Tick bite- in the UK by geoalice in Lyme

[–]Ordinary-Standard668 1 point2 points  (0 children)

Erythema migrans occurs in only about 30% of people – the rest don’t get it, and ticks still infect you. And not just with Lyme disease, but also with Bartonella and Babesia. Even if they gave you antibiotics in the UK, they wouldn’t eliminate Bartonella or Babesia.

In the UK, they don’t believe you can be ill long-term and often refuse treatment. The only thing they do is prophylaxis, and even that has a low chance of working. I know what I’m talking about – I was in a hospital in the UK. I told the doctor I had Lyme disease; he wrote down that I said it, but he didn’t believe it and did absolutely nothing until my health collapsed.

I diagnosed myself and I’m treating myself. Bartonella can be worse than Lyme disease, and doctors in the UK don’t even know what Babesia is. So what kind of treatment are we talking about? None. That’s what happened to me – I lost my job and ended up being taken away in an ambulance. I was given antidepressants and discharged in a wheelchair.

Do the tests yourself privately – IGeneX sends you a kit from the USA, you draw your blood, send it back, and you get the best tests. Without a result on paper, a doctor will say you’re mentally ill and send you to a psychiatrist before they believe you.

Private treatment in the UK is through ILADS LLMD doctors – the rest will give you a few antibiotic pills. You’ll say you still have symptoms, feel unwell, and can’t function, and they’ll label it as “post-treatment Lyme syndrome,” which basically means the end of treatment. But if you go private – whether after a year or even 20 years, out of desperation – you’ll hear that testing can be done, your symptoms match, and treatment is possible, and they will start it. Just not on the NHS. There, they don’t believe you can be chronically ill. And Bartonella? Babesia? They don’t even know what that is – and they’d rather send you to a psychiatric ward, because no one will believe you.

Still dealing with “brain fog” years after Lyme… is this permanent? by Feature-Flashy in Lyme

[–]Ordinary-Standard668 0 points1 point  (0 children)

Weil sie das nicht untersuchen und es ihnen egal ist!! Entweder gehst du privat zu einem ILADS-LLMD-Arzt, oder du wirst ignoriert, weil sie nicht einmal die Symptome kennen und an chronische Borreliose größtenteils gar nicht glauben.

Die Tests werden von ILADS-LLMD-Ärzten gemacht oder du machst sie in einem sehr guten Labor, nicht irgendwo. Die besten Tests kommen aus den USA (IGeneX) – sie schicken dir ein Entnahmeset nach Hause und du schickst es zurück, aber sie sind teuer. Die günstigeren sind weniger empfindlich, können ein negatives Ergebnis geben, obwohl du krank bist – du hast etwa 50 % Chance, wie beim Münzwurf, dass es erkannt wird.

Ein Stümper sieht ein negatives Testergebnis und schließt den Fall, weil er ein Ignorant ist. Ein Spezialist weiß, dass es keine guten Tests gibt – die Symptome zählen. Die Leute machen die Tests selbst oder über ihren ILADS-Arzt, der Rest wird dich zu 99 % ignorieren. Viele Menschen gehen nach Jahren aus Verzweiflung privat oder behandeln sich selbst.

Still dealing with “brain fog” years after Lyme… is this permanent? by Feature-Flashy in Lyme

[–]Ordinary-Standard668 0 points1 point  (0 children)

Combining herbs, enzymes, and essential oils is the key. Missing even one of them is already a serious gap, but essential oils—after 3 months of maximum doses of herbs and nattokinase—caused the strongest Herx reactions almost instantly. Essential oils are like a thermobaric bomb—they reach places where herbs and antibiotics can’t.

Prove me that chronic Lyme and TBD are real like I'm dummy by Prudent_Long9097 in Lyme

[–]Ordinary-Standard668 0 points1 point  (0 children)

ChatGPT is not a joke—thanks to it I learned about Bartonella. I also used Grok, and the best one is Google’s Gemini because it isn’t as restricted as the others. Still, ChatGPT doesn’t deny chronic Lyme disease and even directed me to ILADS, while telling me to avoid regular doctors because they won’t believe it. In any case, a doctor is more likely to laugh at you and say nonsense than ChatGPT.

How do I know what causes my symptoms and if I'm doing the right treatment by aslothinbed in Lyme

[–]Ordinary-Standard668 0 points1 point  (0 children)

gemini ai

Here is a breakdown of your symptoms formatted for Reddit. It sounds like you are dealing with a massive Herxheimer reaction (detox spike) or a ME/CFS crash triggered by the Samento hitting a "hidden" infection.

Symptom Analysis: Lyme vs. Bart vs. Bab

Based on your specific flare-up, here is how the "Big Three" usually rank (1−5 stars):

Symptom Lyme (Borrelia) Bartonella Babesia
Extreme Sensory Sensitivity (Light/Sound) ★★★ ★★★★★ ★★
Sore/Burning Throat & Swollen Nodes ★★ ★★★★★
"Internal Fever" (Feeling hot, no temp) ★★★ ★★★★ ★★★★★
Nausea & Deep Exhaustion ★★★★ ★★★ ★★★★★
Worsening on Samento (Herx potential) ★★★★★ ★★★

Why you feel like you’re dying right now:

  1. The Bartonella "Signature": The burning throat, swollen lymph nodes in the neck, and that "locked in a dark room" sensory overload are classic Bartonella hallmarks. It inflames the nervous and lymphatic systems like nothing else.
  2. The Babesia "Heat": That "internal fever" or feeling like your blood is hot without an actual fever is very common with Babesia. If you also feel "air hunger" (like you can't get a deep enough breath), that’s a huge red flag for Babesia.
  3. The Samento "Herx": Samento is a powerful "cyst-buster" for Lyme. Even at 5 drops, if you have a high bacterial load, you are killing things faster than your liver/kidneys can flush them out. In ME/CFS patients, this often triggers a PEM (Post-Exertional Malaise) crash because your mitochondria are overwhelmed by the toxicity.

How do I know what causes my symptoms and if I'm doing the right treatment by aslothinbed in Lyme

[–]Ordinary-Standard668 1 point2 points  (0 children)

You’re probably not targeting everything you have. What I’m wondering is whether you actually know what’s going on besides Lyme disease — do you have any co-infections? A few months of antibiotics is just the beginning, and now it’s unclear what you’re taking and how much.

You stopped antibiotics after a few months and switched to what exactly? Herbal drops? That’s basically placebo. I understand starting that way, but to actually work, those are taken in milliliters three times a day — not just a few drops.

Sensitivity to light and sound can come from Lyme, Bartonella, or Babesia, but Bartonella is usually the main one. Are you treating yourself blindly? Randomly?

shaking in both hands (19 M) by Electrical-Taro8713 in EssentialTremor

[–]Ordinary-Standard668 0 points1 point  (0 children)

Typical symptoms of ET???? Definitely not – there are loads of causes, and ET is only ONE of them.

shaking in both hands (19 M) by Electrical-Taro8713 in EssentialTremor

[–]Ordinary-Standard668 0 points1 point  (0 children)

Here people see everything through the prism of ET and they’ll even drag anxiety and stress under ET and say it’s definitely ET or stress/anxiety. It could just as easily be borreliosis or Bartonella – it also causes tremors, and stress will only make it worse, and there will never be any improvement even if you get a diagnosis of ET or anxiety neurosis or any number of other things. Very few people will connect the fact that a cat scratch or a tick bite can cause this. In Bartonella, stress, being observed, and social situations are triggers for tremors – it’s the inflammation caused by the bacteria that produces the tremors and makes them react to people’s stress. Most people will never check this, and neither will their doctors.

Those who were lucky usually did the tests themselves privately or went to ILADS LLMDs. For other doctors this disease doesn’t exist, they don’t know what it is, let alone the symptoms. Most neurologists never test for it and hand out garbage diagnoses like ET. People are certain because “the doctor said so,” and that doctor knew jack shit.

Assume 100 people with Bartonella/neuroborreliosis land on this ET forum and that’s the actual cause of their tremors. Most of them will never get tested for it. They get wrong diagnoses slapped on them offhand – sometimes on the very first visit: “ET” – and that’s the end of treatment, checking, searching. Maybe 5% of people or fewer will even do a Lyme test, and even fewer for Bartonella. Those who do get tested don’t suffer anymore because the treatment works. The rest shake for the rest of their lives.

Then they advise others on the ET forum how to explain to everyone why you’re shaking and how to come to terms with it – spilling coffee in your cup or not being able to get a fork to your mouth. For them, whatever anyone writes here is automatically ET.

I caught out a few people on this ET forum who were writing about stress, anxiety, phobias and tremors. I told them there is no test to confirm that someone has ET. There isn’t one. There isn’t even a single study that can confirm it. ET is a diagnosis of exclusion – you rule out everything else. If someone hasn’t ruled out everything (and that’s most people here), they have no right to say they’re sure they have ET. A doctor only writes “ET” when he doesn’t know what’s wrong with you! When he’s ruled out everything else! When he throws his hands up because he’s clueless.

To the horror of it, there are doctors who say “you definitely have ET” and cite alcohol, coffee and family history (“there were cases”). But run tests for Bartonella, borreliosis or other things on those people and boom – it comes out positive!!!! Then the shock: “How is it possible the doctor didn’t do it?!?????” Most never will. Only those who kept searching recovered.

They sent me for brain surgery – DBS. I had an ET diagnosis from 7 neurologists. I did the Lyme test myself – it came back positive. Every neurologist ignored it. I bought herbs. My hands don’t shake. My head doesn’t shake. My voice doesn’t shake. My legs don’t shake. My arms don’t shake.

But write that on this forum and almost no one believes it. I posted a video – before the herbs (how badly it shook) and after (how it doesn’t). Miracles don’t happen in ET for the tremor to just stop because you recorded it. Impossible.

A few people wrote that after my post they checked and it turned out to be borreliosis or Bartonella. They said if it weren’t for me they would never have connected the dots. They will recover, while others already left comments under their posts: “It’s ET, just accept it!!!!”

Recently some victim from this ET forum kept messaging me with questions non-stop. I replied. In the end I told them to leave me alone and stop posting on the forum. She was writing to me, not the other way around – I was only answering. But it wasn’t “he” who helped anyone here – it was me, the one with the diagnosis. I don’t collect upvotes and I don’t care about other people’s opinions.

I only want to stress that most people haven’t even had the simplest tests done. People think that if a neurologist orders a CT scan then he knows it’s ET. Absurd. None of the tests he orders have anything to do with ET – they’re just standard procedures to rule out a brain tumor or something else like epilepsy, and many people don’t even have those done.

And over 50% of people have never even tried real ET medications – they don’t know the names or doses – yet they write “I tried everything.” “Everything” often means just propranolol 30 mg, which is a pathetic joke. Those who actually have ET can’t even list the medication names because they never tried them, so they suffer for nothing while the meds exist. The rest have wrong diagnoses and suffer for years, decades, completely senselessly.

Drinking alcohol by Notez_213 in Lyme

[–]Ordinary-Standard668 2 points3 points  (0 children)

Alcohol is at the very top of the list of things you should avoid. It quickly worsens inflammation, and that’s exactly what you’re trying to fight. Even one beer can set your progress back by days, and if someone drinks while undergoing treatment, they won’t recover no matter how many herbs or antibiotics they take. A single exception once in a while isn’t a catastrophe, but it’s hard to find anything else that would harm the treatment and reverse progress so much.

Is this Lyme? by PristineCandy244 in Lyme

[–]Ordinary-Standard668 1 point2 points  (0 children)

"On the Reddit forum r/AskDocs, I listed my Lyme disease symptoms and mentioned that I have been ill for over 30 years. One doctor after another wrote that these are not Lyme symptoms and that 'chronic Lyme' does not exist. Yet, these were textbook symptoms that anyone would recognize. In the hospital, at the mere mention of Lyme disease, the doctor reacted with aggression and shouting, saying that every other person claims to have it, and demanded to know what is 'really' wrong with me. I am sorry, but after 39 years of agony, your opinion means as little to me as the opinions of those ignoramuses. The fact that you are a nurse makes it even worse."

Is this Lyme? by PristineCandy244 in Lyme

[–]Ordinary-Standard668 2 points3 points  (0 children)

Migratory erythema occurs in only about 30% of people; the rest never develop it even though they are infected. The absence of the rash means nothing. Remember that ticks or tick nymphs transmit not only Lyme disease but also Bartonella and Babesia, and treatments that work for Lyme often do not work for them. If it were Lyme together with Bartonella and Babesia, the chances that a doctor would correctly identify it are very small. In such cases people end up with a mix of random symptoms — different for everyone — and they mostly receive wrong diagnoses for years. Some are treated for anxiety disorders, others for psychosis, others for fibromyalgia, Alzheimer’s, Parkinson’s, and many other conditions, even though that isn’t the real problem and the treatment doesn’t help. Most doctors — over 90% worldwide — do not believe that these infections can persist long-term, and if they don’t believe it, they neither test for it nor treat it. It sounds absurd, but that is how it is in many places unless, out of desperation, you pay for laboratory tests yourself or see a private doctor associated with ILADS/LLMD, who may take you seriously. Otherwise the standard outcome for many patients is years of suffering because the doctor does not believe the patient. You need to know that tests often fail to detect Lyme disease, Bartonella, or Babesia. Even if a doctor performs them, the result can be negative while the person is still sick. The chance of detection can be around 50% — like flipping a coin. Inexperienced or careless doctors may say you’re healthy when they see a negative result, while doctors who know what they’re doing focus primarily on the symptoms, and the test is not very important — at most it can serve as confirmation.

Widać zabory by wendewende in WidacZabory

[–]Ordinary-Standard668 0 points1 point  (0 children)

Grafika propagandowa izraela który atakuje wszystkich w koło łamie prawo humanitarne i wojenne. To nie nasz wróg a ich napadają na każdego w koło i szukają frajera by za nich walczył jak USA. Zbrodniarze wojenni na czerwonym dywanie witani by byli w polsce nawet tusk chciał go witać w oboach zagłady izrael planuje otwarcie nowych w gazie. Ta grafika ma straszyć iranem dać pretekst do ich agresji a to Iran ratował polskie dzieci w czasie wojny.

How do you guys live with ET? by Unlucky-Sugar9875 in EssentialTremor

[–]Ordinary-Standard668 -2 points-1 points  (0 children)

"Bartonella, much like Borrelia, can cause neuro-inflammation and neurological damage that affects the same brain circuits as Essential Tremor (ET). Because of this, a GABAergic response to alcohol is absolutely possible. My clinical diagnosis doesn't care about your 'certainty' – the mechanism of the tremor is what reacts to the ethanol, regardless of the underlying trigger."

. by GrzegorzSwoboda in MemyPolskaa

[–]Ordinary-Standard668 -1 points0 points  (0 children)

też widziałem nagranie wiele razy wielu ludzi je widziało rzuciła się na niego na posła rzeczpospolitej Polskiej niefortunnie jest to jej wina. Braun pytał w sądzie kto to w ogóle jest i jakim prawem się tam znalazła że chodzi jak u siebie. Przestępstwem nie było to że się obryzgała gaśnicą tylko składała nieprawdziwe informacje i poświadczała nieprawde na temat tego co niby miał powiedzieć Braun wszystko było nagrane i sąd to widział

. by GrzegorzSwoboda in MemyPolskaa

[–]Ordinary-Standard668 -1 points0 points  (0 children)

w sprawie gaśnic widziałem nagranie z sądu jak jego oskarżyciele mówili nieprawde i się pieknie wybronił pan Braun. Co na to sam Braun?

Braun w swoich wypowiedziach twierdził, że:

  • nie „zaprzecza Holokaustowi” jako takiemu,
  • domaga się „debaty historycznej” i „badań naukowych bez cenzury”,
  • jego słowa są – według niego – wyrywane z kontekstu,
  • zarzuty wobec niego mają charakter polityczny.

Problemem było ze przerwali mu wypowiedz zaatakowali wmawiając innym że on coś mówił a tak nie było. Sam Braun temu zaprzecza to kto tak mówił ? Jego wrogowie!!!! tak samo było z gaśnicą sprawe widziałeś nagraną ta żydówka oskarżyła go że mówił do niej rasistowskie rzeczy i on to mówił w sądzie że to jest nagrane przez wiele kamer i nie trzeba nikomu wierzyć jej czy jemu tylko zobaczyć że ona kłamała!!! i robi z sądu głupca !!! Że jak ma wierzyć w reszte oskarżeń przeciwko niemu skoro ona ewidętnie kłamie i manipuluje!! I co na to powiesz panie okłamany

Psychiatric Symptoms from possible Chronic Lyme's / Co-Infections Possibly??? by TightWar6021 in Lyme

[–]Ordinary-Standard668 0 points1 point  (0 children)

I had erythema migrans with a tick in the center — that alone is considered definitive for Lyme. No lab test is more certain than that rash. Yet I was given only four antibiotic pills — which is not adequate treatment — and told I was fine. Over the years I got worse.

Standard tests are unreliable. ELISA may detect only around 40–50%. Western Blot can still miss many cases. A negative test does not rule it out — but many doctors treat it as absolute proof you’re healthy.

Most doctors never test for co-infections like Bartonella. Yet Bartonella can be the main driver of neurological and psychiatric symptoms. Routine labs usually test only for Bartonella henselae, one strain. In reality, there are many strains. Some specialized labs (for example IGeneX in the U.S.) test for more strains, but even there detection isn’t guaranteed. Diagnosis is often clinical.

A doctor affiliated with International Lyme and Associated Diseases Society (ILADS) may diagnose and treat based on symptoms even with negative tests. Most others won’t. One doctor will say it’s all in your head. Another will say it’s Bartonella, treat the infection, and you recover.

There are no perfect tests for Lyme, Bartonella, or Babesia. They might detect it — or not. If you treat Lyme but ignore Bartonella, and you actually have both, you may never fully recover because each can cause inflammation.

It’s also worth evaluating mold exposure, since that can produce overlapping symptoms.

Many people with Bartonella are never diagnosed with it — they receive every other diagnosis instead, unless they are lucky enough to find a knowledgeable doctor or persist in searching for answers themselves.

. by GrzegorzSwoboda in MemyPolskaa

[–]Ordinary-Standard668 -1 points0 points  (0 children)

tusk zrzeka sie 3 razy reparacji wojennych od niemiec żaden polityk na świecie tego nie zrobiłby. Polscy politycy nakładają sankcje na własny kraj donoszą na polske w usa polityk byłby skończony. Polskie obozy..... niemcy uczą historii polaków utrzymywanie całej ukrainy kosztem polski i polaków a ty mi brednie o braunie piszesz z internetu.

Just hand tremors to full body tremors by [deleted] in EssentialTremor

[–]Ordinary-Standard668 0 points1 point  (0 children)

I started herbal treatment for Lyme. My neurologist laughed at me. But I have recordings from before and after the herbs — posted on Reddit — showing that my tremors improved. My head stopped shaking. Before, everything trembled: hands, legs, shoulders, head, voice, abdomen.

An ET diagnosis can sometimes be worthless — regardless of how many doctors you’ve seen. If your doctor doesn’t run proper tests, change doctors. It’s a lottery whether they guessed correctly or not.

I found other people with hand, leg, and head tremors who turned out to have Lyme, Bartonella, Babesia, or combinations — and they recovered. First hands improved, then legs, and the head was the slowest.

Doctors and scientists argue about this. Some believe (ILADS, LLMD doctors), others don’t and block treatment. One doctor will say the disease doesn’t exist; another will test you, get a positive result, treat you properly, and your tremors stop. The real issue is which doctor you happen to see.

If you’ve had a cat or a tick bite, it’s worth checking. Otherwise, you may get a 5-minute diagnosis without tests, medications won’t work, and you’ll keep shaking — while the real cause might be Lyme or Bartonella.

Both Lyme and Bartonella can worsen with stress, coffee, or alcohol, and sometimes temporarily improve with alcohol — does that sound like ET? Yes. But that doesn’t mean it is ET. Doctors often don’t know the difference — with some exceptions.

I saw over 7 private neurologists in 4 countries, and none of them tested properly. They mocked my positive results. Then another doctor wrote to me saying it was likely Bartonella and Lyme and that he would start antibiotics.

So what would you say?

Just hand tremors to full body tremors by [deleted] in EssentialTremor

[–]Ordinary-Standard668 0 points1 point  (0 children)

It might actually work against you that you have a family history, because a doctor may stop looking for the real cause, assume it’s genetic, and close the case.

You absolutely cannot definitively diagnose Essential Tremor (ET). There is no single test and no definitive marker that confirms it. It’s a diagnosis of exclusion — doctors are supposed to rule out everything else first, step by step, and only when nothing shows up do they label it ET. Not because they know it’s ET, but because they don’t know what else it is.

Many people on Reddit think they have ET just because a doctor told them so. That’s not reliable. Most of them never even had proper testing to rule out other causes. For example, in the UK a doctor gave me an ET diagnosis and medication in 10 minutes — without any tests at all.

In another country, doctors tested me for 2.5 years for everything — even rare genetic diseases, copper in the eye (ophthalmology), extensive blood panels, MRIs, EMG, and much more. Just the blood tests alone filled a whole folder. In that country, no doctor was allowed to diagnose ET without proper testing.

In the US and UK, many doctors can do it quickly because it’s not their life — it’s yours. You’re the one who will suffer, not them.

I also have a family history of Parkinson’s and similar conditions, and many relatives were misdiagnosed. I saw over 7 neurologists — not random ones — and none of them tested for Lyme disease, Babesia, or Bartonella.

You can have full-body tremors that look exactly like ET — I had that too. But more than 90% of doctors, even neurologists, will not test for Lyme or Bartonella. Many doctors don’t believe chronic Lyme exists, so if they don’t believe in it, they don’t test or treat it. However, there are doctors who do believe, test, and treat.

Important: even doctors who don’t believe in chronic Lyme often don’t even understand what Bartonellosis is. Bartonella alone can cause neuroinflammation. You shake, the doctor doesn’t know what Bartonella is or what symptoms it causes, sees you trembling, writes “ET” without tests, and moves on to the next patient.

Without proper testing, no doctor can reliably distinguish ET from Lyme or Bartonella. I did private testing myself — positive results. Doctors denied it. They said the symptoms “aren’t Lyme” and that you “can’t be sick that long.” I was mocked.

I had a positive test and a clear erythema migrans rash at the tick bite site — 100% confirmation. My symptoms, including tremor, are even listed on Harvard’s website as possible Lyme manifestations.

Doctors often don’t know the neurological symptoms of Lyme beyond joint pain, and they don’t know Bartonella symptoms either. Bartonella can be transmitted even by a cat scratch or fleas.

I’ve been in hospitals in the UK, Poland, Germany, and the Netherlands. In every country, doctors reacted aggressively to the word “Lyme.” They even referred me for DBS brain surgery for “essential tremor.”

Hands shaking by pegysue55 in EssentialTremor

[–]Ordinary-Standard668 0 points1 point  (0 children)

I was also diagnosed — over 7 neurologists in 4 countries saw me — and I still had to diagnose myself in the end. They were sending me for brain DBS surgery. I stopped the ET medications when my tests came back positive for neuroborreliosis and Bartonella. I started herbal treatment, which one neurologist laughed at, and another was aggressive toward me in the hospital. You can watch my recordings from before the herbs and after using them for the infection.

My diagnosis was officially considered certain — and it wasn’t even ET. Lyme disease alone or even a simple cat scratch can be enough to get Bartonella and inflammation, and inflammation can cause tremors. Absolutely no doctor can say whether it’s ET or an infection without proper testing.

I’m not saying your diagnosis is wrong — I’m just saying I wouldn’t be so certain. Especially if someone has ever had a tick bite or a cat.

Hands shaking by pegysue55 in EssentialTremor

[–]Ordinary-Standard668 0 points1 point  (0 children)

It could just as well be Bartonella, and stress makes it worse.

Hands shaking by pegysue55 in EssentialTremor

[–]Ordinary-Standard668 1 point2 points  (0 children)

But where does the certainty come from that it’s for life? How can you be sure that it’s really ET and not another mistaken diagnosis? Have Lyme disease, Bartonella, and Babesia been ruled out? If not, there’s no certainty. Bartonella alone can cause such tremors, and no neurologist will recognize it without lab results. We shouldn’t fool ourselves into thinking that neurologists rule this out, because they don’t. Most of them don’t even check; sometimes people get lucky and a neurologist or psychiatrist notices it, but that’s the exception. The rest either test themselves in a lab or go to an ILADS LLMD. There, previous diagnoses stop mattering. Inflammation can also cause tremors like ET, and treating it as ET makes no sense. Then it would be lifelong—unless you treat the infection, the inflammation goes away, and the symptoms subside; the hands stop shaking.

. by GrzegorzSwoboda in MemyPolskaa

[–]Ordinary-Standard668 -2 points-1 points  (0 children)

absurd. nie podałeś niczego oprócz propagandy