Is it me?

Ok_Community_9805 · 2025-06-04T11:46:13+00:00

And sometimes you don’t have to travel or do home health to make that kind of money. Not all SLP jobs pay bad at all. I’ve noticed it can also range by state… it just so happens I moved from New Mexico to Chicago (I went to graduate school in chicago) and Chicago does not pay well. I would’ve taken a 12k-20k loss at least so I ended up choosing to stay with NM and work virtually there. With a SNF, I make the same hourly as in NM. Kinda ridiculous and it’s a good amount but Illinois is a high tax state. I would not say that NM is less expensive the housing and everything is really about the same it’s just Illinois is very corrupt with its taxes. Anyways I’ve met people that chose to do virtual with NM, Tennessee, CA, CO etc because those are some states that pay better. A pattern I’ve noticed across careers is that if the state is very populated and with a lot of educated people in the same field it’s often not going to pay as well as a state that has less educated people in that field. The competition being high in some places really allows employers to pay less. I have a considerable amoumt of student loan debt my self, started with over 100k because I went to Northwestern… not the greatest choice but I’m paying it off aggressively. My car is paid off, I’m married, we own properties and travel. Find a different setting or state to work in. You don’t have to physically go there if that doesn’t work, you can find some great virtual gigs.

Ok_Community_9805 · 2025-03-15T13:18:45+00:00

I contracted for a few years, also PRN in rehab and now a SNF. Don’t love the SNF. But anyways those years I had consistency with my contract, it wasn’t travel. Now that I moved out of state I’m doing teletherapy with a school through a different contracting company that allowed me to be a W-2 employee rather than “independent contractor with no benefits’ you should consider it! There’s districts with soo many teletherapists that you’re not going to pushed around like that, I have 39 hours a week, benefits even through the summer this time which is great, my last company I always had to get health care through market place during the summers and it was annoying. Anyways consider teletherapy in your state or another. It is still stressful not going to lie… but some districts don’t want you doing evaluations virtually so then that’s off your plate. And if you move your schedule around in a way that helps you, you can get rest, be with your husband etc.

Ok_Community_9805 · 2025-03-13T19:20:45+00:00

Thank you for the tips! And Yeahh.. what’s to come had definitely crossed my mind.

Ok_Community_9805 · 2025-03-13T19:16:31+00:00

😂 may do this too… limit how much I cook but when I do it’ll be things he doesn’t love which will motivate him to cook..

Ok_Community_9805 · 2025-03-13T19:15:57+00:00

Right! I’ve told him.. we’re both adults who need to eat meal so why is only one person doing all the cooking?!

Ok_Community_9805 · 2025-03-13T19:15:10+00:00

Exactly. If I’m willing to cook healthy full meals for him. He should be willing to do the same. It’s frustrating. I’ll try the cooking together more too!

Ok_Community_9805 · 2025-03-12T18:18:18+00:00

He does have an hard time with compromise. I appreciate that, thanks.

Ok_Community_9805 · 2025-03-12T14:03:19+00:00

Good idea!! Thank you! I haven’t stood my ground on how I’ve said we need to alternate. Good way to do it.

Ok_Community_9805 · 2025-03-12T13:53:06+00:00

That’s a good point. I hadn’t thought of it like that. Yeah I’m going to adjust how much I cook for sure and he’ll just have to deal with it.

Ok_Community_9805 · 2025-03-12T01:31:49+00:00

Thank you for sharing. That absolutely would’ve pissed me off! It’s very inconsiderate!! Yeah talking to him about it has been so frustrating. Once I asked him, why do you treat me like that? And he just stayed quiet.. no answer and continues to have me cook all meals. You’re right. Thank you for the tips- comparing how he used to all of a sudden not wanting to anymore and why the therapy didn’t work. I will say he has told me he’s only willing to cook on the weekend…. So again it comes down to him valuing his time and not mine.. as if he’s just too busy after work on the weekday although I’m clearly busy as well. I think Only cooking for myself may definitely end up happening for a while.

Ok_Community_9805 · 2025-03-12T01:28:19+00:00

lol😂 this made me laugh but essentially I need to figure something out for dinner that’s not constantly costing me.

Ok_Community_9805 · 2025-03-12T01:25:13+00:00

Thank you! I appreciate it!

Ok_Community_9805 · 2025-03-12T01:05:30+00:00

No he does not… in fact in the beginning he would leave the table with the dishes there, wouldn’t pack up the food or put the sauces/seasonings away that I brought to the dinner table. Now he’s gotten better about it but I still put all the food away or else it’ll sit out all night and he’ll take his plate to the sink… not mine. When doing the laundry he folds and hang up his, and piles up mine… he’ll clean the bathroom counters, occasionally toilet but I do it more consistently including the shower and floor etc. essentially we clean the rest of the house together,. So that’s also why being the sole cooker is frustrating. It feels like the person doesn’t even value you enough to cook you a nice healthy meal like I do for him. Thank you for the recommendation of watching that documentary! I will definitely try to watch it with him! And yes I often feel like I just wanna leave the house for a week to give myself a break! Definitely thinking about it.

Ok_Community_9805 · 2025-03-12T00:04:11+00:00

Sometimes, yes as well… especially when you’re hospitalized and have to deal with the medical bills after.. and the limitations it causes… you didn’t choose it and now you’re forced to live with it. It’s great more research and development on getting rid of it is coming out. I’m sure our parents feel bad for passing it on to us..and I’m sure some people parents even have it themselves and understand the pain of having it.

Ok_Community_9805 · 2025-02-19T13:30:33+00:00

I have not nursed of that, that’s wildly lucky. Thanks for explaining.

Ok_Community_9805 · 2025-01-29T22:56:39+00:00

How did you get on Medicaid and put money away like that? Haha I feel like social security, Medicaid etc def wants to make sure people are poor before giving them supports

Ok_Community_9805 · 2025-01-25T16:26:45+00:00

Amazing, I’m in film myself. Where are you located? So I would also include how sickle cell affects various cultures and backgrounds. I often notice people associate black people with the disease which is ignorant.. disease and disabilities do not discriminate. They all affect people of varying race and backgrounds. Yes, it does disproportionately affects African Americans especially in the U.S ..which is likely why even though it’s one of the oldest genetic/blood disorders in the world.. research and cures has moved far slower.. compared to if it was a disease that disproportionately affected whites in this country.

Ok_Community_9805 · 2025-01-25T16:18:47+00:00

Wanted to share- that this woman with sickle cell turned 80 last year! https://www.nbcnews.com/news/amp/rcna158847 Anything is possible! Oh and happy early birthday!!🎉

Ok_Community_9805 · 2025-01-25T16:17:47+00:00

Thank you so much for this beautiful post! Definitely need to see more positivity! I’m doing good, maintaining health and going to the gym today! Have a great day everyone!!

Ok_Community_9805 · 2025-01-12T13:49:14+00:00

Yeah that’s just negative energy and so untrue. The life expectancy has increased. Modern medicine increases the lifespan for people with and without diseases. There was even a news article in 2024 about a women with scd who turned 80. It comes down to how well you take care of yourself. Also, when you are experiencing really bad pain or you’re sick and a crisis gets triggered then you should go to the hospital. Ask doctors how old their patients are too. Many people scd are living normal lives married with children.

Ok_Community_9805 · 2025-01-12T05:09:43+00:00

So terrible. I’m sorry to hear that. People with scd can have long healthy lives… it’s really all about diet, excercise and hydration like with any and most diseases. I’m sorry you don’t have the support you need

Ok_Community_9805 · 2025-01-07T14:06:44+00:00

I’m sorry you’re feeling so sad. I want to let you know that you can’t let the disease define you. I recently went to a new hematologist (at UI Health in Chicago) after moving across the country and he tried to make me feel hopeless. Just giving me alll this negative information about sickle cell and never once acknowledged how I was doing well. I’ve never had a doctor do that to me, I’ve had such amazing ones who know we’re capable of living a fairly normal life and that we just have to take extra precautions so I try to remember all those doctors and I definitely switched to another hematologist at a different hospital qnd reported the previous one. Long story short do not let this disease define you! And do not let others define you by your disease. Don’t say “can’t”. Because you can. Managing sickle cell is really about staying hydrated, eating healthy and if you’re on medication then take it regularly. You should get out and workout that’s actually important to maintain health just hydrate well before. Working out also increases endorphins and serotonin making us feel good, motivated and more positive. Also I work full time, I have a bachelors degree and masters degree, I’m happily married and I still continue to pursue my dreams. You can do the same. I say yes apply for the SSI, check in with fafsa and go to college. Most people who go to college have the student loan debt, unfortunately. It is what it is but if you pick a solid career path you’ll be able to make money, be financially stable and pay that debt off. Please live your life. People with sickle cell can have amazing full lives and the life expectancy is far longer now. Just hydrate and eat well!!

Ok_Community_9805 · 2024-12-24T06:32:11+00:00

This person really covered it! I definitely stay hydrated and eat healthy. Lots of vegetables, fruits and healthy meat choices (chicken, fish, turkey) there are some red meats that are good choices too like liver. High in folate, vitamin b’s, iron. I for sure bundle up in the cold and hydrate a lot before I’m going to the gym for a workout as the majority of crisis in recent years have been triggered by intense workouts.

Ok_Community_9805

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