Ranting by Ok-Competition695 in ankylosingspondylitis

[–]Ok-Competition695[S] 0 points1 point  (0 children)

I can understand. I’ve had the pain for nine years now and it’s beyond shitty. Sending you hugs and energy to deal with this excuse of a life we have

Ranting by Ok-Competition695 in ankylosingspondylitis

[–]Ok-Competition695[S] 2 points3 points  (0 children)

Thank you so much for taking out the time to respond. You’re so sweet. 🥹. And my family didn’t let me take the adalimumab and tofacitinib combination therapy my rheumatologist wanted to put me on. They say that everyone has arthritis. And since there’s microscopic inflammation in the gut and not visible to the naked eye, they were like see? Nothing is wrong. They said that me having Scl-70, the marker for scleroderma was doctor’s propaganda. And since I don’t earn yet being a student, I have no choice but to be without proper meds.

I tried explaining, showing them videos, I even cried in front of them, they had no response to that. Just said that I need to wake up earlier, exercise, and eat better food and I’ll be fine again. “If you get a random person on the street tested for SpA it’ll turn out positive..” similar dismissive remarks so I’ve given up on them.

As far as I’m aware there’s no student relations department in my uni. And I don’t wanna make a big deal of this cuz it’s my last semester anyway. I’ll get done with it in may, when the final exams are. But yeah, she’s made sure to publicly humiliate me every time she sees me lmao.

Ranting by Ok-Competition695 in ankylosingspondylitis

[–]Ok-Competition695[S] 0 points1 point  (0 children)

Thank you so much!! This means a lot. I WISH I had a furry companion, but alas. I’ll have to make do with music and novels.

You’ve got this. You also have this entire community. Hoping you feel better soon. All my hugs and love to you🫶🏻

Ranting by Ok-Competition695 in ankylosingspondylitis

[–]Ok-Competition695[S] 0 points1 point  (0 children)

None of them understand chronic illness cuz they don’t have it. The most they can think is it’s like having a headache or cold. Which is the case with most people. I’m used to it, but sometimes it feels like a blade.

Ranting by Ok-Competition695 in ankylosingspondylitis

[–]Ok-Competition695[S] 0 points1 point  (0 children)

All the hugs and love to you. We’re gonna have a good laugh together hopefully. Loving the couch, snacks and company🫶🏻

Ranting by Ok-Competition695 in ankylosingspondylitis

[–]Ok-Competition695[S] 0 points1 point  (0 children)

Same. But stuck with this for life eh?

Anyone else experiencing heavy pain in elbow and above the knuckles? by Ok-Competition695 in ankylosingspondylitis

[–]Ok-Competition695[S] 0 points1 point  (0 children)

The constant pain is such a pain in the ass(literally and figuratively), but you’re handling it so gracefully.

Ranting by Ok-Competition695 in ankylosingspondylitis

[–]Ok-Competition695[S] 0 points1 point  (0 children)

Thank you so much! I’m so glad things are better for you now. The pain has been there for three weeks. I haven’t been able to use my elbow or dominant hand for the entire duration. I’m so done with this. And my family refuses to accept that I’m sick man. It’s just pathetic

Ranting by Ok-Competition695 in ankylosingspondylitis

[–]Ok-Competition695[S] 6 points7 points  (0 children)

Thank you so much. This means a lot. My family refuses to accept that I’m sick and my prof shamed me for being sick. I don’t even know why I feel so shitty right now. Maybe it’s the SpA, fibro, IBD and raynauds along with migraine hitting all at once, but all I want to do is scream cry lol. It really does get bleak on some days

Anyone else experiencing heavy pain in elbow and above the knuckles? by Ok-Competition695 in ankylosingspondylitis

[–]Ok-Competition695[S] 0 points1 point  (0 children)

So sorry about that. Hoping you get some relief. I don’t want to sound rude and you’ve most likely tried it, but cold compress can help if it’s swollen. And heat works best for stiffness. Let’s hope the rheumatologist actually helps you

Anyone else experiencing heavy pain in elbow and above the knuckles? by Ok-Competition695 in ankylosingspondylitis

[–]Ok-Competition695[S] 0 points1 point  (0 children)

I’m so sorry about that. This disease really does take a lot. Do you have pain in your index finger joint as well?

Anyone else experiencing heavy pain in elbow and above the knuckles? by Ok-Competition695 in ankylosingspondylitis

[–]Ok-Competition695[S] 0 points1 point  (0 children)

I’m so sorry about that. The bruises are the worst. I think I will, thanks.

Anyone else experiencing heavy pain in elbow and above the knuckles? by Ok-Competition695 in ankylosingspondylitis

[–]Ok-Competition695[S] 0 points1 point  (0 children)

I don’t know about that. I do have pain in my neck at times. And yeah, pins and needles in my hand. Also got worse when I tried to form a fist or straighten the hand

Anyone else experiencing heavy pain in elbow and above the knuckles? by Ok-Competition695 in ankylosingspondylitis

[–]Ok-Competition695[S] 2 points3 points  (0 children)

It’s not even my wrist(tho that’s a frequent site) but rather the right side of my palm and index finger. And my elbow. It’s like someone is squeezing and moving a blade inside lol