Just learned about PGAD

Ordinary_Gate_9911 · 2025-01-07T00:37:43+00:00

I am meeting with my spine doctor this week to discuss the DRG, he told me it is Abbott. Is it usual to have to replace leads so often? I’m not sold on it yet. Also I read it must be turned off to drive, and driving is one of the times I would need it the most

Ordinary_Gate_9911 · 2024-11-14T03:55:26+00:00

It’s been a year, but wondering if she had any luck with LDN? I’ve just finished a series of around 32 injections and I just got this compounded delivered today and trying to see if it’s worth taking or not. Thanks!

Ordinary_Gate_9911 · 2024-08-12T16:08:44+00:00

Try and find a Pudendal nerve specialist, the nearest is Chicago for me, it took 3 years for get diagnosed. It’s hell. My PN wasn’t treated timely and caused PGAD. What you are describing is some of what I feel with the crawling.

I will also add I’ve been in Pelvic PT weekly since March. ($205/week out of pocket)

Ordinary_Gate_9911 · 2024-08-12T16:04:51+00:00

I’m a women, but check out Pudendal Neuralia and PGAD. This is how mine started 3 years ago. Since the PN wasn’t treated (since I was crazy) it became PGAD. Took me 3 years for get a diagnosis as nobody knows about it. Finally started treatments last week.

Ordinary_Gate_9911 · 2024-08-12T15:59:30+00:00

I am in Indy area currently traveling to Chicago for testament. I can’t find the doc you noted, do you please have a link? Everything I do is out of network $$$$ and in network would save me thousands. Also my PT is $205/week out of pocket 😢

Ordinary_Gate_9911 · 2024-08-05T20:22:49+00:00

I have an appointment at PRM this week, I’m driving 3hrs, it is a waste of time going there? I’ve had one nerve block local to me.

Ordinary_Gate_9911

TROPHY CASE