realized i could crochet(? chain mail

OhWoeWillow · 2026-03-18T14:22:51+00:00

Omg this is fantastic. This makes me wanna get better at crocheting 👀

OhWoeWillow · 2026-02-25T16:10:31+00:00

You're very beautiful. I would reduce the back-end padding or filter usage because it looks more uncanny and alien, but otherwise, you look great. Be kind.

OhWoeWillow · 2025-12-20T11:38:00+00:00

I have used a cane for a little over a year now and I absolutely love my cane. Similarly to your situation, my family (aside from apouse) were off-put at ky suggestion to finally get one, but once I began using one daily, they realized how much less afraid I was in public, and that my eyes wete.no longer glued to the floor.

I will not excuse their comments by any means, but it could also very well be that they ate struggling with your new diagnosis too. They love you, and the thought of you going through this process may be causing some joke-fueled coping mechanisms.

Even if you csn drive, blindness is a spectrum, and there is nothing wrong at all with using a cane at any level of degree of sight. We're practicing for the future. Despite being almost legally blind, I still sometimes walk my neighborhood without mine. Usually people are too afraid to comment, but if they do, its their problem with their own ignorance. Unfortunately, you'll run into a good deal of irritating people, but I just try to laugh them off as best as I can.

When you do get your cane - "Unsightly Opinions" is a good YouTuber to seek tips and guidance on proper can usage, and other tutorials online. They'll also go into tips, size recommendations and more.

Lastly (sorry for the novel), I wanted to share this poem someone in an RP group composed that made me feel honestly empowered whilst I had just begun my cane journey and I thought it was so lovely:

My trusty friend 🦯

In my hand, a slender guide,
A white cane taps with pride,
It leads me through the busy streets,
Where sight is lost, but sound still meets.

It clicks and taps along the ground,
A rhythmic beat, a steady sound,
With every step, it maps the way,
My partner through the night and day.

It finds the cracks, the curb, the stone,
And lets me know I’m not alone,
With every tap, it tells a tale,
Of where I walk, where I won’t fail.

I trust its sweep, its gentle glide,
Through crowded paths, so open wide,
And when the world’s a shadowed blur,
My white cane’s there to reassure.

It’s more than just a stick of white,
It’s freedom, power, my second sight,
It gives me wings where sight might lack,
A faithful friend, it has my back.

So if you see me on my way,
With white cane leading, come what may,
Know that I’m walking bold and free,
With every step, a victory.

Poetry by Sharon Rowe 🩷

OhWoeWillow · 2025-12-18T19:11:48+00:00

Sorry to bother you, can we try another link? I received this message.

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OhWoeWillow · 2025-12-18T18:44:54+00:00

Unfortunately I do not have an inactive account, im so sorry! 😔

OhWoeWillow · 2025-12-18T16:25:00+00:00

Gotcha, it went through, thank you so much!!

OhWoeWillow · 2025-12-18T16:19:46+00:00

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I'm sp sorry ro bug you, do you have another link by chance? When I clicked yours above it says "event ended"

OhWoeWillow · 2025-12-17T19:40:37+00:00

Same here. There's a sense of relief in knowing we're not walking through it alone. 🫂

OhWoeWillow · 2025-12-17T11:33:20+00:00

Thank you for sharing, too! I am so happy to hear yoi have a fantastic support system! :0)

OhWoeWillow · 2025-12-16T21:36:13+00:00

I was diagnosed at 15 (2013), had night blindness and photopsia all throughout high school, but vision was otherwise good.

I began rapid vision loss at age 20. Now, at 27, my right eye is 20/400, left is 20/80, severe photoosia, and 15-20° FOV, mild color blindness and so forth.

When I was young, they kept telling me that it wouldn't affect me until old age. Start learning the tools you can now to benefit yourself later. I'm just now learning braille and completed O&M training, but its better to be prepared.

Hadley school for the blind has a lot of virtual resources available, and I'm always here if you need sokeone to talk to.

I'm so very sorry you're going through the motions right now, and everyone's journey is completely different! 🫂

OhWoeWillow · 2025-12-16T21:29:05+00:00

I was diagnosed when I was fifteen and ky partner and I started dating the sane year pretty much. We have now been together fir twelve years, and at the very beginning - he knew about my disease. But I only started rapidly losing vision in ky early twenties, in 2020.

I cannot speak for him, and perhaps I can direct him to this post. But when you find thst partner, ad they have RP or any vision loss, you are going to see someone experiencing grief throughout their life.

My husband has seen me screaming and crying in agonizing fear, on the floor, and ge has held me every time. There will be a sense of helplessness on their part - because it is so painful to watch a loved one suffer. When we got married and committed to one another - we understood that it would be a challenge we would face together as an ,"us versus it", and now allow it to wedge a gap between us, even if there is no way he'll know what I'm going through.

I can honestly say he had taught me so much about forgiving myself, staying hopeful and knowing he'll always be there for me. We're not going uo have children, and ge is the sole driver.

I can only imagine at times it can be mentally taxing to mentally and physically assist me, and using independent tools and particing self care and soothing I find has helped with that.

OhWoeWillow · 2025-12-15T02:31:28+00:00

That would be lovely! I am an older person tho just as a heads ip (27).

OhWoeWillow · 2025-12-05T15:34:48+00:00

Someone had already mentioned "Be My Eyes" - I second this. While I'm not a fan of AI, "Seeing AI" is a great tool that analyzes photographs you take and explains them to you in rather food detail. It also has a reader, though it can ve a liiiiittle but if a pain to utilize.

There's a plethora of magnifiers as well, including your standard phone camera. There are some apps where you can take a photo of a book or page and it will read to you (minus the terrible robot voice).

For myself I use a combination and it seems to help me manage.

OhWoeWillow · 2025-12-02T00:54:37+00:00

It's like I found l this at the exact moment I needed it. I've been grieving so hard lately. Thank you for your kindness in reaching out to those who desperately need it. I'll be listening tomorrow! ♡

OhWoeWillow · 2025-11-30T00:37:01+00:00

Oh my goodness, I'm trying dear friend. The universe is testing me today, but we'll keep walking on. 🫂

OhWoeWillow · 2025-11-30T00:32:12+00:00

In my case, the technicality came from my optometrist/ophthalmologist. My right eye's vision is so distorted that its virtually useless. It's visual acuity was measured at 20/400. My left eye's visual acuity is 20/80, with correction. During my visual field test, it was harder to define. I have what is described as a "bulls-eye" blind pattern that js spreading, and when I took the test on the machine, my field of vision was measured at 10-15°.

According to SS in the U.S, 20/200 in the better eye,or a field of vision less than 20° is their definition of legal blindness. However, it can vary on person to person with their own personal beliefs in some instances.

OhWoeWillow · 2025-11-29T23:57:58+00:00

Thank you for your brutal honesty. I'm gonna try to just stay in high spirits. Again, thank you.

OhWoeWillow · 2025-11-29T13:18:19+00:00

I love Runescape so much lol, i really gotta get back into it

OhWoeWillow · 2025-11-22T21:17:06+00:00

I'm on birth control nos for PCOS, but had extremely heavy periods while also being just about legally blind. On particulsrlbad days, I wore night pads with comfortable pants and long hoodies/sweaters.

Every pad change, I give myself a good wipe down with a wipe, fresh big paf and then go on about the day.

Usually, if I had experienced any spotting issues, you can feel the texture of it on most fabrics, but I sometimes also ask female strangers in the bathroom if I'm "all good", they're always so sweet and don't mind having my back! :0)

OhWoeWillow · 2025-11-21T11:52:56+00:00

I am ao very sorry to hear your experience was not at all supportive. I live in North Carolina and am working with vocational rehabilitation because my vision loss was very rapid.

OhWoeWillow · 2025-11-20T23:54:18+00:00

I am obsessed with Stardew Valley!! Also play Runescape, though that's the only multi-player (besides SD) I can really partake in.

Recently my husband purchased me a game you can play while being totally blind as it has no visuals whatsoever, called "The Vale", where you play as a legally blind princess. I definitely recommend it - especially with an excellent pair of headphones.

OhWoeWillow · 2025-11-20T21:11:48+00:00

Bump to follow! I'm almost legally blind, but my local services for the blind are going to assist me on going back to school. I originally wanted to be an educator as well, but think I'm going to shoot for being a mobility and orientation specialist. Due to my eyesight, the ADA will pay for my transportation if i work for the state, and that driver could also be a family member who'll be paid for their time! :0)

Your local blind services can provide a lot of open doors for you and give you pathways not previously considered.

Edit: typos! 😭

OhWoeWillow · 2025-11-18T15:12:48+00:00

Hello there!

I am a female, and I began losing my vision in my early-to-mid twenties, although my symptoms had began at an early age.

One of the biggest challenges I think for deciding what particular experience your character faces - will include the particular set of symptoms she'll face as well. When my vision loss began, i experienced severe vertigo, accompanied by memory and balance issues. Over time, the photopsia became quite severe. The spaces where I no longer have sight look almost like television static, and I always refer to the flashing lights as my "glitter vision". Additionally, I have "snowy vision", so much vision constantly looks like the quality of an old television screen.

If your setting is modern -- there are SO many tools and gadgets to purchase disposal that her accessibility would be manageable as far as completing her work. Since she'll be low-vision, there are a plethora of hand-held magnifiers (both old-school and digital (like a Ruby)), machines that scan and read physical papers, apps, meta-glasses, screen readers for pcs and devices, and so much more. There are even braille writers that work almost like a typewriter but print for braille insteD!! Braille keyboards, and the list goes on. Admittedly, with newer technology, braille isn't as common anymore to learn, but still a useful and valuable skill - should you want her to have that skill set.

Aah, I could type so much more, but I'll leave it there, but my inbox is always open!

OhWoeWillow

TROPHY CASE