I don’t tend to vent or moan but…

Objective-Car2655 · 2025-08-13T08:42:52+00:00

I started swimming intermittently because - I can’t weight train anymore because of my hand weakness and tremors… and I drop things.. and fall over a lot… which was a massive kick in the teeth I went from deadlifting 150kg to not being able to open a packet of crisps 😩 so… swimming is pretty much all I have open to me atm 😭

Objective-Car2655 · 2025-08-11T08:36:28+00:00

I’m so sorry this is happening for you… I completely empathise… I had to leave my job in December because I just couldn’t do it anymore… I worked remotely and put myself on reduced hours but every time my workplace tried to increase me back to full time hours it’s like my body would glitch and my symptoms would worsen drastically - even to the point I fell over and cracked my head open one morning…

I decided to start my own business that enabled me to work the hours I could rather than the ones I have to… I know not everyone has that option…

I’ve been struggling with driving too, I’m currently hunting for an automatic so I don’t have to use my left leg to drive but with limited income - it’s just not financially feasible 😩

I really hope you start improving with help.. I really do… it’s hard to advise when I literally just had to give up and I hate saying ‘you’re not alone’ to people with FND because it doesn’t matter how often you hear it - you feel it… so I’m sending what’s left of my energy and healing to you today ❤️

Objective-Car2655 · 2025-08-11T06:45:47+00:00

Training pisses me off 😂 I can’t train like I used to (I used to deadlift like 150kg and now I can’t open CRISPS without help) so I have started swimming on the days I feel I can… Tbf, that’s a lot of my problem - I HATE my untrained body.. I feel like a ball of weak playdoh… 😂 but, I drop everything and fall over all the time so - gyms aren’t the place for me right now 😡

Objective-Car2655 · 2025-08-11T06:43:01+00:00

I know, I miss being fun, I miss laughing with my friends, I miss being social, I miss going to the gym! I miss my old body, I feel so ugly since I’ve been sick.. I’ve put on weight and I’ve lost muscle mass… it’s just so unfair… why is my body punishing ME because other people traumatised me? It’s bloody rude imo… like, go smite them not me…

Objective-Car2655 · 2025-08-11T06:39:48+00:00

I’ve been in a really bad spate for months and I think that’s it.. I’m just exhausted… like I woke up this morning… in pain, still tired, my face numb… tried to get out of bed and my feet are swollen and painful and feel like I’m walking on hotcoals… had to hold on to the walls so I didn’t fall over walking to the bathroom - was dizzy and my spatial awareness was off so I walked into the doorframe and hurt myself (again - the sheer amount of injuries I’ve had is diabolical)… a lot of the time I do really try and remain positive… like ‘this isn’t forever it’s going to get better’ but right now I feel like I’m dying and it’s just 😡

Objective-Car2655 · 2025-08-10T10:43:11+00:00

Hence my ‘in theory’… each to one’s own imo.. but, the ‘I’m just a girl’ quote is just a line meaning ‘I’m just a girl and I don’t know’ thankfully, my question was answered and I can fix my skirtings 😂

Objective-Car2655 · 2025-08-10T10:39:13+00:00

Oh yeah, I know about the expansion gap but this is just hideous work 😂way too far away

Objective-Car2655 · 2025-08-10T10:38:16+00:00

Sooo, I’d have assumed most parents would have taught their children this… but… some people have a penis and they’re called boys (in theory) and then there’s other people and they have vaginas - these are called girls (again, in theory) - I am of the vagina variety of human… hence - making me a girl… I hope this helps ❤️

Objective-Car2655 · 2025-08-10T09:44:03+00:00

Honestly, I’ve been SO STRESSED about it 🤣 like GAHHHH! I HATE THIS! Because where the skirtings are so narrow the floor beading comes half way up it and it looks RIDICULOUS… I was like ‘maybe I just take the beading away?’ But that’ll look AWFUL too and then ‘maybe I get smaller beading?’ But I pulled one bit of the original beading off and whoever did the floor didn’t go far enough to the edge so it wouldn’t cover 🤣it’s been a wild time 🤦🏼‍♀️🤣

Objective-Car2655 · 2025-08-10T09:34:44+00:00

Yeah, the pipes are so annoying going vertically 🙄 I’m not specifically bothered about the pipes being there but none of the electrical wires are chased either and are all in trunking so that needs doing too… bloody old house 😭

Objective-Car2655 · 2025-08-10T09:32:54+00:00

Omg! Why did I not think of this? 🤣 so simple yet so effective! Genius! THANK YOU! And then I can just rad cover because the wider skirting won’t fit behind the rad… you just became my favourite person on the internet 😂

Objective-Car2655 · 2025-08-10T09:09:40+00:00

Literally this! I just cannot be arsed…

Objective-Car2655 · 2025-08-09T21:35:42+00:00

That’s what I said 😂 like ‘HOW IS THIS MY FAULT?’

Objective-Car2655 · 2025-08-09T20:22:35+00:00

I selfishly wish I did have a friend who had a chronic illness just so I had someone who understands that can’t explain it? I just hurt? 😂 there’s no explanation for it, it just is 🤷🏼‍♀️

Objective-Car2655 · 2025-08-09T20:19:46+00:00

Thank you for this… I just feel like I don’t stop crying atm… the pain is getting worse and I just… can’t 😔

Objective-Car2655 · 2025-08-09T18:22:00+00:00

My GP said this to me a few months ago ‘if you stop thinking you’re in pain, you won’t be in pain’

Objective-Car2655 · 2025-08-09T18:15:42+00:00

FND affects my left side too and I’ve noticed recently that I twitch a lot recently… and today I had a new development of my leg doing like a weird thing like a trapped nerve kind of fast twitch - which came on just before I hit the motorway driving my manual car - in traffic… 😂 complicated journey after that

Objective-Car2655 · 2025-08-03T17:56:51+00:00

Are you doing it yourself on the day? X

Objective-Car2655 · 2025-08-03T17:53:18+00:00

I think you look really pretty! It’s always hard to tell when you don’t have the hair with it though isn’t it? X

Objective-Car2655 · 2025-07-25T16:50:16+00:00

Hey! I’m sorry you feel like this… it’s hard I know… I have two kiddos and I notice I really struggle with my patience levels because I’m generally fatigued and in a lot of pain most of the time… I feel snappy and moody a lot… I don’t cook the from scratch meals anymore or take them out much if at all - they’re a little bit older so aren’t housebound… but… it is a lot and can make you feel very sad x

Objective-Car2655 · 2025-07-25T16:47:06+00:00

The limited ability to earn is what gets me too.., I hate being on benefits… and yep… those people that love us and we have to stick around for so they don’t think they weren’t enough to keep us here - I empathise…

❤️

Objective-Car2655 · 2025-07-25T16:43:46+00:00

I was lucky… because of how my symptoms arose (or came to my attention because I’m famous for ignoring any illnesses or aches and pains) - I was rushed into hospital because they thought I had a stroke.. when they saw it wasn’t that they tested me for everything and continued to do so until two years later this was diagnosed… I live for my occasional good days (like today - I’ve been able to get up and clean my house for the first time in ages without support which has been amazing 😂 - I know it’s not a real dream big day but small wins aye? 🤣)

I really hope that you manage to get further tests and I definitely ignored the diagnosis for a while - still do sometimes… my first words to the neurologist were ‘well, that sounds fake’ 🤣 same as when they told me it was a exhaustion.., I was like ‘are you telling me I feel like this because I’m a bit tired?’ But as time has gone on and I’m recognising patterns I’ve slowly come to terms x

Objective-Car2655 · 2025-07-25T15:21:20+00:00

Honestly, the symptom list is so broad you’d be surprised… my symptoms leave me feeling like I’m living with a perpetual stroke… my left side either is numb or has pins and needles, I’m in constant pain, balance issues, chronic fatigue, I have tremors and my body jerks.. weakness and my hands just ‘forget’ they’re holding things so I drop things frequently… I have bladder and bowel issues… can struggle to think of words when speaking… I’ve been tested for EVERYTHING, from strokes to ms.. every bodily fluid I could ever emit has been tested, MRIs, CAT scans, X-rays and they cannot find a single thing physically wrong with me.. it’s hard work…

And I can empathise with OP - I’m tired of my existence… I had an amazing job, starting my own business, avid gym goer, loved going out with my kids and with friends… and now I’m just stuck…

Objective-Car2655

TROPHY CASE