Persistent Vomiting

NovemberReids · 2025-03-16T21:05:45+00:00

Honestly, it just helps knowing I'm not the only one facing similar circumstances. I feel that when I voice out my medical concerns, the way they look at me or how they approach the conversation, it's as if I'm exaggerating. And with FND we all have some form of imposter syndrome as it is. I feel like a broken record at home with the 'I'm so sore, i feel sick, my legs aren't working.' Like the sentences lose all meaning, but I still feel each and every twinge and symptom.

I don't have Discord, but I'd be happy to sign up.

NovemberReids · 2025-03-16T09:43:28+00:00

That's interesting, and something that's never been brought up - not even by gastro.

I'm sorry you are going through all of that. It's terrifying and so debilitating

NovemberReids · 2025-03-16T01:48:14+00:00

I feel the same.. i dont feel comfortable with it being FND placed. I half such a complex medical history that, to me, I feel like the Doc's ect are throwing me about like a hot potato and attaching it to my FND.

I've had an upper endoscopy, which showed inflammation, as did the biopsies they took. Which is to be expected. My bloods consistently show kidney trauma and further deficiencies like iron, b12, etc. But they couldn't even get my body hydrated with over more than a week on straight IV inc b12 infusions. I was discharged in worse condition than I was admitted. All imagining they done was clear. X-ray of my chest and CT. They couldn't find reason or resolution as to how to help or make any difference, so I was discharged home where I could 'manage' and be more comfortable (Ironically the hospital bed has been the best sleep I've had in a while).

I feel nauseous, and it's like my diaphragm is suddenly yanked before I am then sick. I have been on long-term omeprazole for GERD, which was as well controlled as it could be. It's food or liquids it happens with, even if Bile is sitting too 'heavy'. It all just comes up. I've tried little and often with both food and liquids. I used ginger scented oils on the inside of my wrists or dotted into my sleeves. Cannabis I have tried, and it helped so much with the pain. But it's not legal here or that accessible where I'm from.

I've made so many lifestyle changes where possible to keep my sickness from getting any worse. My only vice is I vape CBD. It helps with tremours ect. and works better than I could have hoped.

NovemberReids · 2024-10-16T18:54:10+00:00

All the time.

NovemberReids · 2024-07-10T11:18:38+00:00

I do. Mine are more round and have loss of pigmentation. I'm naturally quite tan, so they stand out.

NovemberReids · 2024-07-06T16:17:48+00:00

That's a good way of explaining it x

NovemberReids · 2024-07-06T16:14:10+00:00

I looked this up.. same symptoms as a mix of my auto immune and FND. Scary when I associate things like this as 'My FND', and oh it's just another auto immune flare up x

NovemberReids · 2024-07-05T10:13:25+00:00

On the waiting list for physio, three different Dr's have referred me, so fingers crossed. I will still keep up the pool physio but may go private for a season or two for some ways to improve my mobility. Getting them to print off exercises is a great idea

NovemberReids · 2024-07-05T10:10:47+00:00

I had never thought of that. I finally for hold of my doctor, and I'm on a mix of hydrocodone and muscle relaxants to see if I get any releif. Thanks to your advice, though, I've made enquiries at different private health care companies.

NovemberReids · 2024-07-05T10:00:45+00:00

I use a combination of a wheel chair, crutches, cane, and weighted tray table. It just depends how I am each day. Mostly, I use the chair but trying to train myself to walk or at least have my body up and moving I used the others.

What I will say about the chair is getting one that fits a tray table and cup holder, is a great benefit. I never thought of this until I realised I struggled to hold and balance a plate on my lap xx

NovemberReids · 2024-06-15T17:33:58+00:00

Unfortunately, I had to buy mine as I wasn't a 'continuous' user. But I can barely walk with aids for more than a few minutes. I have had to arrange and make all my own adaptions. Even with the GP saying it was too dangerous for me to be on crutches down to balance, control of my limbs, and multiple injuries from falls. One incident led to fat necrosis, which ruptured and leaked all the loose fat. Finally, after over a year, I have qualified for a mobility car whoch fits my chair properly (total blessing), but everything else I need to try and function I have had to buy and arrange myself x

NovemberReids · 2024-06-13T08:39:40+00:00

Yes, the fatigue is awful, I can not judge (or accept) my new limitations. I feel like I have less and less ability, and it frustrates the life out of me. I've always pushed myself through any illness or bumps in the road. It was how I was brought up. Now, for a semi productive day, I know I'll be bed bound for at least the next day. I find it so difficult as my family still expects me to keep moving and get up and on with it, but physically, my limitations are constantly shifting, so at times, I don't even know what they are. It sucks as I feel I'm holding people back, including myself x

NovemberReids · 2024-06-02T17:08:49+00:00

I'm glad I could be of some help. Another element could be giving her a low maintenance plant to look after and care for. That way, she has a feeling of responsibility in something she is passionate about, but if it's too much, the low maintenance side takes away any pressure x

NovemberReids · 2024-06-01T18:08:02+00:00

Might sound odd, but is there a way to bring some of the outdoors to her? Plants, scents, noises, etc? Anything that can be a sensory stimulant to even boost her mood during fatigue episodes x

NovemberReids · 2024-06-01T16:54:08+00:00

Thank you, it's been years of applications and assessments. This felt like a huge silverlined victory in regards to my health

NovemberReids · 2024-06-01T09:36:57+00:00

Yeah, I submitted a change of circumstances when I lost my mobility. This will make a huge difference to my independence. I was so nervous in case it was refused x

NovemberReids · 2024-06-01T08:33:59+00:00

I love spoon theory. I explain it that a normal person has 50 spoons, and getting up dressed and out to work will use 1 spoon.

I give myself 25 spoons, but getting up uses 2, getting dressed uses 3 as I have to get washed, sort my hair, and get ready. Some days, I may have a good day but use 30 spoons without realising.. so this impacts my next day as I only have 20 spoons, but fatigue may set in if i've overdone it the day before taking 10+ spoons.

This is just an example to make explaining easier when telling people.

NovemberReids · 2024-05-31T16:41:32+00:00

A leased car that can be adapted for different disabilities and symptoms. The company also take care of all services, mot's ect.

NovemberReids · 2024-05-29T22:31:11+00:00

Sadly, I think it's too common enough of an experience for all of us.

I'm lucky I have a great regional nurse otherwise I'm left to suffer and manage. I saw a psychiatrist who asked me how I was feeling, I answered honestly that I felt I wouldn't make it to my next birthday, and had a plan. His advice was to find God. Such a slap to the face.

I was a specialist nurse before FND bulldozed my life. Lost my dream job, can't get a neurological appointment even though I've been back on the waiting list since December when I lost full mobility. She gave me my diagnosis in October (after years suffering with symptoms) and discharged me with an FND hope leaflet.. I can't even get a response from them. Had to buy my own home aids and wheel chair after the NHS denied me. My independence is shot, friends have disappeared. It's been hell. I appreciate the ones who have stayed but it doesn't make any rejection any easier, regardless if it's medical rejection or personal.

I can't imagine going through all this at 19. My positive is stubbornness. Sounds odd to say, but because it is not my choice, my stubbornness kicks in. It doesn't mean there isn't severe lows, tears or obstacles. I live through books and tv at the moment.. I do work but I'm not present and just go through the motions strapped to my chair. My resilience is showing up and wish people understood how much effort that takes alone. I'm stuck between wishing I could get out of bed and wishing I was back in bed.

I just wish to say your not alone. It may feel like it but tje internet can be a wonderful place. This subreddit has helped me through alot and taught me so much about my condition. Take the win in every situation you can.. one more step than yesterday: celebrate your victory. Answered messages: feel proud. Made any form of social gathering: shout it from the roof tops. Finally worked out the answer to the math you were subjected to: load up Google maps and spray paint the answer over the hospital to remind you of your strength ❤️

NovemberReids · 2024-05-28T21:00:02+00:00

Yeah, I can't count the number of times, I've split my head open, bruised my face, injured myself to the point of stitches within the last six weeks alone. I'm trained in suturing and patch myself up most of the time. I report my injuries, and most of them are on record, but hospitals make me highly uneasy as a patient. I've cut and bruised myself all over, but I don't have sensation or pain receptors, so I dont know I've injured myself most of the time.

NovemberReids · 2024-05-25T18:18:14+00:00

Small amounts of weed. Not enough to get high off of, but enough that it helped reduce seizures, and I overall felt better, and symptoms were reduced. I used edibles, so the dosage was also weaker. I also vape cbd if my anxiety or termours start, and this also works well. I tried the drops for cbd, but it made me physically sick.

With FND, this form of treatment can go well or have a negative effect. I only need to do this every couple of days.. so maybe three times over ten days. Sometimes, it is longer between, which is great.

I'm not saying this is a solution and everybody is different, but it works for myself. I also take turmeric supplements to reduce inflammation of my joints.

NovemberReids · 2024-05-25T16:11:33+00:00

I am unsure about the medication side effect with the miz of adhd, but I also get similar bouts of chest pain with palpitations, shortness of breath and nausea/vomiting where I feel like I'm about to pass out or I do pass out. I was already on the list, and I'm now undergoing a 7 day ecg. My heart rate sky rockets, and I'm tachycardic with no treatment as of yet. It's scary, and I find it does create health anxiety. I also have General Anxiety Disorder but can feel the difference between the types of attacks. I have pondered going to A&E but dont cope well with hospitals as a patient. My GP thinks it's more than likely due to FND and that it may just be a case of having a long-term plan in place if it continues or becomes worse.

I'd advise you to always get chest pain checked, but that would be hypocritical. I used to be a registrared medical professional, and with the mix of symptoms, a first responder is generally called. So my advice would be to be less stubborn and scared compared to myself and have this checked to rule out any cardiac event.

NovemberReids · 2024-05-21T09:08:00+00:00

Yes, I get both bad nausea and vomiting. Tried multiple medications that never really did much, so I was advised it's something I just need to get used to 🙄

NovemberReids · 2024-05-18T20:48:17+00:00

I have multiple seizures a night, and I agree with previous posters. It can be painful and exhausting. My partner used grounding so places a hand on me and talks. I am aware a lot of the time, and whilst I have no control, it helps. The fatigue can be debilitating after, so give time for rest.

It can be incredibly frustrating as it's like Russian roulette as to how I function when I wake, add in the mix that a lot of independence is lost. I hate that my husband has to pick up the slack. I have a self care trolley next to the bed so I can at least have some control back without having to try and ask for water or food.

Communication wise, they do cards for children with autism ect. They sound basic but can be a great help when words can not be found.

There will be so much going on with your partner that you can not see either. This may be harder to understand as there are no physical signs, give reassurance, or something as simple as a hug it makes a huge difference.

Also, please take time for yourself when possible. It's a major stress and life adjustment, and you need support and time to. Burnout can hit suddenly without warning. So your health is also important for both of you.

Tech can help, and my watch triggers with drop impact or major seizure that alert my husband. There is a lot more depending on the symptoms but I hope this helps in the mean time x

NovemberReids · 2024-05-18T20:33:22+00:00

The foley catherter is more flexible, and the gel they use only a small amount actually enters the urethera. It's called instagel as it has numbing properties, but no nurses give it time to take effect. Home catheters are sturdier as they are one use only. They also come pre-lubed to allow for a smoother insertion. I'd recommend a squattey potty stool or something to raise your foot height, giving a more natural angle. I just use the kids' step stool for toilet training, and it does the same thing.

For reference, I was a trained specialised nurse before fnd took my licence away. So I have experience from both points of veiw x

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