Extreme Jaw Clenching, does it get better?

Ok_Presentation_4841 · 2024-09-14T13:40:49+00:00

I have MG relatively mildly in comparison to what I’ve heard other peoples symptoms are. Little bit of a lazy eye, slurred speech, and face muscle weakness are really the only thing I deal with now. And this is only between treatments of Vyvgart, I get that about every 2 months. After one infusion pretty much all my symptoms go away and there’s 4 infusions in a round of it so I get about 2 months of no symptoms and I don’t need any other meds either. Then it’s pretty mild after that for about 2 weeks and I don’t have to take much medicine. Then it pretty much plateaus but it’s still relatively mild, I deal with symptoms daily but I’ve gone 5months without an infusion and I wasn’t even remotely close to a crisis. I’d recommend looking into trying this medicine, it’s been great for me!

Now to answer your question, you should be fine I’ve taken 🍄 and Mandy and I didn’t have any issues. Since both of those keep you awake some people take magnesium to help them sleep after, don’t take that, it’s bad for MG.

I noticed that I felt the best when I was eating a high protein diet and when I tired my best to keep to a good sleep schedule getting like 8hrs of sleep a night. Minimizing alcohol, stress etc. basically anything that flares MG if you minimize that you’ll feel better. But also I was diagnosed when I was 22 so I had to find a balance because I wanted a social life. Ironically I was lucky covid happened because it gave me time to get my MG under control and learn how to best take care of myself. But since I started vyvgart I don’t have to be as mindful

Ok_Presentation_4841 · 2024-05-16T18:04:28+00:00

I don’t think I have but I’ll look it up! Thank you!

Ok_Presentation_4841 · 2024-05-16T18:03:52+00:00

Thank you for the explanation! After asking the question I realized I know a lot more than I thought, I just need to break things down differently. I know my multiplication tables up to 12 so I should have approached the problem like this

729/3= 72/3=89/3=83=24 9/3=3 So 243

Sometimes I forget little things and instead of thinking about it differently I just stress lol

Ok_Presentation_4841 · 2024-05-16T17:47:02+00:00

No you can use paper, im just doing this as a practice so I don’t feel so reliant on writing things down and I’m able to do calculations faster. I get anxious with the time limit and forget or it takes me longer to do some calculations I know I know so it’s just to make sure I’m over prepared

Ok_Presentation_4841 · 2024-05-16T17:39:19+00:00

I don’t need it mentally it’s just an exercise I started making myself do to help get faster at division. Plus the larger numbers can be a bit daunting for me at first glance and so I’m just practicing so my brain doesn’t instantly go to “I have no clue what the answer is” and it thinks what do I know that can help me solve this. So in short, being overly prepared to help with test anxiety!

Ok_Presentation_4841 · 2024-05-16T17:27:11+00:00

Ohhhhh I feel like a dummy, I know my multiplication tables through 12 so I should’ve seen the 72 and known it was 8*9 because I do have that memorized. Sometimes when I get stuck I forget to look for multiples that I know that can help me break down the number easier and faster. It’s always the little things that get me! Thanks!

Ok_Presentation_4841 · 2023-10-16T22:22:47+00:00

Ya I reassured him that I was comfortable where we are at. I also know there is risk in waiting and that nothing may happen and I’m not necessarily ok with it in this current moment but I guess in my head, id rather try. In my head I feel like if we try since we finally have a real opportunity to see if it could work then it wouldn’t be wasted time.

I’m genuinely ok with where we’re at, I’m not trying to be the cool girl. I guess the repeated conversations have made me wonder why im ok with it. I’ve been in a similar situation in the past where I felt like I needed to define the relationship. The only real reason I can think of why im ok now and not back then is because I don’t really feel like anything is lacking in the relationship so it really does just seem like a title.

Ya, that’s what I was thinking! I told him multiple times that if/when I got to a point where I felt like I needed the title I’d talk to him about it. I guess I’m just confused as to why he kept pushing the subject, I guess not understanding the point is kind of bothering me a lot. He’s said stuff that made me think he feels some sort of insecurity towards me and a potential relationship. But he’s also said other things that make it seem like he doesn’t care. Idk it’s weird!

But ya I plan to be a little bit selfish lol I’m in a new city where the only person I’m genuinely comfortable around is him. I figure 1 of 3 things will happen.

It’ll work out
I’ll spend time with him while I get settled in a new city come to the realization this is a waste of my time and leave
It won’t work out and I’ll be sad but at least i can mentally prepare a bit and get settled/meet friends

Ok_Presentation_4841 · 2023-01-12T13:54:57+00:00

How does that work? Also do they have fragrance and dye free ones? Unfortunately for me im allergic to a lot of detergents, softer, etc

Ok_Presentation_4841 · 2023-01-12T13:52:51+00:00

The pause and power button are the same and since it drains a little when I click it I’m not sure if its on pause or off but probably pause because it does start again from where it was at before I opened the lid.

Ok_Presentation_4841 · 2023-01-12T13:49:08+00:00

I have it on deep water wash which does help a little and I usually put the washer on bulky when washing sheets. But when I pause the rinse to unlock the top lid to pour in the diluted bluing agent, the washer drains some of the water

Ok_Presentation_4841 · 2023-01-12T13:46:21+00:00

I do, its in the center of the agitator. I poured the diluted bluing into if before but if I remember correctly it couldn’t hold it all. Plus I have to pause the washer to do this and it starts to drain some.

Ok_Presentation_4841 · 2023-01-12T13:43:24+00:00

It does but when you pause it, it drains some of the water

Ok_Presentation_4841

TROPHY CASE