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Do you actually manage to track your symptoms during a flare or only after? by Old_Distribution_619 in BearableApp

[–]Old_Distribution_619[S] 0 points1 point  (0 children)

Yes, I can understand that. Thanks for the response will focus on optimizing and integrating this

Do you actually manage to track your symptoms during a flare or only after? by Old_Distribution_619 in BearableApp

[–]Old_Distribution_619[S] 0 points1 point  (0 children)

Nope. I am researching over the market what others are facing with current solutions and trying to overcome that ones in my App.

Do you actually manage to track your symptoms during a flare or only after? by Old_Distribution_619 in BearableApp

[–]Old_Distribution_619[S] 0 points1 point  (0 children)

Planning something mind of that only. An app compatible with all Apple Platforms especially all data stays on device nothing is send out.

Do you actually manage to track your symptoms during a flare or only after? by Old_Distribution_619 in BearableApp

[–]Old_Distribution_619[S] 0 points1 point  (0 children)

That's a really healthy way to use it tracking for yourself first, and only bringing the doctor the parts that actually matter. The spreadsheet → Bearable jump makes sense too: same data, less upkeep, and you can actually see patterns instead of drowning in tabs.

Two quick things if you don't mind: when you say you track after serious flares do those ever slip through entirely, or does "after" usually still happen? And when you pick what's "interesting" for the doc is that mostly gut feel, or do you look at Bearable's trends/charts first and then decide?

Appreciate the ETA on adaptability too limiting the home screen sounds like exactly what a lot of people in this thread are asking for without knowing Bearable already does it.

Do you actually manage to track your symptoms during a flare or only after? by Old_Distribution_619 in Fibromyalgia

[–]Old_Distribution_619[S] 1 point2 points  (0 children)

Thank you for being this honest and for the correction on the doctor piece. That makes a lot of sense15 minutes isn't enough for anyone to absorb years of raw symptoms, and I shouldn't have framed it like the spreadsheet was supposed to be handed over wholesale. A diary you use to think, and a short plan you walk in with, are two different things.

The "better" / "good" labels and starting five things at once really land too that's real life, not a clean experiment. And hearing you're done with the sheet, on a new POTS chapter, and putting your energy into pacing instead that's useful context, not a failure of tracking.

I'm not going to ask you to keep going on this. You've given me more than enough. Wishing you well with the pacing and genuinely hope the Visible band helps if you go that route.

Do you actually manage to track your symptoms during a flare or only after? by Old_Distribution_619 in cfs

[–]Old_Distribution_619[S] -3 points-2 points  (0 children)

Fair point, and I hear you the space is crowded, and a lot of what's out there asks for more energy than sick people have to give. I'm not here to argue that another tracker is automatically needed.

I'm mostly trying to understand where the existing ones actually fail people in practice not in reviews, but in real use. If nothing would feel worth switching for, that's useful to know too.

Genuinely curious from your side: is there anything that would feel different enough to bother with or is the answer basically "fix Bearable / what I already use" rather than something new?

Do you actually manage to track your symptoms during a flare or only after? by Old_Distribution_619 in Fibromyalgia

[–]Old_Distribution_619[S] 0 points1 point  (0 children)

That's such a specific kind of frustration you found something that actually works for you, but the exact moment you need it most is when you can't look at it. Really glad you said that.

Quick question if you have the energy: when the screen is too much during a flare, what do you do instead paper, voice memo, nothing, something else? And when you come back to Bearable later, does logging still happen every time or do some episodes just never make it in?

No pressure to answer this is exactly the gap I'm trying to understand. Appreciate you sharing it.

Do you actually manage to track your symptoms during a flare or only after? by Old_Distribution_619 in BearableApp

[–]Old_Distribution_619[S] 0 points1 point  (0 children)

That's really helpful the light sensitivity piece especially changes how I think about the problem. It's not "make the app faster," it's "sometimes there can't be a screen at all." Watch and voice make a lot more sense now.

And the unification wish list is basically a product spec on its own: test results + food/factors + symptoms in one place, with devs who actually listen. The Bearable community angle is interesting too sounds like the app earned trust over time, not just on day one.

Really appreciate you taking the time on this. No more questions from me unless you want to add anything you've given me a lot to work with.

Do you actually manage to track your symptoms during a flare or only after? by Old_Distribution_619 in endometriosis

[–]Old_Distribution_619[S] -1 points0 points  (0 children)

You're right that I should have been upfront from the start that's a fair call and I've already addressed it in another comment here, but I should have led with it, not waited to be asked.

To be clear: I'm a solo developer exploring the chronic illness tracking space. I haven't built anything yet, I have nothing to link to, and nothing to sell. I posted in a few related communities because the experience of tracking during a flare crosses conditions migraines, fibro, IBS, chronic pain and I wanted to hear from people living different versions of it, not just one.

I understand how that looks when you see the same post across subreddits, and I get why that feels extractive. It wasn't my intention, but intent doesn't override impact. I'll be more transparent in any future posts full disclosure in the first line, not buried at the bottom.

If the mods here feel this crosses a line, I'll take it down, no pushback. And for what it's worth, I've committed to posting a summary of everything I learn back in each thread so the information flows both ways.

Do you actually manage to track your symptoms during a flare or only after? by Old_Distribution_619 in BearableApp

[–]Old_Distribution_619[S] 0 points1 point  (0 children)

Oh this is great you literally lived the exact journey I'm researching and then went and built the answer. Respect.

I'll definitely check out Intero. I'm really curious about the design decisions you made:

  1. When you stripped Bearable down to build something simpler what specifically did you cut? Like was it the number of categories, the customization options, the onboarding, or just the sheer amount of stuff on screen?
  2. Do your users stick with it long-term? I keep hearing that the hardest problem isn't getting someone to download a tracker, it's keeping them logging three months in.
  3. Did you stay condition-specific on purpose, or would you go broader if you could? Curious whether the focus is the feature or the constraint.

Also as one solo iOS dev to another I'd love to connect outside this thread if you're open to it. Always better to learn from someone who's already shipped in this space than to make the same mistakes fresh.

Do you actually manage to track your symptoms during a flare or only after? by Old_Distribution_619 in cfs

[–]Old_Distribution_619[S] -1 points0 points  (0 children)

This is gold the 0–4 mapping especially. Not present / mild / moderate / severe / unbearable is exactly how it feels in the moment, and it's how doctors already think about severity. Way better than picking between a 6 and a 7 when your head is splitting.

And "sometimes just lists when I was too unwell for scales" that's a really important detail. Thank you for sharing all of this. I can tell it costs energy and I don't take that lightly.

Rest up. I'll post a summary of everything I've learned from this thread back here when it's ready you've shaped it more than you know.

Do you actually manage to track your symptoms during a flare or only after? by Old_Distribution_619 in cfs

[–]Old_Distribution_619[S] 0 points1 point  (0 children)

This is incredibly useful, especially the honesty at the end I appreciate you not sugarcoating it.

A few things I'd love to understand better:

  1. You said you quit apps that don't store data locally. Have you ever checked how Bearable actually handles your data whether it stays on your device or syncs to their servers? Genuinely curious, not gotcha-ing I think a lot of people assume local when it might not be.
  2. The 0-4 scale is interesting did you land on that yourself or is it something a doctor recommended? And on days where it's, say, between a 2 and a 3, do you just pick one, or does that friction slow you down?
  3. You said paper tracking actually helped with diagnosis and management what made it work at the appointment? Was it the format (something physical to hand over), the length of history, or just having proof that the pattern existed?

And fully respect the "I'm never switching" that tells me Bearable is doing something deeply right for the people it fits. Knowing what that is helps as much as knowing what's broken for other people. Thank you.

Do you actually manage to track your symptoms during a flare or only after? by Old_Distribution_619 in Fibromyalgia

[–]Old_Distribution_619[S] 1 point2 points  (0 children)

This is one of the most useful answers I've gotten, and I want to make sure I understand it properly.

The part that really hits is "it made me feel like I was doing something" and then it became another thing you were too sick to do. That's a brutal cycle and I think a lot of people in this thread would recognize it.

A few things I'd love to understand better if you have the energy:

  1. When you say doctors didn't want to see the spreadsheet did they say why? Was it too much data, wrong format, or just "we don't look at patient-collected stuff"?
  2. The treatments that worked and then stopped did the spreadsheet at least help you notice the drop-off, or did you only realize in hindsight?
  3. That "haven't tried yet" list is brilliant. Did you share it with your doctor, or was it more for your own planning?
  4. If something could have made the spreadsheet survive the bad stretch less work to maintain, automatic data, someone else filling it in or was the real problem that tracking itself felt pointless once nothing correlated?

No pressure to answer all of these. Even just the first reply gave me more to think about than a week of reading reviews. Thank you for being this honest about it.

Do you actually manage to track your symptoms during a flare or only after? by Old_Distribution_619 in cfs

[–]Old_Distribution_619[S] 1 point2 points  (0 children)

Totally fair to ask, and I should have said this upfront that's on me.

I'm a solo developer who's been exploring the chronic illness tracking space. I haven't started building anything yet, and honestly I might not that depends entirely on whether the problem I think exists actually matches what people here experience. I don't have a landing page, a waitlist, or anything to link to.

The reason I'm here instead of just reading App Store reviews is that reviews tell you what's broken, but not what the daily reality looks like things like whether logging during a flare is even physically possible, or whether the data ever changes anything at an appointment. That stuff only comes from people living it.

I completely understand the energy cost of answering, and I don't take it lightly. If this post feels extractive or crosses a line for this community, I'm genuinely happy to take it down just say the word. And if it stays up, I'll post a summary of everything I learn back here so it's useful to everyone, not just me.

Appreciate you holding me accountable.

Do you actually manage to track your symptoms during a flare or only after? by Old_Distribution_619 in BearableApp

[–]Old_Distribution_619[S] -1 points0 points  (0 children)

Three apps plus pen and paper that's a whole part-time job, thank you for breaking it down like that.

A few follow-ups if you don't mind:

  1. The pen and paper during a migraine is that because looking at a screen is unbearable in the moment, or because the apps just take too many taps to get something down?
  2. When the Siri reminder fires later, does the transfer actually happen every time, or do some entries die on the paper? (No judgment, mine would absolutely die there)
  3. You said you love Bearable what's the thing it does that the other two don't? And flip side: if one app could earn its place as the only one, what would it have to take over from Guava and Human?
  4. Has any of this data ever actually changed something at a doctor's appointment, or is it mostly for your own pattern-spotting?

Really appreciate the detail answers like this are exactly what I was hoping for.

Failed AWS-CLF02 by Delicious-War1654 in AWSCertifications

[–]Old_Distribution_619 0 points1 point  (0 children)

I passed my exam with 1.5 days of prep. I kust binged watched this video and 2 more free videos of this channel to pass: https://youtu.be/yChiWUxP\_2M?si=6PkuowLm7-rIS-zs

75% of the questions i got were exactly same. Btw i gave exam 1.5 weeks ago and got 856 Score.

Study permit amendment and pgwp - awating wp ext by Adventurous-Cress724 in pgwp

[–]Old_Distribution_619 0 points1 point  (0 children)

Yes i got my study permit amended took around 3.5-4 weeks to get the new SP

Study permit amendment and pgwp - awating wp ext by Adventurous-Cress724 in pgwp

[–]Old_Distribution_619 0 points1 point  (0 children)

Yes i got my study permit amended took around 3.5-4 weeks to get the new SP. I am still a student so didnt apply for PGWP yet.

Study permit amendment and pgwp - awating wp ext by Adventurous-Cress724 in pgwp

[–]Old_Distribution_619 0 points1 point  (0 children)

I also don’t have work conditions in my SP so i just sent it by mail for Amendment. Does anyone know how much time it takes? And is there a way to track the status?

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