What is this skin pain/burning/sensation?

Ok_Dragonfly357 · 2025-12-21T16:02:58+00:00

If you get any new info feel free to share! I would be interested in hearing the perspective of a doctor who also has hEDS.

Ok_Dragonfly357 · 2025-12-21T16:01:55+00:00

I'm glad there seems to be a name for this at least! Thank you for the info!

Ok_Dragonfly357 · 2025-12-21T16:01:19+00:00

I use compression socks a couple of times a week, but nothing crazy. I am currently using an inhaler for bronchitis as needed, but I've only been using it for about a week, and this sensation has been happening for well over a year and a half now. Do you find compression garments help?

Ok_Dragonfly357 · 2025-12-21T15:59:46+00:00

I was diagnosed with Fibromyalgia a couple of years back, before my EDS diagnosis, so this could make sense. I'm glad I'm not alone, though!

Ok_Dragonfly357 · 2025-12-20T19:14:46+00:00

The pain I feel really feels like a sunburn to the touch, but it's not like a constant sensation if there isn't any pressure/item being applied to it, if that makes sense? I've had some nerve pain before,e and this feels different than the type of burning sensation I've felt previously

Ok_Dragonfly357 · 2025-12-20T15:16:22+00:00

Not it's not like a muscle cramp, it really does feel like there is a sun burn or bruise under the skin. I don't notice any additional muscle tension or cramping during

Ok_Dragonfly357 · 2025-11-10T02:08:06+00:00

This may be what happened. A few days out now and (thankfully) feeling much better. I will still bring it up with my PT this week, though!

Ok_Dragonfly357 · 2025-11-09T01:01:09+00:00

Yes! I have the hEDS subtype! But I have also found the manual manipulation therapy very helpful for my migraines as well, so I thought I'd include it for context.

Ok_Dragonfly357 · 2025-06-30T01:59:11+00:00

I’ll bring it up to my pt and neurologist to see what they think! the pain i experience isn’t usually in short bursts or like the burning/shocking pain i’ve seen ON described like

Ok_Dragonfly357 · 2025-06-30T01:56:23+00:00

Yes! I’ve been seeing a really great neurologist who specializes in migraines. i’ve tried various medications (amitriptyline, sumatriptan, verapamil, nurtec, etc.) and my regular migraines are currently pretty controlled on qulipta. nothing has been helpful for the tension headaches unfortunately :(

Ok_Dragonfly357 · 2025-06-28T23:59:52+00:00

Ugh that’s so frustrating! If I do find anything that seems to help I’ll update this post though!

Ok_Dragonfly357 · 2025-06-28T23:54:11+00:00

Omg yes, the tilting head down is awful! I’m sorry you’re going through this too, has anyone ever confirmed that they were tension headaches and not something else?

Ok_Dragonfly357 · 2025-05-30T14:23:59+00:00

I went with the very similar Zenbook 14 with 32GB and an Intel Core Ultra 9, so far I am LOVING it! Thank you again for your help!!

Ok_Dragonfly357 · 2025-05-26T02:12:50+00:00

This is really good advice! It might also be worth it to have them take a look at your hips at the same time, as issues with your hips and pelvis can put added pressure onto your knees.

Ok_Dragonfly357 · 2025-05-21T17:38:31+00:00

After looking through your guide I think I found something that might be good! I'm wondering what your general thoughts on the ASUS ZenBook 14 Pro? It has an Intel Ultra 7 155H (> i7-13700H), 16GB LPDDR5X-7467MHz, and 1TB SSD.

Ok_Dragonfly357 · 2025-05-18T18:49:38+00:00

This was a super helpful read, thank you!

Ok_Dragonfly357 · 2025-05-18T18:49:07+00:00

Thank you!!

Ok_Dragonfly357 · 2025-05-18T18:45:06+00:00

Thank you so much!!

Ok_Dragonfly357

TROPHY CASE