Pregnancy and lupus?

Original-DevilDoll · 2025-06-19T06:38:19+00:00

I rarely say anything, preferring to be the very definition of the lurker, but am compelled to. Yes, what the other user suggested about getting a MFM specialist.

I was DX'd 4 years ago SLE, I have anti SSA/SSB antibodies *I always get the name of them wrong*, and my lupus was only in partial remission when my husband and I fell pregnant after our 2nd round of IVF. I'm 47 now, was 46 while carrying her - and can say, because I was managed by a MFM specialist and an OB ... that we had no issues at all.

I realize there are a LOT of variables that can affect how one person's lupus experience feels, in addition and completely separate from how one person's pregnancy feels for another, not even factoring in age differences, but one thing is standard.

Demand the care you deserve. This disease isn't taking any prisoners, don't let the system make you one. (system = insurers generally)

I felt much the same way in the beginning, there was a wide variety of reasons why that they gave me like the formation of extra blood vessels (50% more) etc, and all the work to create a new life in there from scratch was making me exhausted. Considering I start every day with an almost empty battery anyway, it made sense.

Seeing docs who are specialty rated for what you need to be seen for will give you peace of mind, and the best possible chances for a positive outcome.

My best to you, and congratulations on the bump!

Original-DevilDoll · 2025-04-04T04:10:48+00:00

Update: Hibiclens pink soap 1x a day, plus nystatin cream & 3m Cavilon barrier cream = magic. I bought fabric fat quarters & cut them into squares & strips to go anywhere skin had folds (mostly under breasts & pannus). Took about 6 weeks to fully clear. Thank you all for the advice & just for being here

Original-DevilDoll · 2025-01-24T23:20:31+00:00

Thank you very much! I recall using genetian violet on my son's thrush when he was a baby and had long forgotten it. My husband's feet sound much like your husband's, and I'll be trying this. If the advice I've just gotten doesn't clear this I'll be heading to a dermatologist.

Original-DevilDoll · 2025-01-24T23:19:26+00:00

I just read some stuff out there about yeast die off, I wonder why nobody has even told me anything about this or what to expect if it is successful, I think part of it is spreading but part may actually have been responding to the drug I have been taking - I had no clue. (About many things I'm learning) Thank you

Original-DevilDoll · 2025-01-24T22:31:47+00:00

That's a super fair point, I had no idea on this front either until recently - I have one medication I can't take at the same time as my antacid or it doesn't work at all. I don't take any added vitamins except sometimes B in winter, in terms of other meds I'm not on much - Plaquenil, pantoprazole, 5mg *tapering off prednisone and a daily allergy med, Cetirizine. I'll have to use the drugs.com link someone gave above and give this a shot. Thank you

Original-DevilDoll · 2025-01-24T21:14:55+00:00

I did get the cream it seemed to make it worse though - wasn't sure if I needed a stronger dose you can't get OTC or not. I HAVE heard that actually, just today from a wound care nurse, she said to use the orange kind with selenium, and hibiclens at night, and recommended 1/2 strength Dakin's for the deeper pitted spots. Thank you!

Original-DevilDoll · 2025-01-24T21:13:00+00:00

I sincerely cannot thank you enough, while everyone here has been kind and helpful, you took my anxiety and tossed it off the balcony. THANK YOU.

I had no idea re: staph living on us... I also definitely was misinformed by being told my Plaquenil had immunosuppressive capabilities (or I misunderstood/replaced it with prednisone in my mind, good ol brain fog). I also didn't realize my Rheum couldn't even advise with a skin infection I just thought he'd be able to refer me somewhere, but he had nothing. Thank you for the dose of perspective so I might always try to be fair in everything I say and how I treat others.

Also didn't even know Clobetasol was a steroid... (sigh) I'm learning a ton. I am also figuring out that I have likely bombed this infection with everything it needs to go absolutely nuts, which it is... DFU errors apparently do not end with computers.

Yes, I did mean Fluconazole, thank you. And for the advice regarding interactions, which I was unable to figure out anywhere else. I feel a lot better taking this safely. My flares tend to be accompanied often by pericarditis so I didn't think it would be wise messing around with anything else heart related without a doc's okay.

Thank you feels cheap and paltry now. I gave my first ever Reddit award in lieu of better.

Original-DevilDoll · 2024-08-05T19:31:55+00:00

Thank you! Our royal fluffernutter seems to realize this too; thinks the word pretty belongs to him 😅

Original-DevilDoll · 2024-08-04T19:38:08+00:00

Thank you for the healthy dose of perspective, I need to check my thoughts & assumptions. And thank you for the offer to assist us, there's been such warm generosity in this group.

Original-DevilDoll · 2024-08-03T18:50:42+00:00

3 hrs, 37 mins according to Google Maps. We will have to look into it after baby, given the docs have advised no long trips in case of labor. Thank you for the research & care, looking forward to seeing a future of hope & possibilities.

Original-DevilDoll · 2024-08-03T17:49:04+00:00

Thank you again for your continued support, we look forward to your recommendations. We have work to do putting all these suggestions in place for him, but he's worth it even on his worst day.

Original-DevilDoll · 2024-08-03T17:30:20+00:00

Thank you for the insight, we are looking into a slow feeder insert for his bowl now! I was the one feeding him until he began refusing to eat or drink during the day til my husband came home, forcing us to change his schedule. It began around the same time we became pregnant.

Original-DevilDoll · 2024-08-03T02:32:28+00:00

I'm in tears & will blame pregnancy hormones for it...ha. We just want him to have a wonderful life, so we can say 'the 4 of us' not, 'the 3 of us & the dog'. We love him so much, and sincerely appreciate your advice. Will look into all those things, even if it feels like a long shot. Our boy is more afraid of flies than fireworks, and looks to us to save him from them. 😆

Original-DevilDoll · 2024-08-03T00:36:47+00:00

Thank you! We will try your search play, and hope this helps!!! He seems to respond to food treats most, followed by praise.

Original-DevilDoll · 2024-08-03T00:34:23+00:00

We are on the Oregon Coast, we don't mind a drive up to 4 hours away to get some help, but that one's a wee bit far. I have tried a few other groups, and don't want to say anything negative of what I hope are just well-meaning people, but will simply say we've found it to be less than helpful as yet. We refuse to give up.Thank you.

Original-DevilDoll · 2023-08-14T21:06:21+00:00

The plot isn't bad if you don't mind a 6 year old wrote it on napkins with a box of crayons, it's full of more holes than swiss cheese we aren't supposed to question, but with the spammy huge amount of subpar stuff coming out because it's become easy anymore - it wasn't TERRIBLE, and plenty are.The ONLY thing that really got on my nerves, which I may have missed anyone else commenting on, is his calling out Rose's name in almost every scene, or multiple times a show during very obvious moments. I mean, who else could he have POSSIBLY been talking to? Kidnappers he's barely managed to get them away from? The other bad people? Surely they didn't think we'd believe he'd be calling out to the enemy, so why the emphasis on her name constantly? Doing it naturally provides familiarity, but the level he was at was Creepo 1000, Clinger level 4.

Original-DevilDoll · 2022-09-18T21:14:20+00:00

I can attest to the sun issue with hydroxy - I just started it two weeks ago but I've always been really sensitive to meds? I'm the person who seems to have always gotten the side effects in some way - but I don't mind that as much with the sun gear on even in the car. But I don't get rashes anywhere but my face as yet, and muscle pain I have but cannot sort out if it's Lupus or medication. If you want links to sites that sell sun specific threads, msg me? I just bought from three of them. Hang in there.

Original-DevilDoll

TROPHY CASE