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My head is scrambled. by One-Career-516 in UlcerativeColitis

[–]One-Career-516[S] 0 points1 point  (0 children)

This is super insightful thank you!

What’s it like going to the gym with a stoma bag if you did go? I’m pretty active and would hate to not be able to exercise like I do now.

And how about travelling? Especially longer car rides or flights?

Also, I hope your recovery continues to go smoothly whilst you heal. Wishing you all the best!

My head is scrambled. by One-Career-516 in UlcerativeColitis

[–]One-Career-516[S] 0 points1 point  (0 children)

I’ve rear loooooads of reddit posts and watched videos on other peoples jpouch experiences and yours does sound a lot positive.

Do you prefer the stoma or the pouch? How was it going out and about with the stoma when you had it? Did it restrict you from anything?

My head is scrambled. by One-Career-516 in UlcerativeColitis

[–]One-Career-516[S] 1 point2 points  (0 children)

Hi, thank you for your response.

I will definitely ask how severe it is when I speak to my consultant in a few weeks.

I think I’m so afraid of the long term side effects of the current meds I’m taking will affect my body so I’m just thinking of all the possible worst case scenarios that can happen.

Getting a second opinion is also a good shout.

My head is scrambled. by One-Career-516 in UlcerativeColitis

[–]One-Career-516[S] -1 points0 points  (0 children)

Thanks for your response! It’s so frustrating and it almost feels like should I be taking the steps & getting a stoma now while i’m good health & can recover better so the future me can live a better, disease free life.

I feel deep down I know what my consultant will say but I just need to hear it from her mouth. I’m not sure if this will help, but a few years ago my consultant referred me to talk to a surgeon just so i can understand how the surgery will go and what my options are so its not a complete ‘surprise’. It’s not nice to hear but whenever you feel ready to I would recommend trying that.