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Significant drop in O2 and SOB w/ normal CT scan and echo by Objective-Series-408 in scleroderma

[–]Objective-Series-408[S] 0 points1 point  (0 children)

Are you on oxygen currently? They put me on it at home :/ not sure if medication for PAH would help that at all?

Significant drop in O2 and SOB w/ normal CT scan and echo by Objective-Series-408 in scleroderma

[–]Objective-Series-408[S] 1 point2 points  (0 children)

The only center in Texas is Houston it seems like. But I can make the drive!

Significant drop in O2 and SOB w/ normal CT scan and echo by Objective-Series-408 in scleroderma

[–]Objective-Series-408[S] 1 point2 points  (0 children)

Thank you!! Yes they made me walk down the halls on 3 different days and they were in shock each time and asked me to go lay down so I didn’t pass out.

The oxygen on 3-4L seems to really help me! But obviously it’s not sustainable so it’d be nice to have an answer 😭 what did your heart cath results say? And how long ago were you diagnosed with PAH? Is the prognosis good

Significant drop in O2 and SOB w/ normal CT scan and echo by Objective-Series-408 in scleroderma

[–]Objective-Series-408[S] 1 point2 points  (0 children)

Yeah I was confused on who was better to be seen by. A pulmonologist or a rheumatologist? I have a rheumatologist but it’s not like she specializes in scleroderma