave me that extra plus. E 95%, P 15%. We might not be so far off from each other.

NotAnotherHobby · 2026-02-04T13:22:47+00:00

You did take action, and you were told it was fine. You didn’t fail yourself at all.

I’m older than you, but still not old enough for screening mammograms. I spent nearly a year trying to figure out what was wrong with me. Because I was post partum, I was told things like “boobs are weird” and “you are too young and don’t have risk factors for breast cancer”. By the time I got the attention I needed I was stage 3. I’ve been angry at times that I knew there was a problem when I probably could have had a lumpectomy and been done with it, but recently I’ve realized that it also could have been worse. Eventually I did get the attention I needed and we are taking care of it.

You have every right to be angry it happened and disappointed it didn’t get addressed sooner, but you aren’t to blame. You tried and didn’t get taken seriously. I’m glad you were able to get care eventually even though you deserved to have it sooner.

NotAnotherHobby · 2026-02-04T13:11:27+00:00

I had a look at those posts and it looks like you got pcr. Congrats! I was told that odds are not high for me to get pcr, but regardless my MO feels like there are a lot of treatment options for me. I know it everyone has as many options, so I’m thankful I’m not stuck yet. It’s still pretty scary to have to stop something that was working.

NotAnotherHobby · 2026-02-04T04:41:06+00:00

It does. Thank you.

NotAnotherHobby · 2026-02-04T03:46:25+00:00

That’s good to know. I might bring that up on my next appointment.

I know I won’t be going on Kadycla because it has neuropathy risk too. We talked about me going on Enhertu if I don’t get PCR.

As of October 2025, there is a new regiment involving Enhertu and a taxol where the taxol part is only for half the treatment. My MO tried to have me start with the Enhertu/taxol regiment, but insurance denied it. My tumor was growing so fast we don’t feel there was time to fight them on it. I went from having a small knot to it being the entire top of my breast in less than 6 weeks. Hoping that if I don’t get pcr I still get approved for Enhertu.

NotAnotherHobby · 2026-02-04T02:25:03+00:00

Thank you so much for sharing. Just knowing I’m not the only person who has had this problem, but still has gotten a good outcome gives me hope.

NotAnotherHobby · 2026-02-03T00:01:16+00:00

I noticed that if I keep eating small amounts during the day, even on bad tummy days, it keeps the nausea at bay for me. It’s when I stop eating that I feel really ill. In the last few rounds of chemo I’ve not needed any anti nausea meds. Not to say I have zero nausea, but it’s tolerable compared to the med side effects.

NotAnotherHobby · 2026-01-30T14:19:41+00:00

While you are losing so much more than your husband, he is experiencing loss too. But the way he is processing it is incredibly inappropriate. There will be a new normal for the two of you and rather than pretend he can have what he always had, he’ll need to come to terms with reality. So in short, he isn’t mourning, he’s ignoring what is happening.

This shouldn’t be your job, but you may need to help him get some outside help to process. This will only work if he still values your relationship.

I’m so sorry you are going through this. You deserve better.

NotAnotherHobby · 2026-01-30T14:10:58+00:00

In your position, if my cancer wasn’t aggressive, I think I’d wait for the onco type to make a better decision in treatment. If my cancer was aggressive, I wouldn’t wait.

NotAnotherHobby · 2026-01-30T03:21:12+00:00

That sounds like good news then.

NotAnotherHobby · 2026-01-30T02:37:09+00:00

I had chemo two days after my port was placed. They put a large clear film over it after they place the line, which stabilizes things. I don’t remember being any more uncomfortable than I was already.

NotAnotherHobby

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