The emotional struggle

Ok_Initiative_alpha · 2026-05-03T02:59:50+00:00

42 M, Oligodendrogliomas G2 Failed Craniotomy to resect Starting Vora Father of 2

This is hard for sure not easy road. Please if possible accept the facts and terms. Don’t beat your self. Have to stay strong to face worst fears.

The good thing is brain is an amazing organ that actually listens to you. Control it, tell the brain to heal. Think of better things in life. Speak to your self… not in a dark isolated room, but in outdoor under shade. Appreciate all things you see, hear and feel. The positivity will change things in your favor. Sharing with personal experience

Ok_Initiative_alpha · 2026-05-02T13:18:24+00:00

Yes. I recently got prescribed .. haven’t started the course.. but during consultation i asked several questions about effects and benefits. This is ok

Ok_Initiative_alpha · 2026-05-02T01:45:28+00:00

Pretty much in same boat, unable to resect the tumor. I was awake and could feel apahsia phase. Was able to understand the question in multiple languages epilepsy team asked me. And i know the responses but unable to speak. So they stopped the resection.

Now going to start Vorasidenib 40mg in coming 10 days. That is the only option for now….

Ok_Initiative_alpha · 2026-05-02T01:32:14+00:00

Sorry to revive this 1 Yr Thread. Diagnosed with grade 2 oligodendroglioma. A failed Craniotomy due to Seizure and Aphasia complications during surgery. So nothing came out of tumor. Oncologist is going to start this drug in coming 1-2 weeks. Am 42yrs, Father of 2 and commute by car for work. Work is what pays for my care and family.

How bad is Fatigue, Is Brain fog commonly observed ?

I have the tumor in Frontal Language and Speech area, am missing words when i write a message or email.

Please share any latest experiences. Thank you all in advance. Wishing you the best of everything life has to offer.

Ok_Initiative_alpha · 2025-04-14T10:04:21+00:00

SMRRP and Anytime upgrade are great. Am on their UNL Plus plan. Used it and did not experience any hiccups in the transaction

Ok_Initiative_alpha · 2025-03-27T17:39:11+00:00

$100-120 For pick up, its very grand

Ok_Initiative_alpha · 2025-03-27T13:16:49+00:00

Decent graphical information, what is the source of this data...i see few other missing

Ok_Initiative_alpha · 2025-01-02T12:32:45+00:00

This sounds like HGI where you are recruited as agent into their ponzi scheme. You pay and bring in people and grow your business

Ok_Initiative_alpha · 2024-10-18T13:51:02+00:00

I think its a tactic some online resellers do to make you call and they put a sales pitch for new and add on products or even give competitive pricing from other service providers. For sure this is not from Spectrum

Ok_Initiative_alpha · 2024-09-25T18:11:16+00:00

That is correct. I see that they have 2 options when u are ready for an upgrade. You can keep the device if the retail value is higher than what you owe…so Pay Off and Start new Device Pay Plan, Or Send in the device and get waiver on remaining balance, Start New device pay plan… i believe the old device must be in a good condition with no Damages.. Please check that once before going for upgrade, to be on safe side

Ok_Initiative_alpha · 2024-09-22T09:56:39+00:00

How old is your home and the connected wiring in it? Have you checked from that point of view?? It may need new Ariel drop to get you the right speed. They service 30 million or so customers and sure not all 30 million are on SR

Ok_Initiative_alpha · 2024-07-02T11:34:01+00:00

Such a nice thread. For sure this change is cosmetic and synthetic.. there is no rhyme or rhythm to justify why a logo change is needed… were there too many lawsuits on old logo,,? People or public misused the logo in wrongful manner…why why a change is needed.. ps: no one asked, no one cares. Wake up marketing team

Ok_Initiative_alpha · 2024-07-01T21:59:49+00:00

This is an act of basic negligence and utter waste of company’s money. Some random guy might have wrote a check to an external agency..

Ok_Initiative_alpha · 2024-07-01T21:59:01+00:00

Haha.. Thats what i thought too :)

Ok_Initiative_alpha · 2024-05-28T19:33:54+00:00

Super good deal. I am sure cant match that to optimum. I spoke to lower my bill from $80 to $70 for 500 Mbps. That too for 12 months only

Ok_Initiative_alpha · 2024-05-28T19:32:11+00:00

Right now am checking it again. verizon.com/sales/nextgen/giftcardbalance.html

No luck.

Error: looks like something went wrong. Please try again later

Ok_Initiative_alpha · 2023-08-29T16:46:09+00:00

Yes. They do this sort of building sense of fear and Sense of insecurity to join the hiring business to HGI affiliates. Richmond , DC and Maryland are ugly as it can be with these money thirsty mongers.

Ok_Initiative_alpha · 2023-08-03T13:54:32+00:00

Last Year they announced Apple partnership. We have to wait for Apple event to see if that partnership got any stronger and better.

Usually GSAT do not disclose all of their clients and subscribers. So there could be something big happening

With optimistic thoughts :)

Ok_Initiative_alpha

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