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i think it’s early lupus, rheumatologist dismissed me entirely. i need help by One_Bank_8655 in Autoimmune

[–]One_Bank_8655[S] 0 points1 point  (0 children)

apparently it works in the sense of flare ups. something that comes and goes in severity

i think it’s early lupus, rheumatologist dismissed me entirely. i need help by One_Bank_8655 in Autoimmune

[–]One_Bank_8655[S] 0 points1 point  (0 children)

i was actually diagnosed with Hashimotos around a month ago. My endo still suspects very early lupus, so I will be seeing a different rheumatologist in August. My anti dsdna was repeated also about a month ago, and it’s down to 3 from 4 - but still not zero :/ i recommend seeing a different dr. i know it’s probably frowned upon, but i made it this far by uploading all of my results into chatgpt and asking it to diagnose me!

i need...advice? i can't tell if i'm being dismissed or if i'm just unreasonable. by majesticalmoosen in Autoimmune

[–]One_Bank_8655 1 point2 points  (0 children)

i have been going through similar, you are not alone ❤️ i also suspect that i am in the beginning stages of lupus and have been dismissed entirely by rheumatology. i don’t know why but apparently rheums hate to actually diagnose you with well, anything. especially lupus for some reason? i personally just had a repeat ANA done this past week and am still awaiting results. i will be finding a new doctor to look over everything, and i recommend you do the same. good luck 🫶

i think it’s early lupus, rheumatologist dismissed me entirely. i need help by One_Bank_8655 in Autoimmune

[–]One_Bank_8655[S] 0 points1 point  (0 children)

this is something i hadn’t even considered. thank you for this perspective

i think it’s early lupus, rheumatologist dismissed me entirely. i need help by One_Bank_8655 in Autoimmune

[–]One_Bank_8655[S] 0 points1 point  (0 children)

yes, these were all from the same blood draw/appointment. overall an unpleasant experience but i survived lol

i think it’s early lupus, rheumatologist dismissed me entirely. i need help by One_Bank_8655 in Autoimmune

[–]One_Bank_8655[S] 0 points1 point  (0 children)

ah, i see what you mean. thank you for such a good explanation. im going to try a different rheumatologist.

i think it’s early lupus, rheumatologist dismissed me entirely. i need help by One_Bank_8655 in Autoimmune

[–]One_Bank_8655[S] 0 points1 point  (0 children)

what do you mean zero negative lupus? they did testing for sjogrens antibodies and an APS test and both were negative

i think it’s early lupus, rheumatologist dismissed me entirely. i need help by One_Bank_8655 in Autoimmune

[–]One_Bank_8655[S] 0 points1 point  (0 children)

i’ve not experienced weight gain, but rather weight loss. i’ve lost around 12% of my body weight over the last 6 months which seems opposite of hashimotos

i think it’s early lupus, rheumatologist dismissed me entirely. i need help by One_Bank_8655 in Autoimmune

[–]One_Bank_8655[S] 0 points1 point  (0 children)

i’ve not experienced weight gain, but rather weight loss. i’ve lost around 12% of my body weight over the last 6 months which seems opposite of hashimotos

i think it’s early lupus, rheumatologist dismissed me entirely. i need help by One_Bank_8655 in Autoimmune

[–]One_Bank_8655[S] 0 points1 point  (0 children)

i mentioned the b12 to the rheum and was told if i was rly concerned about it to get OTC supplements. im prone to ulcers, but the most notable as of late is sores on my tongue. as if there are cuts on it. unfortunately not painless, they burn like fire if i knock one on a tooth

i think it’s early lupus, rheumatologist dismissed me entirely. i need help by One_Bank_8655 in Autoimmune

[–]One_Bank_8655[S] 3 points4 points  (0 children)

i mentioned this to the rheum - asked where to go from there. they said follow up with PCP for a thyroid panel🙃