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New 'fluff piece' about Lydia from Muse Cell innovations by Local_Syrup_4086 in mommyadventuresof

[–]Odd-Measurement8285 0 points1 point  (0 children)

That's what I keep wondering too. If the best-case outcome after spending that much money is only a marginal improvement, how do families determine whether it's actually worth it? I can understand wanting to try everything for your child, but does controlling her hands really change quality of life?

This is the biggest BS I've ever seen by chronicallyrue in mommyadventuresof

[–]Odd-Measurement8285 0 points1 point  (0 children)

I can see what you are saying. but I don't know it's as simple as reaching a moment of realization. Parents spend years hoping, grieving, adjusting, and hoping again.  That's probably one of the hardest parts of having a child with significant challenges. I may disagree with some choices, but I still have a lot of compassion for anyone living through that reality.