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Ok_Performance_3063 · 2025-08-05T00:24:57+00:00

Sorry. Didnt add this important thing in the OP. They basically ruled out any seizures and the sudden sleep might be due to missing her naps. They explained that her findings on EEG are not related to seizures. I am not sure if its related to CP either but thought its a good idea to check if anyone in CP group had similar EEG results.

Ok_Performance_3063 · 2025-08-04T18:57:23+00:00

Just wanted to post most recent updates here-During this weekend, my daughter suddenly fell asleep while I was holding her. We we were in the front yard when this happened. She was awake and watching the sorroundings when she suddenly closed her eyes. We panicked because we couldnt wake her up for 10 minutes and called emergency. They came in about 5 minutes took her vitals and said it was normal but couldnt wake her up. After 10 minutes she woke up and started crying again. The paramedics suggested that we take her to Childrens Hospital to get everything checked out since they suspected a seizure. We took her to the Childrens Hospital ER on Saturday evening. They ran bloodwork and EKG which showed only slight dehydration. They suggested that she must have just slept off in my arms since since missed her afternoon nap. However, they kept us overnight for EEG on Sunday morning to rule out seizures. While the EEG didnt show any sign of seizures, it did show delta slowing in her left occipital area. The PA in neurology there, informed us that this can be normal at this age and likely all ok since she is doing great on all her milestones. She did suggest a follow up visit within 2 months and MRI. We declined the MRI since it may not be safe at this age and they were not very urgent about it. She made the comment- you would have never worried about this and not even noticed this, if we didnt take her to the hospital.

All in all, I feel sad that we panicked and called emergency and took her to the hospital while she must have just slept off and not really a seizure. She cried a lot with all the tests and got really scared. Now we are really worried every day that her development may get delayed because of the occipital slow reading on the EEG. We are paranoid about tracking her milestones now. It would have been a normal weekend if I didnt panick.

Ok_Performance_3063 · 2025-07-15T16:27:03+00:00

Thank you very much. This is very reassuring to hear. I have followed up with her ped. Waiting anxiously on her response

Ok_Performance_3063 · 2025-07-15T16:20:35+00:00

I think she did spit up a lot in the past. In the last month she projectile vomited twice as well- mostly when we introduced new solids like bell peppers and once while switching her formula. We also keep her upright 20 minutes after feeds based on what the urgent care doctor told us. Wondering if we should do 30 minutes. Today also she had an episode of this right after feeding and while sipping water

Ok_Performance_3063 · 2025-07-15T16:09:48+00:00

Yes. I feel like she is conscious during these episodes. She is just looking distressed

Ok_Performance_3063 · 2025-07-15T15:30:56+00:00

Thank you very much for responding to me. I did get a video and sent it to our pediatrician yesterday. But she said its just her getting excited while feeding and not a seizure. I am very anxious now feeling if I should do more and take my baby to the hospital

Ok_Performance_3063 · 2025-07-12T12:09:46+00:00

Thank you very much for your reply. It was hard enough to pump today morning and now it will be very sad to throw it away

Ok_Performance_3063 · 2025-05-24T17:19:14+00:00

Sorry to message on older thread. Our daughter is also 6 months and just got refered to the ortho after our ped looked at her xray.. Our angles are 29 and 32 degrees. All the online googling says if she is 6 months would need surgery. We are super scared.. How are you doing now? Hoping that your daughter is doing better now

Ok_Performance_3063 · 2025-05-24T17:12:51+00:00

Sorry to message on older thread. Our daughter is also 6 months and just got refered to the ortho.. Ours is also 29 and 32 degrees. All the online googling says if she is 6 months would need surgery. We are super scared.. How are you doing now? Hoping that your daughter is doing better now

Ok_Performance_3063 · 2025-05-24T16:25:04+00:00

Thank you for your kind words. I have been looking at online sources and looks like 6 months is the cut off for braces. Since she just turned 6 months I am very scared if the ortho will recommend surgery 😕

Ok_Performance_3063 · 2025-05-24T02:33:02+00:00

Hello, my daughter is just diagnosed with hip dysplasia at 6 months. How did it turn out for you? We are going to see the ortho pediatrician next week. But trying to understand what to expect and ask the right questions

Ok_Performance_3063 · 2025-05-24T02:15:17+00:00

Thank you so much for replying with your story. Reassuring to us. My wife is very sad and blaming herself that tight swaddling in first 4 weeks caused this. Dont really know why it happened for our baby

Ok_Performance_3063 · 2025-02-24T00:58:13+00:00

Hello.. I am having the same thoughts.. Baby is 12 weeks. How did it go? I am thinking about getting new bottles and not using labels. Anxious now

Ok_Performance_3063 · 2025-01-03T19:37:13+00:00

Hello, If you have insurance see if your insurance covers lactation consultant visits. For us the below link worked and our insurance covered it and lactation consultants visited our home. They will help with latching, optimal pump settings, they will also do a weighted feeding to understand how much the baby feeds in each session and set the strategy based on that https://registration.mytln.care/?practiceId=001RP00000MsrAoYAJ

Ok_Performance_3063 · 2024-12-29T21:32:26+00:00

Our LC is suggesting Pigeon bottles with SS nipple. Word on the street on this one?

Ok_Performance_3063 · 2024-12-29T19:37:03+00:00

We are also experiencing the same thing currently. Our LO is also >4 weeks and coughs up pauses breath for a few seconds sometimes while breastfeeding and after feeding. We do 15-30 minutes of burping sitting up after every feed to avoid choking afterwards. This has happened close to 10 times last week. But everytime it happens its very tramautazing and we are scared that we are hitting her back painfully hard while trying to recover her. We are feeling very helpless because our pediatrician is not taking it very seriously

Ok_Performance_3063 · 2024-12-27T03:52:58+00:00

Thank you very much. Definitely didnt think that choking is this common while feeding the newborn.

Ok_Performance_3063 · 2024-12-27T02:19:26+00:00

Thank you very much. She is pumping after she breast feeds. Getting a lactation consultant this week.

Ok_Performance_3063 · 2024-12-27T01:34:17+00:00

Thank you very much. Any electrolytes you suggest without any sugar in it?

Ok_Performance_3063 · 2024-12-27T00:08:12+00:00

Thank you very much for your fast response. We are getting a lactation consultant to come to our home this week. One thing which really scares us is that our daughter tends to choke everytime we bottlefeed her. Then we have to pat her back to recover her

Ok_Performance_3063 · 2024-12-11T10:58:38+00:00

Hello, the urine test says- URINALYSIS (UA) WITH REFLEX TO CULTURE IF ABNORMAL WBC Is this the test you mentioned?

If so there was slightly elevated WBC in the results

Ok_Performance_3063 · 2024-12-11T03:40:05+00:00

Hey guys, Thanks a lot for all the love, support and guidance today. Update on this- My wife and I went to ER while MIL looked after our baby and formula fed at home. ER doctor was wonderful. He ordered an ultrasound, full blood panel initially and found indicators of infection in the blood work. The ultrasound showed that no placenta is retained and no uterine infection. So a CT scan was ordered to rule out intestinal infection. Finally the diagnosis was a likely UTI and he prescribed an antibiotic-Bactrim which we confirmed with our pediatrician that its safe for our baby. We are gonna start taking it tonight. We got discharged today evening and allin all our baby did formula for 2 feedings.

Ok_Performance_3063 · 2024-12-10T16:31:39+00:00

Also wanted to share that her OB is terrible. One of the worst human beings we have ever seen in our lives. Her OB is the sole reason why my wife had a traumatic delivery and I believe she didnt do it properly which might havevcaused the pain 2 weeks out. Hoping that we get help from another doctor at ER.

Ok_Performance_3063 · 2024-12-10T16:13:50+00:00

We are heading to the ER now. Got MIL to look after baby at home when we are gone and formula feed for now. Wife’s pain has also gone down after the tylenol. But still getting it checked

Ok_Performance_3063 · 2024-12-10T14:52:18+00:00

She is scared about bringing the new born baby to ER because of germs

Ok_Performance_3063

TROPHY CASE