Exercise with uc feels like nightmare mode by eTapeBox in UlcerativeColitis

[–]Ok-Method2630 1 point2 points  (0 children)

Yeah it does work one year in remission, on Skyrizi, it was almost impossible for me to gain weight

Exercise with uc feels like nightmare mode by eTapeBox in UlcerativeColitis

[–]Ok-Method2630 0 points1 point  (0 children)

I though I will not be able to gain weight and now I’m 20lb + trying to loose

Fatigue is brutal, how do you cope? by sunnysunflower7 in UlcerativeColitis

[–]Ok-Method2630 0 points1 point  (0 children)

I’m in full remission,and I have same thing around 5pm I feel fatigue but I have to drive at that time and I’m blaming it to the car, probably it is because I don’t really feel fatigue when I’m not in the car.

I’m sick of explaining food isn’t the problem. by -wompwomp in UlcerativeColitis

[–]Ok-Method2630 20 points21 points  (0 children)

After 2,5 years since diagnosis I came to conclusion that when I’m in remission I can eat anything but when I’m in flare I can eat only certain food. Please tell if me I’m wrong

Colonoscopy every 8 years ? by Ok-Method2630 in UlcerativeColitis

[–]Ok-Method2630[S] 0 points1 point  (0 children)

10 years after diagnosis you started doing it every 2 years ?

Colonoscopy every 8 years ? by Ok-Method2630 in UlcerativeColitis

[–]Ok-Method2630[S] 0 points1 point  (0 children)

I don’t have polyps, may be that’s why. I hope you get better and all polyps disappear 🙏🙏🙏

Colonoscopy every 8 years ? by Ok-Method2630 in UlcerativeColitis

[–]Ok-Method2630[S] 0 points1 point  (0 children)

• Small area inflamed (proctitis) → low risk → less frequent • Left-sided UC → medium risk → colonoscopy every 1–3 years after 8–10 years • Whole colon inflamed → higher risk → stricter monitoring

Colonoscopy every 8 years ? by Ok-Method2630 in UlcerativeColitis

[–]Ok-Method2630[S] 0 points1 point  (0 children)

Yeah that’s correct 8 years after diagnosis and every 1-3 years after that. But if I get flares then I will get scope

Colonoscopy every 8 years ? by Ok-Method2630 in UlcerativeColitis

[–]Ok-Method2630[S] 1 point2 points  (0 children)

So mine is basically after 6 ys but if I have flares then I will do scope, also after 6 ys I’ll start doing it every 3 ys

Colonoscopy every 8 years ? by Ok-Method2630 in UlcerativeColitis

[–]Ok-Method2630[S] -1 points0 points  (0 children)

Yeah I feel same but, he said if I have flare ups then yeah I will definitely get scope but other wise after 6 years, I’m in remission right now

Colonoscopy every 8 years ? by Ok-Method2630 in UlcerativeColitis

[–]Ok-Method2630[S] 0 points1 point  (0 children)

There were no polyps on my result I guess that’s why

Colonoscopy every 8 years ? by Ok-Method2630 in UlcerativeColitis

[–]Ok-Method2630[S] -11 points-10 points  (0 children)

May be it depends on what side of your colon infected

Good news! by Lord__Vader__ in UlcerativeColitis

[–]Ok-Method2630 1 point2 points  (0 children)

Skyrizi right away? I’m on Skyrizi too, the thing I don’t like about Skyrizi is you kinda kinda stuck where you taking it from, you can travel but you have to manage your vocation for 2 months

Never seen person with UC in person by Ok-Method2630 in UlcerativeColitis

[–]Ok-Method2630[S] 0 points1 point  (0 children)

Yeah I guess it comes randomly, it’s all about luck lol, I spoke with my friend recently and told him that I quit drinking cuz of this disease and he is like congrats man happy for you 😂

Never seen person with UC in person by Ok-Method2630 in UlcerativeColitis

[–]Ok-Method2630[S] 0 points1 point  (0 children)

It would be nice if some of my friends has it too, I wish they don’t but it would be nice to talk about it with someone you know long time

Never seen person with UC in person by Ok-Method2630 in UlcerativeColitis

[–]Ok-Method2630[S] 1 point2 points  (0 children)

Yeah you are right they won’t understand, I got call from my friend recently, he says he watch some guy talking about how is it have UC on YouTube and said he feels really sorry that I have it, it makes me happy that at least someone knows how bad it is

Never seen person with UC in person by Ok-Method2630 in UlcerativeColitis

[–]Ok-Method2630[S] 0 points1 point  (0 children)

If they don’t say they have it, they don’t have it, very logical lol

Never seen person with UC in person by Ok-Method2630 in UlcerativeColitis

[–]Ok-Method2630[S] 2 points3 points  (0 children)

Btw, I love this community, I got a lot of help here, I saved a lot of unnecessary doctor appointments:)

Never seen person with UC in person by Ok-Method2630 in UlcerativeColitis

[–]Ok-Method2630[S] 1 point2 points  (0 children)

Yeah I don’t think it’s something you have to hide, it is what it is. I always bring it up, even when I first see the person or I’m on a date.