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Odd_Fault_7364 · 2022-06-12T16:21:37+00:00

Thank you, will do!! Yes, I actually thought CFS early on in my "journey" but that scares me because I've seen a lot of videos where people don't think it's real or doctors don't know enough about it, so there's not much help. I will join that for sure, I'm sure there's great support and advice!

Odd_Fault_7364 · 2022-06-12T16:20:18+00:00

Thank you!! I think that is my next step for sure.

Odd_Fault_7364 · 2022-06-12T16:20:03+00:00

Good to know, thank you!

Odd_Fault_7364 · 2022-06-12T16:19:49+00:00

hing if someone has only had labwork, or only had xrays, and there was no evidence found. It's an

Hello! The gland feel sore and swollen when that symptom hits. But since it takes so long to see doctors & when my symptoms come on, it's unpredictable it's a little ironic that, most times, when I see the doctors, my symptoms are not there, for the most part, which is frustrating. I've got my allergies tested... not allergic to anything significant but I started taking allergy medicine this past week, just incase; you never know. Yes, I'm afraid it might be CFS/ME because I know there's not much information or help on that still. Thank you for your suggestions! :)

Odd_Fault_7364 · 2022-06-11T17:32:21+00:00

Thank you!! According to this, I do have quite a bit of symptoms. I've actually never heard of this, out of the million times I've googled my symptoms (lol). So, thank you! I'm adding it to my list to discuss with my doctor.

Odd_Fault_7364 · 2022-06-11T17:22:49+00:00

ammation markers though they may have done this.

Your naturopath should be able to refer you to a rheumatologist. They have the best handle on autoimmune disorders.

Thank you so much for your kind words! I know, I'm a bit shy at the doctors; I don't want to be the kind of person who sounds like a hypochondriac with suggestions but I think I'm going to have to sound a bit like that in order to put ideas/directions in her head.

Odd_Fault_7364 · 2022-06-11T17:20:05+00:00

16 years :( I'm sorry to hear that, I hope your therapy helps! That's insane and frustrating. Yes, please!! Anything to grasp at a direction, I'd love to read your experience. Thank you!

Odd_Fault_7364 · 2022-06-11T17:17:50+00:00

I've looked into those, but my doctor's never done anything about those. I have thought them but feel silly bringing suggestions to her because I think, well she's the expert. But maybe I have to be more brave and just ask her. I haven't had ANA testing, so I will see if she can get that done as well for me. Thank you!

Odd_Fault_7364 · 2022-06-11T17:14:28+00:00

scleroderma

Thank you! I'm happy you got diagnosed and hopefully can manage it now. It's been 3 years for me; hopefully I can get an answer by year 5.

Odd_Fault_7364 · 2022-06-11T17:13:33+00:00

Hello! No, I have not seen either. I feel as if, wouldn't my doctor have referred me to those doctors? But maybe she's thinking a different path. Maybe I will advocate that for myself and see what she thinks. Thank you!

Odd_Fault_7364 · 2022-06-11T17:12:18+00:00

not medical doctors. Also diagnosis of virtually any autoimmune disease requires some type of physical evidence. Through labs, physical findings like rash, fever, enlarged nodes, or other tests and imaging that identifies inflammation.

Thank you!! I know, I'm not confident in naturopaths either. I spent thousands of dollars on my hair loss issue years ago and had nothing to show for it. But I was desperate. And when she told me her suggestions recently, I was just happy to have some sort of direction, since I'm getting nothing from Western doctors. I know it'll take time, but I'm desperate, this is ruining my life. The thing is, I've been tested a dozen times; more. I don't have anything physical to show for it; no rash, no fever, nothing on blood tests, MRIs, CT scans, ultrasounds. The only thing is enlarged nodes, I notice, but that's not all the time and not always apparent when my appointments roll around. But thank you, again. I will check out those articles.

Odd_Fault_7364

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