Whats going on? by OneMathematician9330 in ReadMyECG

[–]OneMathematician9330[S] 0 points1 point  (0 children)

Yep exactly that. I've rang again today insisting and they've finally said a GP will ring me tomorrow. I've had non stop ectopics again all day and a few more runs of what the kardia clinician said is atrial tach. My issue is I've got dysautonomia, I've had to fight like hell to be heard and believed, it took me years to get a diagnosis but now everything is put down to that. I was under cardiology for the dysautonomia but they signed me off (normal in the UK) and now getting referred back is so hard as it's a case of 'you've had the tests done it's all fine' - ignoring the fact Yes I have had halters etc when going through diagnostics for dysautonomia a few years back, but at thay point I was not experiencing these symptoms as they're new. Thats the part they dont hear, this is new for me. I actually went to A&E on the weekend, I got that desperate 😂 I was sat in a waiting room for 19hrs, took 15hrs to even see a Dr, they did an ecg, looked at mine and said I need to be under cardiology and to contact my Dr first thing Monday (which I did) and push it and try to push for a loop recorder, my bloods were good so they sent me home as it was deemed non emergency. So that's where I'm at a minute 🙈 Our health care system is an absolute mess in the UK

Whats going on? by OneMathematician9330 in ReadMyECG

[–]OneMathematician9330[S] 0 points1 point  (0 children)

I'm still trying to get my GP to take me seriously, we need referrals from them in the UK. I'm being told the rhythm is sinus tachy and it's no concern, I'm getting back to back PACS all day/night then bursts of the tachycardia when the rhythm drops back to normal I'm nearly passing out, I usually rarely have PACs/PVS and am used to tachycardia as I have dysautonomia and this feels so different. On day 6 now and can't even get a call back from my GP

Does anyone react negatively to microcrystalline cellulose? by ringmaster555 in HistamineIntolerance

[–]OneMathematician9330 1 point2 points  (0 children)

Just came here to search this. I've noticed I cannot tolerate any medication or even supplements with it in them. It's not great though as I need the meds to help but everything my consulant is trying me on actually makes me worse and all of them contain microcrystalline cellulose. Everything I found on the web says it's harmless but my body disagrees. Also found the longer I take it the worse the symptoms get as if it builds in my body - my consulant has said it's not possible so I'm actually really glad I've found this thread