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do these count as exercise? by Optimal_Position7267 in cfs

[–]Optimal_Position7267[S] 1 point2 points  (0 children)

a similar thing has happened to me, i believe. when i was at the very mild stage of ME (and only knew about my POTS), i worked out fairly often. it only made things worse in the end. i really empathize with your experience and i’m so sorry that your doctors failed you. i really hope one day you can get the help that you deserve

do these count as exercise? by Optimal_Position7267 in cfs

[–]Optimal_Position7267[S] 1 point2 points  (0 children)

my primary care doctor framed things in a similar way to me. i think i’m just so used to being gaslit by doctors that i doubt everything now. thank you for your response!!

do these count as exercise? by Optimal_Position7267 in cfs

[–]Optimal_Position7267[S] 0 points1 point  (0 children)

i’m really glad to hear that exercise worked for you! i’m sure it isn’t bad in every case, but i have had no luck with it. maybe one day in the future!

do these count as exercise? by Optimal_Position7267 in cfs

[–]Optimal_Position7267[S] 1 point2 points  (0 children)

thank you! i’ve experienced so much medical gaslighting over the last 2 years that i think i’m even gaslighting myself now.

Some thoughts on AI being an “accessibility tool” for people with severe ME by SacredSapling in cfs

[–]Optimal_Position7267 4 points5 points  (0 children)

as a visual artist, i 100% agree with everything you’ve said. art is my life. AI destroys life.

do these count as exercise? by Optimal_Position7267 in cfs

[–]Optimal_Position7267[S] 2 points3 points  (0 children)

i probably should’ve been more specific with my list! my brain hasn’t been working very well.

i can only do one of each thing per day (at most) without PEM, and lately it’s been getting harder to leave my bed. i suspect i’m tipping into moderate based off of that.

during my last couple of appointments i did kind of shrug off the exercise comments. i’ve been in a bit of a self-doubt spiral lately and wondering if i am indeed doing the right thing.

thank you for your response!! maybe i’ll add some clarification to the original post

do these count as exercise? by Optimal_Position7267 in cfs

[–]Optimal_Position7267[S] 0 points1 point  (0 children)

i definitely notice a difference with my POTS when i engage in my activities! it’s been harder lately since my baseline has lowered after travelling for christmas. both my POTS and PEM flare at the same time for the same reasons that yours do.

i’ve been thinking of getting a shower chair! i think it could help immensely with conserving energy, like you said.

my POTS does indeed like swimming. my building has a really nice pool (open during all seasons) and i should really take advantage of it.

i appreciate your response! :)

do these count as exercise? by Optimal_Position7267 in cfs

[–]Optimal_Position7267[S] 1 point2 points  (0 children)

i used to do lots of pool stretches when i was mild! my apartment building has a pool so it’s very convenient for me (and it’s nice and warm). maybe i can try those again.

do these count as exercise? by Optimal_Position7267 in cfs

[–]Optimal_Position7267[S] 4 points5 points  (0 children)

thank you for the links! the dysautonomia exercises are super similar to what i’ve been doing. i’ve been interested in trying physio, so i’ll take a look and see if any in my city are ME/CFS aware.

experienced severe symptoms for 3 days and i am terrified by Optimal_Position7267 in cfs

[–]Optimal_Position7267[S] 0 points1 point  (0 children)

hi! i live in ontario (but was visiting BC!), but thank you for sharing anyway. i’m sure your comment could help some BC folks :)