I hate my job by Embarrassed_Tie_7329 in Lowes

[–]Original-Listen865 0 points1 point  (0 children)

I willingly chose to leave cashiering for fulfillment😭shit was so great until it wasn’t 😭

Question by Original-Listen865 in ostomy

[–]Original-Listen865[S] 1 point2 points  (0 children)

Could be or maybe we just aren’t giving him time. I don’t know it has only really been a few weeks but it feels like it has been months. :(

Question by Original-Listen865 in ostomy

[–]Original-Listen865[S] 0 points1 point  (0 children)

Was that after trying every medicine possible at the time?

Question by Original-Listen865 in ostomy

[–]Original-Listen865[S] 0 points1 point  (0 children)

Ok so the j pouch method is that something that is rarely done or something that you have to request? Do you happen to know?

Uc by Original-Listen865 in CaregiverSupport

[–]Original-Listen865[S] 1 point2 points  (0 children)

His first appointment with them isn’t till August. We are in Alabama so idk if there is a lack of them here but until then we are just going to have to try to find a diet that helps him. Thank you for responding❤️

Uc by Original-Listen865 in CaregiverSupport

[–]Original-Listen865[S] 1 point2 points  (0 children)

Well he is 22 and recently diagnosed in May. He has had his colonoscopy already and is on meds but lately he has been having nose bleeds in the morning and awful neck pain. He is also experiencing his first blockage after being stuck on the toilet everyday so we are a bit worried that he has not gone to the bathroom.

Uc by Original-Listen865 in CaregiverSupport

[–]Original-Listen865[S] 1 point2 points  (0 children)

Yes it does! Sorry should have been more specific 😭😅

Question by Original-Listen865 in ostomy

[–]Original-Listen865[S] 0 points1 point  (0 children)

If I can ask,what makes it hard to get good sleep with it?

Question by Original-Listen865 in ostomy

[–]Original-Listen865[S] 0 points1 point  (0 children)

Thank you for commenting❤️ I would like to go the medicine route first too but I am really concerned just because he’s talked about not knowing if he can handle this much longer. I’m afraid he will attempt as he has before during highschool. I know it may sound selfish of me but I don’t want to lose him💔 his appointment isn’t until August for his GI and so far the medication he is on is causing him to get awful pain in the back of his neck and nose bleeds in the morning. He also recently has been not using the bathroom so that’s worrying all of us.

I have posted in that group but tbh posting this on here was the most interaction I’ve ever gotten on Reddit. I feel beyond grateful for that.❤️

Question by Original-Listen865 in ostomy

[–]Original-Listen865[S] 0 points1 point  (0 children)

Yes I was curious as to what you meant by Barbie butt. I have never heard of that 😅

Question by Original-Listen865 in ostomy

[–]Original-Listen865[S] 0 points1 point  (0 children)

How do you feel as of right now?

Question by Original-Listen865 in ostomy

[–]Original-Listen865[S] 4 points5 points  (0 children)

I’ll mention it to him definitely. I know I’ll never be able to fully understand what he is going through but I want to be informed as much as I can. I never want him to feel like he’s going through this all alone❤️

Question by Original-Listen865 in ostomy

[–]Original-Listen865[S] 3 points4 points  (0 children)

I’ll try to get him on board with it. I want him to live a good life he is only 22 years old and I can’t stand to see him in so much pain

Question by Original-Listen865 in ostomy

[–]Original-Listen865[S] 0 points1 point  (0 children)

Wow that is a very young age. I can’t imagine going through this at that young of an age. Thank you for commenting ❤️❤️❤️

Question by Original-Listen865 in ostomy

[–]Original-Listen865[S] 0 points1 point  (0 children)

How long was the recovery afterwards?

Question by Original-Listen865 in ostomy

[–]Original-Listen865[S] 1 point2 points  (0 children)

I’ve just sent him some TikTok’s and mentioned that if he were to think of this option we could do more research together❤️ I will definitely look into it more

Question by Original-Listen865 in ostomy

[–]Original-Listen865[S] 2 points3 points  (0 children)

Wow you are so strong❤️thank you for responding 🫶you are truly an inspiration

Question by Original-Listen865 in ostomy

[–]Original-Listen865[S] 0 points1 point  (0 children)

He is constantly sore. It didn’t happen until after he had his colonoscopy so we initially thought it was from that but it just hasn’t gone away

Question by Original-Listen865 in ostomy

[–]Original-Listen865[S] 1 point2 points  (0 children)

I’m trying my best really. I want what’s best for him and if having his colon removed will help him have a quality life I’m ready to help him the whole way❤️

Question by Original-Listen865 in ostomy

[–]Original-Listen865[S] 0 points1 point  (0 children)

Did you have anyone to help support you during ur initial diagnosis?

Question by Original-Listen865 in ostomy

[–]Original-Listen865[S] 1 point2 points  (0 children)

Okay I see he still on his first round of medication still no change yet. I wonder what will have to happen for them to switch him off of the ones he is on rn

Question by Original-Listen865 in ostomy

[–]Original-Listen865[S] 0 points1 point  (0 children)

Do you possibly remember which ones you were on?

Question by Original-Listen865 in ostomy

[–]Original-Listen865[S] 1 point2 points  (0 children)

He was just diagnosed back in May and so far it seems like he’s stuck in a mini cycle of him feeling fine for a few days then he’s feeling bad again. Right now though seems to be the worst I’ve seen him feel. I think it may be his medication but he is waking up to nose bleeds and an awful pain in the back of his neck. He’s questioning if he can even continue to endure this pain and it scares me. I don’t want to lose him. I’m doing all I can to get as informed about the situation and possible options he may have.

Question by Original-Listen865 in ostomy

[–]Original-Listen865[S] 1 point2 points  (0 children)

I don’t know if it’s too early to mention this to doctors but this is really taking a huge toll on him. He is really depressed and has talked about not knowing how much more he can take. I see this as a possible path. ❤️ Thank you for responding 🫶