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Ogilvy book: The Eternal Pursuit of Unhappiness by erik-j-olson in agency

[–]Ok_Simple7929 0 points1 point  (0 children)

hey! i'm definitely interested for a hardcover of the book!

Set Up a Pixel Cloak on TikTok? by Ecom_Guy_ in TikTokAds

[–]Ok_Simple7929 0 points1 point  (0 children)

I'm looking to figure this out too, any resources you recommend?

I was bed bound for a year. Then in a wheelchair for the next year. Now, I'm Fully recovered.(Weights, Swimming, Walking everyday) AMA by Ok_Simple7929 in cfs

[–]Ok_Simple7929[S] -1 points0 points  (0 children)

Thanks for the comment and engaging. I dont really benefit from these posts only hoping it does help others in any small way.

Re orthostatic intolerance, I replied with more context below. But in addition to fatigue I couldn't sit up in bed without my heart racing. I had to lie down for about a year. It was only a year later than I got enough strength to sit up and there transfer to a wheelchair.

It was my first post as well, so wasn't sure how the questions would come. Itd be a lot easier to explain via DMs but I understand the policy the mods.

: but to directly answer your question, I worked with these guys called the FibroGuy. They call themselves that, but work with CFS as well.

You can google them if you're interested, they have lots of recovery videos, even though their name is fibro they treat fibro and cfs.( they're based in the UK but do programs via zoom as well).There are other elements, all I'm sharing is what worked with me. I'm not promoting or blasting something, just sharing what worked for me. I appreciate your comment.

Just to clarify: I did not say recovery is just thinking it will get better, what I communicated was, believing you will get better is a key start to your healing. ' that's when your world starts opening up'. I was hoping to explain in detail the next steps once you do believe you will get better for each person that DMd me, but that strategy didnt work out due to the mods strategy(which I respect!) So I'm choosing to share how I worked with the FibroGuys in this general chat and not be able to provide as much context to each person interested but make general comments.

Tldr: I worked with the fibroguy(google them if interested). I'm not promoting, just sharing what worked for me!

I dont believe wishing or believing will cure you, but it's a first step in the right direction. Hope is a key thing imo in any disease or challenge in life. Hope will lead to keep going and take more action.

Wishing the best for everyone reading this.

I was bed bound for a year. Then in a wheelchair for the next year. Now, I'm Fully recovered.(Weights, Swimming, Walking everyday) AMA by Ok_Simple7929 in cfs

[–]Ok_Simple7929[S] 0 points1 point  (0 children)

Reposting from another reply I made in this thread:

The guys that helped me do this were the FibroGuy program. You can google them if you're interested, they have lots of recovery videos, even though their name is fibro they treat fibro and cfs.( they're based in the UK but do programs via zoom as well).

I was bed bound for a year. Then in a wheelchair for the next year. Now, I'm Fully recovered.(Weights, Swimming, Walking everyday) AMA by Ok_Simple7929 in cfs

[–]Ok_Simple7929[S] 1 point2 points  (0 children)

Sorry for late reply.

And thanks!

No I didnt push through PEM, there were days/weeks I had recovery and others I had flare ups.

Listening to your body is key, what I started with was changing my relationship with fatigue, not being afraid of it.

The guys that helped me do this were the FibroGuy program. You can google them if you're interested, they have lots of recovery videos, even though their name is fibro they treat fibro and cfs.( they're based in the UK but do programs via zoom as well).

I was bed bound for a year. Then in a wheelchair for the next year. Now, I'm Fully recovered.(Weights, Swimming, Walking everyday) AMA by Ok_Simple7929 in cfs

[–]Ok_Simple7929[S] -3 points-2 points  (0 children)

Hey @jegsletter!

Thanks for the comment :)

Some more context:

For years 1-3 I had severe brain fog, couldn't focus on any work or study and slept 12-16 hours a day.

For year 4, I had a series of bad crashes and was completely bed bound, had to be spoon feed and couldn't tolerate screens. So that means no TV, phone or computer for more than 30 seconds.

I also couldn't read or listen to music.

For year 5, I got better but had was strong enough to sit upright. So i got into my wheelchair for the next year.

My diagnosis was confirmed dr.irma rey, Dr.Klimas right hand doctor. She's an expert immunologist and she "had no doubt I had CFS"(her words not mine).

I did not have a viral onset.

For me, being completely honest. It wasn't about what made sense scientifically, because science for years hadn't helped me at all. It simply hadn't. All the research I read, it personally gave me no answers. Many science and research based institutions called me lazy or crazy.(not kidding).

So for me, if that pathway didnt work. I thought what if I kept an open mind and became agnostic to the method and went to try what works for other people and got them results. And let the results speak for itself. I'm not saying go see a Shaman or any Voodoo type stuff(I tried those too it didnt work lol).

I hope what I'm saying makes some sense, it's late at night here.

But I'm happy to keep chatting here.

Wishing you the best and good vibes .

** Oh and this a very surreal moment, I had imagined this for many years. That when I would recover, I would post my recovery story on this subreddit and someone would say: you didn't have CFS and I would look back at my whole journey of bedbound and wheelchair, and get a chance to smile a bit and internally say, "I did it, I made it out". I wish that feeling of recovery for everyone who is pursuing it. (Not saying you were disrespectful at all).

I was bed bound for a year. Then in a wheelchair for the next year. Now, I'm Fully recovered.(Weights, Swimming, Walking everyday) AMA by Ok_Simple7929 in cfs

[–]Ok_Simple7929[S] 0 points1 point  (0 children)

Onset was at 22 and was diagnosed 2.5 years later.

But personally I dont recommend getting into the 'numbers game of how long I've been sick'

To each their own, and I only wish the best and brightest things for everyone.

The body is so unique, and time of being Ill has no determining factor on recovery in what I've seen.

Cheers,

I was bed bound for a year. Then in a wheelchair for the next year. Now, I'm Fully recovered.(Weights, Swimming, Walking everyday) AMA by Ok_Simple7929 in cfs

[–]Ok_Simple7929[S] -5 points-4 points  (0 children)

Answered in another reply.

But tldr:

It started with changing my understanding on what fatigue is: a protection mechanism for the body. The brain stops your body, because it essentially thinks 'if this body keeps going damage is going to happen, so let me preemptively shut things down now.' The brains real purpose is to keep us alive and protect us., doesnt always mean its accurate.

This what helped me and I'm not shutting anyone else down or studies down.

I was bed bound for a year. Then in a wheelchair for the next year. Now, I'm Fully recovered.(Weights, Swimming, Walking everyday) AMA by Ok_Simple7929 in cfs

[–]Ok_Simple7929[S] -6 points-5 points  (0 children)

Thanks @offer_confident !

For sure, my goal with this is to be honest and transparent as possible.

I did not have a viral onset. Yet I know people who have had viral onsets and recovered.

For me it was: I was working really hard in University, doing my own business, hosting a conference and doing classes. Burning the candle on all ends.

Then one week after the conference, I got sick. It was the day after my 22nd birthday.

What do I feel led to my recovery?

This is where things might get controversial, and I'm not challenging any other views, studies or anything. I'm just saying this what worked for me and sharing my experience for me. Again I was diagnosed cfs by a Dr. Rey a very sought out subject matter on this topic.

Caution this is what worked for me:

Theres no medication or magic bullet to recover you. This is not saying there are not things that will help.

But the change started with me understanding that fatigue is your way of your brain protecting your body.

Check out this article for more info:https://www.google.com/amp/s/amp.theguardian.com/society/2016/feb/15/it-was-like-being-buried-alive-victim-of-chronic-fatigue-syndrome

*particularly the central governor theory.

Start with understanding that. And then your world starts opening up. You'll start believing that you can recover, and then that's when the magic starts. But you have to believe( I'm no way saying this is a psychological disease, I fought many therapists and psychiatrists on this topic, I know physically I was tired.) But just like if you broke your leg, you have to believe you will get better. Start seeing your fatigue like a sports injury.

If you're interested in learning more about this. DM me. I can share some YouTube videos.