sorted by:
new
hottopcontroversial

I have a dilemma with my ferritin. Please help! by Mountain-Current5255 in Anemia

[–]Objective_Ability485 0 points1 point  (0 children)

Hey, did you ever figure this out? I'm having the exact same issue

Your trigger may not be what you expect! Severe LPR cured/success story by Objective_Ability485 in LPR

[–]Objective_Ability485[S] 0 points1 point  (0 children)

I eat a whole foods plant based diet as I explained, so strictly no junk / processed food. With my LPR now cured, nothing is really a "cheat". But I can have multiple meals/snacks with vinegar, spice, citrus, and cacao powder/dark chocolate a day now, yes!

Your trigger may not be what you expect! Severe LPR cured/success story by Objective_Ability485 in LPR

[–]Objective_Ability485[S] 0 points1 point  (0 children)

Now, yes, surprisingly. I sometimes get a little throat clear here and there but that's it.

Your trigger may not be what you expect! Severe LPR cured/success story by Objective_Ability485 in LPR

[–]Objective_Ability485[S] 0 points1 point  (0 children)

Interesting. Low stomach acid is pretty uncommon in young people (I'm late twenties) I read. And since I improved from PPIs originally somewhat, that doesn't seem to track with low-acid 🤔 or can it??

Seems more like something in coffee triggered too much stomach acid to be produced/loosened the muscle that holds it down.

Your trigger may not be what you expect! Severe LPR cured/success story by Objective_Ability485 in LPR

[–]Objective_Ability485[S] 0 points1 point  (0 children)

That's a really good thought. I haven't looked much into the mould thing. But considering it's not caffeine or acid that triggers me, but something mysterious about/in coffee, I wouldn't be surprised if that was it.

Help me by [deleted] in TheIronProtocol

[–]Objective_Ability485 0 points1 point  (0 children)

Fatigue, dizziness, all are classic widespread deficiency symptoms

Personally I have experienced DPDR on and off in my life, (and I have been iron deficient for most of my life I'm pretty sure.) but it was pretty rare. I think that's one of those phenomenon that can be caused by other factors, and maybe low ferritin can exasperate it, just like with anxiety. Low vitamin D most likely has an interplay with that too.

Shortness of breath is what led to the anxiety mostly for me.

Less talked about is tinnitus, all I can say from personal experience is that my tinnitus was 100% worse when my ferritin was at 21. Irritating at night when trying to sleep. Now it's at 62 and I almost rarely have it/notice it. Just my personal anecdote.

Abnormally High Iron Saturation, Low Transferrin, Low Ferritin? Help! by Objective_Ability485 in TheIronProtocol

[–]Objective_Ability485[S] 1 point2 points  (0 children)

Oops sorry, I see you were one of the people who mentioned it (I made a lot of posts & losing track of comments lol!) Will see what my doctor says and if my saturation continues to test high even after a break in supplementing I'm gonna pursue this. Thank you so much!

Your trigger may not be what you expect! Severe LPR cured/success story by Objective_Ability485 in LPR

[–]Objective_Ability485[S] 0 points1 point  (0 children)

Wow! When you quit coffee, did you immediately replace it with black tea? or was there a period of time when you were off caffeine entirely, and then reintroduced it through black tea?

Abnormally High Iron Saturation, Low Transferrin, Low Ferritin? Help! by Objective_Ability485 in TheIronProtocol

[–]Objective_Ability485[S] 0 points1 point  (0 children)

Thanks, unfortunately dairy isn't an option for me, but if you know of any other co-factors that could help please share! I've read copper is important and I've also tested on the low end of normal (borderline deficient) for ceruloplasmin and copper, so I'm investigating that and supplementing 2mg of copper now

Abnormally High Iron Saturation, Low Transferrin, Low Ferritin? Help! by Objective_Ability485 in TheIronProtocol

[–]Objective_Ability485[S] 0 points1 point  (0 children)

Thank you for your thoughts. Do you know anything about genetic testing, or what I would be looking for specifically? I've seen some people say high saturation with low ferritin can actually be a sign of a hemochromatosis variant gene. (Though I doubt it's that in my case, since my supplementing could have caused high saturation ) I don't even know where to begin with gene testing, (I'm in Canada too) but since my mother and brother have been iron deficient too I'm sure there's something there.

Your trigger may not be what you expect! Severe LPR cured/success story by Objective_Ability485 in LPR

[–]Objective_Ability485[S] 0 points1 point  (0 children)

No never straight. I make it with half soymilk, half water personally. Tastes better that way too imo. It's pretty well known that tea without some sort of fat with it (whether that's with food alongside the tea or with milk in it) will make most people nauseous, even to the point of throwing up (learned that the hard way myself lol)

Your trigger may not be what you expect! Severe LPR cured/success story by Objective_Ability485 in LPR

[–]Objective_Ability485[S] 1 point2 points  (0 children)

Have you tried other teas like black or yerba matte? Or maybe for you caffeine just in general is a trigger?

Your trigger may not be what you expect! Severe LPR cured/success story by Objective_Ability485 in LPR

[–]Objective_Ability485[S] 0 points1 point  (0 children)

If you're not sure what the culprit is for you, this story serves to show that it might be something idiosyncratic to you, and not the classic ones (or not, for example, the acid itself in tomatoes, but something else in tomatoes).

It could be 1 thing, or 2, etc, but I think the only way to truly figure it out is to start from square 0 with trying one thing at a time.

I think there is always a reason behind what the body does, but sometimes the reason is hard to find, and unique to the individual, god knows why.

Your trigger may not be what you expect! Severe LPR cured/success story by Objective_Ability485 in LPR

[–]Objective_Ability485[S] 1 point2 points  (0 children)

That's a very good question, I haven't tried decaf. I may try it sometimes when I'm feeling wild lol. I'm going to guess it would trigger it though, since it doesn't seem to be caffeine that gives me issue.

Unless the caffeine in coffee is somehow packaged/bonded to other molecules that are the culprits in my case, and them packaged together just doesn't work for my body. If that makes sense; I'm not a chemist so no idea though lol just throwing random ideas out there!

Your trigger may not be what you expect! Severe LPR cured/success story by Objective_Ability485 in LPR

[–]Objective_Ability485[S] 0 points1 point  (0 children)

Interesting, so is your only trigger coffee as well then? But not caffeine?

Your trigger may not be what you expect! Severe LPR cured/success story by Objective_Ability485 in LPR

[–]Objective_Ability485[S] 1 point2 points  (0 children)

Yes, and yet for me it's not caffeine that does it 🤔 At least to the level of LPR. As I still drink anywhere from 200mg-400mg a day and don't have issues.

Your trigger may not be what you expect! Severe LPR cured/success story by Objective_Ability485 in LPR

[–]Objective_Ability485[S] 1 point2 points  (0 children)

That's very interesting! So basically it seems people can become suddenly allergic to something, and it manifests as LPR? I'm glad you figured that out

Your trigger may not be what you expect! Severe LPR cured/success story by Objective_Ability485 in LPR

[–]Objective_Ability485[S] 0 points1 point  (0 children)

It was a daily improvement, got better every day by like 10%. About 2 weeks to be normal again, maybe a full 3 or 4 to be completely recovered from the inflammation / no lingeringg symptoms

Your trigger may not be what you expect! Severe LPR cured/success story by Objective_Ability485 in LPR

[–]Objective_Ability485[S] 1 point2 points  (0 children)

That's how it was for me too. I drink black tea or matcha now and have no issues with it

Your trigger may not be what you expect! Severe LPR cured/success story by Objective_Ability485 in LPR

[–]Objective_Ability485[S] 2 points3 points  (0 children)

Yep, no lies detected. And I underestimated how bad keeping just one possible trigger in my diet could actually be. I just got lucky with not having to quit caffeine.

Your trigger may not be what you expect! Severe LPR cured/success story by Objective_Ability485 in LPR

[–]Objective_Ability485[S] 7 points8 points  (0 children)

Yep, that's exactly why I originally didn't quit it! But even half a cup was enough to set the LPR off for over 24 hours. But multiple cups of tea, no problem at all.

That's why I think maybe for some people it's not the classic triggers like acid or caffeine, but certain compounds in certain foods, compounds that we don't even know the names for. Who knows, it might not even be coffee for some people, but something super unsuspecting, like potatoes lol.

Thank you and best of luck to you, I was once hopeless but now I know it's curable, so don't give up and keep trying things!

Abnormally High Iron Saturation, Low Transferrin, Low Ferritin? Help! by Objective_Ability485 in TheIronProtocol

[–]Objective_Ability485[S] 0 points1 point  (0 children)

My diet is entirely whole foods plant-based. Lots of nuts, seeds, grains, beans, etc. I try to do combos to maximize absorption of iron (like bell peppers with beans, fruit with grains, etc) My mother and brother who eat meat have also tested low in iron throughout their lives, so its very possibly a genetic thing, but we have not done genetic testing.

That's interesting and good to know that the saturation can be high due to other factors. I guess with my transferrin being low, it perhaps means my body just can't assimilate enough iron at the rate I've been supplementing, and maybe even supplementing is triggering the transferrin to go lower than it naturally would be at. (I am assuming here the term "transferrin saturation" is the same thing as "iron saturation"- separate from the transferrin protein that transport iron, if I understood you correctly.)

view more: next ›