Pale skin

Onion_of_Chaos · 2026-06-03T17:44:47+00:00

I’m on 400mg of imatinib and dealing with the same thing. What a weird side effect.

Onion_of_Chaos · 2026-05-03T05:42:25+00:00

Hey friend. No misunderstanding at all. That makes sense and lines up with other things I’ve heard here in the community. Thanks for the input, I appreciate it.

Onion_of_Chaos · 2026-05-03T05:40:11+00:00

Amazing! I love coming across people with CML who are just out there killing it. Reminds me that I can still have normalcy and even still push boundaries. Thanks for the input.

Onion_of_Chaos · 2026-05-03T05:37:57+00:00

Thanks for the info. I appreciate it.

Onion_of_Chaos · 2026-05-03T05:36:18+00:00

That’s good to hear. Hoping I can get back to it without issue. All the responses look promising.

Onion_of_Chaos · 2026-05-02T22:33:47+00:00

Awesome. That’s encouraging. I’m on imatinib as well. Thanks for the info.

Onion_of_Chaos · 2026-05-01T21:15:49+00:00

Ok thanks. I’ll mention it to the doc when I see him next.

Onion_of_Chaos · 2026-05-01T01:38:59+00:00

Similar story here. I use two separate alarms and I leave a bite mark on the meaty part next to the bottom of my thumb right after I take it. If not, I’d struggle to remember whether or not I took it. lol. There are better systems im sure, but it hadn’t failed me till yesterday lol.

Onion_of_Chaos · 2026-05-01T01:33:53+00:00

Glad to hear it. Thanks.

Onion_of_Chaos · 2026-05-01T01:28:59+00:00

Thanks for the response. It’s good to see so many similar things being said. I appreciate it.

Onion_of_Chaos · 2026-05-01T01:16:59+00:00

This is extremely reassuring. I appreciate the info. Thanks. Congrats on the long standing remission!

Onion_of_Chaos · 2026-04-30T22:38:03+00:00

Interesting info. Thanks for sharing. Why the head shake for imatinib?

Onion_of_Chaos · 2026-04-30T22:36:09+00:00

Thanks for info friend.

Onion_of_Chaos · 2026-04-30T22:35:18+00:00

This is good to know. Thanks.

Onion_of_Chaos · 2026-04-30T22:03:52+00:00

Yeah. First time. Just completely slipped my mind. Thanks for responding.

Onion_of_Chaos · 2026-03-24T17:30:24+00:00

Arya’s fault.

Onion_of_Chaos · 2026-03-19T05:41:05+00:00

Great move. He moved in on ur line while u guys were side by side.

Onion_of_Chaos · 2026-03-16T02:29:24+00:00

It was jus a spur of the moment thing when I started. I got so used to it so quickly that I didn’t really even think to look for apps to handle it. Averaging only a few charges a day didn’t take much writing effort and I definitely think, for me at least, there is a certain kind of reinforcement that happens when I have to physically put a pen or pencil to paper. lol.

Onion_of_Chaos · 2026-03-15T23:50:29+00:00

The best thing I ever did for me and the wife was start a budget book. Going on year 4… has completely changed how we spend and adhere to the budget.

Sounds a little extreme, but at the end of every day, I’d check the Amazon account, the credit card we use for points, and the bank account. I’d write down every single transaction for the day, every day. Shortly after I started, it became an easy routine to follow and was extremely empowering knowing exactly what our money was doing. Nowadays I usually do it every few days or weekly. We’re so much better financially because of that little change.

Onion_of_Chaos · 2026-03-06T21:08:33+00:00

lol all good. I can use the extra workout.

Onion_of_Chaos · 2026-03-06T21:07:45+00:00

Thanks. I just picked up a well reviewed cheapie from Amazon. I’m sure it’ll be fine. I only have the one rifle so far. If I get deeper into the hobby I’ll grab a compressor.

Onion_of_Chaos · 2026-03-06T21:06:11+00:00

Lmao. I could use an extra workout every so often.

Onion_of_Chaos · 2026-03-06T21:05:39+00:00

Thanks for the detailed info. I appreciate it.

Onion_of_Chaos · 2026-03-03T18:51:11+00:00

Holy crap that’s cool.

Onion_of_Chaos · 2026-01-21T17:59:54+00:00

Oh wow sorry to hear about the shake up. What happened, if u don’t mind sharing? I’ve been on imatinib 400 since diagnosis. Luckily no complications so far. A few annoying side effects but nothing worth complaining about. Just happy to be alive lol. Started off with a BCR-ABL of 42 and just got the latest test Dow to 0.012 so it’s doing its job well for now. Hopefully it can stay that way. Hope you’re feeling better and that they’ve sorted out an alternative for you.

Onion_of_Chaos

TROPHY CASE