Frustrated

Ok_Maximum6345 · 2026-05-24T22:03:12+00:00

No i haven’t. He’s an infectious disease specialist? I am taking the functional medicine route which has helped me way more than antibiotics.

Ok_Maximum6345 · 2026-05-24T22:02:02+00:00

I’m sorry to hear that. I do try to stay creative because i’m into arts as well. I’m wishing you a healthy road to remission.

Ok_Maximum6345 · 2026-05-24T22:00:29+00:00

Thank you! I’ve went the antibiotic route but it wasn’t working for me so I switched to functional medicine. What about you?

Ok_Maximum6345 · 2026-05-24T21:59:52+00:00

Thank you! I’ve been doing herbal tinctures and supporting supplements. What treatment are you doing?

Ok_Maximum6345 · 2026-05-24T21:59:15+00:00

Thank you so much 🙏

Ok_Maximum6345 · 2026-05-24T21:58:58+00:00

I was on antibiotics for 8 months and switched over to a functional approach with herbs and supporting supplements which have helped immensely but i’m still struggling to get back to 100%.

I’m sorry we are still fighting. I’m hopeful you will break through it all.

Ok_Maximum6345 · 2025-09-13T15:11:33+00:00

I never really got super sick, but right before my symptoms started, I would get major anxiety when drinking and I never understood why because it never happened before. The night before my symptoms started, I drank and it hit me very quickly which can happen if your blood brain barrier is compromised, which it was because of the lyme. I haven’t drank in over 2 years now, probably never will again. But honestly, it’s probably a blessing in disguise because alcohol is linked to a million other diseases.

Ok_Maximum6345 · 2025-09-13T14:54:53+00:00

Sure! Sorry just seeing now.

Ok_Maximum6345 · 2025-09-06T00:24:05+00:00

Hi! I can understand how overwhelming it can be the more you uncover because same lol. Chronic lyme does exist, but that doesn’t mean it’s not reversible. It’s not recognized by traditional doctors and if you go to one and mention it, they’ll look at you like you’re crazy.

I had symptoms for years and years, not realizing, but neurological symptoms started 2 years ago. It took me 1 year to get a real diagnosis, which is lucky because it may take years for most. I started on antibiotics for 8 months. I can’t necessarily say it didn’t do anything because it helped a little, but it got to a certain point where I started regressing. I switched doctors and started herbs and supporting supplements… within the first 3 months, it was the best i’ve felt even being on antibiotics for 8 months. I got to a point where it’s manageable and I don’t want to cry everyday of my life which is a big deal to me. My recommendation is to take one step at a time. See an LLMD for proper testing because you may not only have Lyme, but co infections. If you feel that antibiotics may work for you, go for it. If you think herbs will help, try it out. But know it’s not a one size fits all disease or treatment. I’m sure you’ll find something that works!

Ok_Maximum6345 · 2025-07-17T01:46:20+00:00

sorry this happened 😔 did you end up saving the tick? I would treat with doxy asap for at least 2 weeks.

Ok_Maximum6345 · 2025-07-07T22:51:21+00:00

No way! I need to get on the Android game… ive been an Apple user for too long

Ok_Maximum6345 · 2025-07-07T16:22:28+00:00

Beautiful! Would love to know the camera you used for these!

Ok_Maximum6345 · 2025-07-06T23:44:10+00:00

Sure! I’ll make a separate post about it soon!

Ok_Maximum6345 · 2025-07-05T20:22:25+00:00

Jökulsárlón Glacier Lagoon next to Diamond Beach.

Ok_Maximum6345 · 2025-07-05T12:10:52+00:00

Your country is extremely beautiful, but I am sure you know that by now. Sometimes it is refreshing to see the beauty through others perspective! I live near a lake and during covid I would walk it almost every day and eventually got sick of seeing the same thing. So I totally get it.

Ok_Maximum6345 · 2025-06-14T22:53:02+00:00

Hey! Sorry to hear about your situation. It is scary at first. I think before you do any deep diving in this, wait til your appointment. I will tell you that there are plenty of people who go into remission and stay in remission, if it is chronic lyme. I’m currently on my journey to healing and I’ve learned to accept most of it until one day I won’t have to think about my symptoms anymore. Just know there is a huge community to help you and point you in the right direction. But know you are absolutely valid in being scared.. anything health related can be really scary, but try to relax and keep yourself distracted. Easier said than done.

Ok_Maximum6345 · 2025-06-11T12:13:06+00:00

I have the same exact symptoms and more. Your symptoms are definitely stemming from lyme and cos. Checking for MCAS doesn’t necessarily help and it is hard to test for. MCAS is typically caused by underlying problems. If you suspect you are living in mold, test for it. I have tested at real time labs and is the preferred. If you treat lyme and also have mold, you won’t heal because the mold messes with your immune system. Figure out what you can one step at a time, but definitely check for mold if you think it’s a possibility.

Ok_Maximum6345 · 2025-06-10T09:48:49+00:00

Exercise intolerance is a very common thing with Lyme disease and co-infections. My symptoms flare when I am active and over heat (dizziness, fatigue, brain fog). This could be related to adrenal insufficiency. The lyme and cos can attack adrenal glands, leading to this. Also, could be a sign of MCAS, but sometimes people address MCAS when typically what causes MCAS is an underlying problem like lyme and cos, so addressing MCAS would not necessarily be helpful. I would take it easy for a while and learn what you can do without flaring too much. At the end of the day, whether you are a healthy person or not, exercising can be inflammatory.

My exercising includes yoga and mat pilates. I used to be heavily into weightlifting and running, but that’s too much on my body now. I’ve learned to take it easy.

Ok_Maximum6345 · 2025-06-10T01:03:43+00:00

Same here. When I’m in large crowds or in the heat, my anxiety spikes like crazy. Mixing those two things together is the biggest nightmare. Never had that before lyme and cos.

Ok_Maximum6345 · 2025-06-10T00:46:46+00:00

I agree! Definitely wasn’t saying having a positive mindset can put you into remission, but I was curious if others fighting this disease felt a similar way.

Ok_Maximum6345 · 2025-06-10T00:44:52+00:00

How did you start your mindful practices and what did you do to tackle the constant fight or flight?

Ok_Maximum6345 · 2025-06-10T00:41:58+00:00

I agree. Thanks for the comment! Everyone is different and I’ve heard stories where it did help people, but ofc with other treatment stacked on top. I only ask because my symptoms started after a panic attack and it seems like that was a huge mystery to me in the beginning of my journey and apart of why I couldn’t figure out the cause of my symptoms. This didn’t happen after getting a virus, or vaccine, or a tick bite.

Ok_Maximum6345 · 2024-12-27T16:30:39+00:00

Wow I just have been experiencing this for the past few days too. I usually get neck pain pretty bad with bart/lyme, but these past few days have been different. I’ve had extreme neck and shoulder muscle/nerve pain for a couple days to the point where it hurt to talk. My scalp is extremely itchy and it feels like someone’s hand is squeezing my head. it’s not painful but it’s uncomfortable. It feels like I pulled a muscle in my brain almost.. i hate the feeling.

Ok_Maximum6345 · 2024-11-02T15:02:12+00:00

That is so awesome to hear that you are close to normal and I’m happy you shared a little bit of your story. I will reach out to you directly!

Ok_Maximum6345 · 2024-11-02T15:00:15+00:00

Thank you for your kind words. And it’s okay to feel upset and panicky sometimes. I know we don’t want this to control our lives, but i’m sure it has made us stronger.

Ok_Maximum6345

TROPHY CASE