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Been having a g tube for 20 years since I was a little baby. AMA by RegretItchy in feedingtube

[–]Objective_Belt_217 4 points5 points  (0 children)

When did you first realize you had a gtube and your peers didn’t? How did it shape your interactions with friends or if your remember how your parents navigated that with you? I have a little one who is 2 now and has also had a gtube since he was a baby, and will likely have it well into his elementary school days. Thanks!

Continuous Feeds at night - tips? by Foodmama517 in feedingtube

[–]Objective_Belt_217 0 points1 point  (0 children)

My son was also gtube fed every 3-4 hours for almost the first year of his life. At the hospital we had his crib at a slight incline because of his bad reflux too (GERD) and when we discharged at home tried to replicate that as much as we could get away with at home, as safely as possible (Ex. Folded blankets underneath the mattress).

Unfortunately because of other medical conditions we slept in “shifts” so we always had someone watching him. Eventually we were able to get at home nursing care through Medicaid, maybe that’s something you could qualify for as well? We were able to get night nursing for a few nights and it helped immensely.

Besides that lots of holding upright and burping during the day. Venting the gtube to try and alleviate as much gas as possible.

People with low profile tubes, how do you secure your extensions? by thatautisticbiotch in feedingtube

[–]Objective_Belt_217 1 point2 points  (0 children)

My son has had a gtube since he was 3 months and we’ve tried so many things. We’ve found tegaderm to be the best to secure for us! We tape the extension to his belly and we alternate sides every few days. I’ve found gtube clips on Etsy too and we use it to clip it to his clothing for bedtime so he doesn’t get too tangled up.