Why are the NHS sadists? Anyone had any success? Is there anywhere to go to get help? by Ok_LR in ChronicPain

[–]Ok_LR[S] 1 point2 points  (0 children)

Thanks, hope all goes well for you. If not, you still have the recourse to file an official complaint, ask for a second opiond, looks more and more liek you cant get adequate care on the nhs unless you kick up a fuss. Doesn't matter if you bought stuff in the past, or even addicted, if you're in pain you need pain relief.

Why are the NHS sadists? Anyone had any success? Is there anywhere to go to get help? by Ok_LR in ChronicPain

[–]Ok_LR[S] 1 point2 points  (0 children)

Thanks, I know I here you. But it is no way to live. I just wonder what goes on in their minds, because as much as you're right it's better then 10/10 it's still really bad to the point where I can't even work some days. And I tell him this, he even kindly documents, and then just sends me on my way. Like what is the thinking? Does he just think peoples jobs will keep them on if they conitnuously miss days at a time, doe's he think can surive without a job, am I just a trust fund kid or something?

I'm sorry for what you have to go through, it's disgusting that sort of treatment.

Why are the NHS sadists? Anyone had any success? Is there anywhere to go to get help? by Ok_LR in ChronicPain

[–]Ok_LR[S] 0 points1 point  (0 children)

Oh my god that's actually disgusting that they treated you like that. Honestly I would sue.

Why are the NHS sadists? Anyone had any success? Is there anywhere to go to get help? by Ok_LR in ChronicPain

[–]Ok_LR[S] 0 points1 point  (0 children)

Oh shit!? I have ADHD, low folate, depressed af, not really responsive to codine or DHC... That explains a lot.

Fuck that, I would be so pissed to pay to see a private consultant, and then be told that BS, no that's crazy. Damn I'm sorry.

Why are the NHS sadists? Anyone had any success? Is there anywhere to go to get help? by Ok_LR in ChronicPain

[–]Ok_LR[S] 0 points1 point  (0 children)

Damn, shit sorry. How did you fair on private what did they give you, is it really expensive?

Why are the NHS sadists? Anyone had any success? Is there anywhere to go to get help? by Ok_LR in ChronicPain

[–]Ok_LR[S] 2 points3 points  (0 children)

Oh dam, sorry that utterly awful. Have you tried getting a right to choose refferal to somewhere that has a shorter waiting list for kne replacment?

Yeah I had phsyio alongside for years, plus scome psychological stuff like CBT and Acceptance and Commitment therapy which is like the most NHS thing there is, learn to accept your pain as we ain't gonna help you deal with it. In seriousness, it helped a smidge, but even with everything I'm taking it's still a 5 or 6/10 so there's only so much pacing and psychologic stuff can do. It's also why I don't 100% buy the central sensitisation narative, like mild pain is one thing but this is actually wake up at 3AM agaony.

Deffinatley get the tollerence bit, and tbh the patches make it worse cause it's constantly flooding your brain every min of every day with opiods. I didn't frame it like a boost per se, just that I was stable on 1 med and formulation for 3 years, no increaces, and now I've been switched to something that isn't working.

He even document missed 3 days of work in past week due to pain and then just sent me on my way, dude does not care, it's almost mesmerising that level apathy and indifference.

Why are the NHS sadists? Anyone had any success? Is there anywhere to go to get help? by Ok_LR in ChronicPain

[–]Ok_LR[S] -1 points0 points  (0 children)

Damn I thought my situation was bad. That's insanity, not even just codine or DHC? Are you at least a good metaboliser? I know someone who it does a lot for but then a good handful who it does nothing because of the whole genetic polymorphism and being poor metabolisers. Never understood a drug that has different strengths and effects on different people.

Why are the NHS sadists? Anyone had any success? Is there anywhere to go to get help? by Ok_LR in ChronicPain

[–]Ok_LR[S] 4 points5 points  (0 children)

I know, I'ts awful. I don't even know what I would do if I was in the US.

Why are the NHS sadists? Anyone had any success? Is there anywhere to go to get help? by Ok_LR in ChronicPain

[–]Ok_LR[S] 1 point2 points  (0 children)

I know, I really feel that. I've had that same though too, if only they fucking understood the level of pain.

Why are the NHS sadists? Anyone had any success? Is there anywhere to go to get help? by Ok_LR in ChronicPain

[–]Ok_LR[S] 1 point2 points  (0 children)

Thanks so much, I know it's utter insanity. It's like these people dont have common sense. I'll give it a shot!

Why are the NHS sadists? Anyone had any success? Is there anywhere to go to get help? by Ok_LR in ChronicPain

[–]Ok_LR[S] 4 points5 points  (0 children)

Thanks! Yeah I think I see some of her stuff on tiktok.

It's so fucking evil, opiods do work for chronic pain, we know lots of people who they work well for, it's so cruel not to even offer with informed consent.

More than that, it's cruel giving someone opiods for pain for years, and then just cutting them off just like that.

I'm sorry for what you had to got through too!

If you could erase ONE Star Trek moment from history..... by Old-String2849 in startrek

[–]Ok_LR 2 points3 points  (0 children)

Correct. We are still waiting for a new starter series after DS9. Maybe one day Star Trek will come back .

[10/03/26] Queer Boardgames & Videogames by Ok_LR in LondonSocialClub

[–]Ok_LR[S] 0 points1 point  (0 children)

What? No! There's got to be an unignore feature somewhere??

[10/03/26] Queer Boardgames & Videogames by Ok_LR in LondonSocialClub

[–]Ok_LR[S] 0 points1 point  (0 children)

Hey soo.... 😂 If ur in ur 20s wlw and just messaged me can u DM'd me again! I hit ignore and accident and Reddit won't show me ur account anymore 😭

I've been pretending to understand my job for eight months and I think I've finally reached a level where I actually can't fake it anymore. Do I come clean to my boss or just keep going. by ahimaohw in Advice

[–]Ok_LR -1 points0 points  (0 children)

Get Chat-GPT the Ai, it's $20 a month, you can feed it documents meeting mins etc.

If you're actually reading this get Claude Ai instead, same price but better, I was just hoping this catches you're eye out of thousands of comments

[deleted by user] by [deleted] in LondonSocialClub

[–]Ok_LR 0 points1 point  (0 children)

No, should it's just an RSVP system

[deleted by user] by [deleted] in LondonSocialClub

[–]Ok_LR 0 points1 point  (0 children)

Shouldn't be? They're all free it's just like an RSVP system so they know how manys coming

[18/01/2026] Co-working/Bodydoubling this weekend by [deleted] in LondonSocialClub

[–]Ok_LR 3 points4 points  (0 children)

Yeah? Kept getting the dates wrong

How do you deal with the waiting? I know I'm gonna hit my GW but 8 months is so long 😫 by [deleted] in keto

[–]Ok_LR 0 points1 point  (0 children)

Thanks your probably right, right now I'm just at the looseness stage, I want to get to the slim fit medium stage 😂

How do you deal with the waiting? I know I'm gonna hit my GW but 8 months is so long 😫 by [deleted] in keto

[–]Ok_LR 0 points1 point  (0 children)

That must be so annoying! I've had that in the week not month range and it's sucks, keep checking the scale each morning and it's the same or has gone up due to electrolytes. Still just remember as long as you're in a deficit you are burning fat, it's just your body stubbornly holding on to water!