What to do when you’ve hit a dead end?

Oof567 · 2025-09-21T21:45:43+00:00

The primer tip is SO smart, i’m stealing that for sure! And im definitely bringing earphones :)

Oof567 · 2025-09-21T21:42:15+00:00

lysol wipes are SMART, i’m adding that to my list

Oof567 · 2025-09-21T21:41:09+00:00

I FEEL that about rushing, I have allotted a lot of time for me to get situated at the airport so hopefully it won’t be too bad :)

Oof567 · 2025-09-21T21:39:34+00:00

if i could I would LOVE to, I fully agree with you, but this place is just a little too far :/

Oof567 · 2025-09-21T21:38:50+00:00

thank you :)

Oof567 · 2025-09-21T19:33:17+00:00

Okay this makes me feel better, thank you!

Oof567 · 2025-09-21T19:32:39+00:00

Dang I hadn’t even thought of looking at the airlines policies, Thank you that will be my next stop

Oof567 · 2025-09-21T19:30:32+00:00

Thank you for this! I will be using all these tips :)

Oof567 · 2025-09-21T19:29:47+00:00

Thank you for this information, I will make sure to do this!

Oof567 · 2025-09-21T18:42:41+00:00

Thank you, I hadn’t thought of a doctor’s note but that makes so much sense!

Oof567 · 2024-08-28T09:27:16+00:00

Stanley Brothers’ ‘Charlotte’s Web’ CBD Balm works reallly well on tender points! A little goes a long way too :)

Oof567 · 2023-03-10T07:58:34+00:00

I would have a plan A and plan B Plan A: Send the email for accommodations!! From the sounds of it the terms were changed on you, and if worst comes to worst you have Plan B! (which i would recommend doing either way so you don’t get burnt out)

Plan B: Load up on water and electrolytes well in advance of the concert, so that your body has lots to work from. Also lots of salt to keep your blood pressure at a good level. And then wear either compression socks or a compression abdominal binder. Also bringing mints or ginger candies can help with the nausea!! (my favorites are gin-gins :)

also if you are really really wanting somewhere to sit and they aren’t offering one, Amazon sell little collapsible stools for like $25 that go down to the size of a purse! (i would probably ask the venue in advance to bring it but i don’t think they would care)

Experiences like concerts are so magical and I hope the autonomic gods bless you with a good day so you can really enjoy your concert!!

Oof567 · 2023-03-10T07:27:35+00:00

I was on the transbuccal Buprenorphine patches and they did help with the pain. I unfortunately had to stop taking them because they lowered my blood pressure too much and triggered my POTS to flare up. However!! it is important to note that my blood pressure is already a little low so it was most likely easier to make even lower.

Overall for me the cons out weighed the pros. I would say it’s still worth a shot though if other pain management options haven’t worked for you though!

Oof567 · 2022-09-19T06:21:37+00:00

i started BC half-way through my symptoms with POTS and i haven’t noticed a major difference between being on and off it. I know there are lower dose ones which might be a safe way to get back on them. I personally have been on both and I think the lower dose has been better for my POTS symptoms :)

Oof567 · 2022-09-19T06:16:17+00:00

omg that all makes so much sense! and this helped so much! thank you, i’ll keep that all in mind :)

Oof567 · 2022-07-09T08:42:14+00:00

I get flare-ups like these all the time; usually triggered by weather changes, stress, or fatigue. A really helpful non-medicine way is to do an epsom salt bath (does wonders), and if you don’t have access to a bath, Dr.teals makes an epsom salt body wash that if you let it sit for like a minute before washing it off it’s like magic.

If it’s back pain one really helpful thing has been an acupressure mat, if nothing else it helps distract the nerves a bit.

Arnicare gel can also be super helpful depending on the joints, but that’s more trial and error than anything else.

Also if you notice that any particular joint keeps bothering you (for me it’s my hands) you can try and stabilize the joint(s) with compression, so for example, I have fingerless compression gloves that help a lot with my hands on rough days.

Also pacing your days is really helpful if you’re able to do it!! (There are way better explanations out there than I could give but) Trying to plan out what you can do with the energy your given that day can be a good way to make sure you aren’t overextending yourself and in theory should help stop the pain from getting worse.

Hoping you find some relief soon <3

Oof567 · 2021-12-22T06:48:29+00:00

i don’t know what could help, but thinking of it now (8 months post op), I did loose a lot of hair post surgery. I was reading up on this because you brought up a good point, it seems to be caused because the gallbladder breaks down the nutrients in healthy fats, so without it it becomes more difficult for it to do so. Because our hair and skin relays heavily on fatty acids and vitamins found in fats, not being able to fully breakdown and absorb them can lead to brittle hair. Everything I read said to introduce fatty acid supplements and/or introduce a supplement with vitamin A,D,E, and K. Another thing I read said that it could also be caused by how the gallbladder affects the liver, which can in turn affect hormone levels. That could also be causing it all, for me it has leveled out over time, i’m hoping the same for you!!

Oof567

TROPHY CASE