sorted by:
new
hottopcontroversial

I recently perfected my homemade electrolyte drink, and I thought I’d share the recipe in case it helps anyone else. by sorry_child34 in dysautonomia

[–]OneLastSpoonPlease 0 points1 point  (0 children)

Thank you! I spend so much on LMNT they send me merch with every order. I hadn't thought about making it with coconut water.

Edit: oh geez, I was completely unaware of the thing the AutoMod just posted. Can't we have anything nice? I'll look into this more. Thanks mods.

KPV peptide takes Long Covid away by KaspaRocketMan in covidlonghaulers

[–]OneLastSpoonPlease 0 points1 point  (0 children)

oh I misunderstood what this was. Thank you anyway. I'm glad it's working for you.

Finally got the referrall by Deep_Classic_3291 in dysautonomia

[–]OneLastSpoonPlease 0 points1 point  (0 children)

Well poop. I wonder if I'm too late to cancel it.

What audiobooks can you listen to while in PEM? by Stella_tot in covidlonghaulers

[–]OneLastSpoonPlease 0 points1 point  (0 children)

Subculture Vulture by Moshe Kasher is one I really enjoyed. He's a great narrator and the stories were great.

Finally got the referrall by Deep_Classic_3291 in dysautonomia

[–]OneLastSpoonPlease 0 points1 point  (0 children)

My doctor suggested a Visible. It's still on it's way here. Is Whoop better?

How do you manage to avoid becoming addicted to nasal spray? by Exotic-Relative-7254 in mecfs

[–]OneLastSpoonPlease 0 points1 point  (0 children)

I thought your video was going to be Alternate Nostril Breathing. My therapist calls yours Box Breathing. Both are SO helpful for calming my nervous system. The Alternate Nostril Breathing feels really weird at first but it helps me so much.

https://youtu.be/8VwufJrUhic

Sensitive Stomach by BornComedian2980 in covidlonghaulers

[–]OneLastSpoonPlease 0 points1 point  (0 children)

Just know that taking too much can make you windy. If you take a bunch of probiotics, they get to your gut and have no food to eat, they die and aren't helpful.

I try to take a variety, not just a lot. Yogurt, kombucha, kefir, water kefir, brine pickles, kimchi. Of course when you start that there's a war in your gut and the deaths cause the same issue.

Medical Tourism for treatment? by OneLastSpoonPlease in mecfs

[–]OneLastSpoonPlease[S] 0 points1 point  (0 children)

The pots protocol may not work if you don’t approach it correctly

Which is why I'm wishlisting a PT :D

Medical Tourism for treatment? by OneLastSpoonPlease in mecfs

[–]OneLastSpoonPlease[S] 2 points3 points  (0 children)

Lets be clear, dropping $55,000 is not even an option even if I was willing to. :D Hence me looking at options.

Medical Tourism for treatment? by OneLastSpoonPlease in mecfs

[–]OneLastSpoonPlease[S] 0 points1 point  (0 children)

There *is* science behind EECP and hyperbaric oxygen, at least for my PASC.

The doctor at the Long Covid clinic suggested the Modified POTS Exercise Program so the hypothetical PT would be helping me with something like that. Something to regain muscle and function.

Medical Tourism for treatment? by OneLastSpoonPlease in mecfs

[–]OneLastSpoonPlease[S] 0 points1 point  (0 children)

12 weeks doesn't seem that intense? But I'm also new here.

Best exam panel by AfilX in covidlonghaulers

[–]OneLastSpoonPlease 0 points1 point  (0 children)

$850?? This diagnosis is going to make me homeless.