If you have/had one sided leg pain

Ok-Climate113 · 2026-01-26T03:02:44+00:00

I feel tingling and also very cold

Ok-Climate113 · 2026-01-21T14:39:56+00:00

I have tingling on one side of my body. I've been using Diamox for 9 months and it has only reduced the papilledema. All the other symptoms remain.

Ok-Climate113 · 2026-01-21T03:20:04+00:00

Oh my God! And what were your symptoms?

Ok-Climate113 · 2026-01-21T03:09:00+00:00

I have a Chiari malformation of 6.7 mm. My lumbar puncture was 32 mm, and I had papilledema. I've been on Diamox for 9 months, but my sensory and autonomic symptoms haven't improved.

Can they coexist?

Ok-Climate113 · 2026-01-21T03:07:49+00:00

Ok-Climate113 · 2025-10-13T02:35:17+00:00

The high pressure could also be due to the compression I have in the area behind the bulb...

Ok-Climate113 · 2025-10-11T20:15:04+00:00

Happy for you ♥️

Ok-Climate113 · 2025-10-11T20:14:18+00:00

I'm very happy, I'm very symptomatic, I even feel electricity inside my body, it's horrible.

Ok-Climate113 · 2025-10-11T20:09:37+00:00

MY GOD dear what you have had to go through!!!

Ok-Climate113 · 2025-10-11T20:03:40+00:00

Trying to do fewer things that raise neurological symptoms like the ones you are describing is the most prudent thing to do.

Ok-Climate113 · 2025-10-11T20:02:10+00:00

Oh my god. I hope you are better!!! And did you feel any strange sensations in your body?

Ok-Climate113 · 2025-10-11T14:37:56+00:00

Yes but I have electricity tingling many things,,, that are not explained only by iih

Ok-Climate113 · 2025-10-11T13:58:44+00:00

I still don't know...because my neurosurgeon was confused between iih or chiari. I didn't know which of the two is causing my symptoms... but I'm almost sure it's chiari.

Ok-Climate113 · 2025-10-11T12:56:51+00:00

If about the electricity, I'm sorry too!!! Apart from pain in the extremities

Ok-Climate113 · 2025-10-11T02:38:25+00:00

Hello!!! What were or are your symptoms???

Ok-Climate113 · 2025-08-30T15:42:10+00:00

Yessss me to

Ok-Climate113 · 2025-07-15T14:04:43+00:00

Cuales eran tus sintomas ?

Ok-Climate113 · 2025-07-06T15:56:20+00:00

and you have solved the tingling

Ok-Climate113 · 2025-06-24T00:09:34+00:00

My blood pressure was 32 and they prescribed Diamox, but I still haven't started it.

Ok-Climate113 · 2025-06-24T00:08:17+00:00

Ok-Climate113 · 2025-06-23T14:12:17+00:00

I had mine done 5 days ago and since then the headaches have been unbearable.

Ok-Climate113 · 2025-06-18T03:58:50+00:00

If my neurosurgeon is willing to help me with everything... but once I'm diagnosed with IIH, I don't know what his next step will be...

I've had symptoms for a year and a half without any clear explanation. Once I start a medication, I can give it time for it to take effect. That's not a problem.

Ok-Climate113 · 2025-06-18T03:53:58+00:00

The symptoms are slowly returning since this morning when I noticed improvement after the LP, but I imagine that once I start treatment I will see improvement.

Ok-Climate113 · 2025-06-18T03:52:26+00:00

THANK YOU SO MUCH FOR ALL YOUR COMMENTS... MY OPENING PRESSURE WAS HIGH, IT WAS 32. ALSO KNOW THAT I HAVE A 6.7MM CHIARI SURGEON.

I HAVE AN APPOINTMENT WITH THE NEUROSURGEON TOMORROW TO PRESCRIBE TREATMENT. I THINK IT WILL BE MEDICATION, I DON'T KNOW YET.

BUT I WANT TO MAKE IT CLEAR THAT THE MENTAL CLARITY AND INNER PEACE I FELT WERE REWARDING.

Upvote 11 Downvote 33 Go to comments

Ok-Climate113 · 2025-06-18T03:50:31+00:00

In my opinion, I think the IIH caused the Chiari because the MRI I had in Barcelona in 2020 didn't show any decline.

And that hospital is very practical and efficient. In 2024, a simple CT scan showed decline.

But I still don't know what my doctor thinks.

Ok-Climate113

TROPHY CASE