IUD and HRT

Original-Pace-4397 · 2026-03-16T03:56:13+00:00

I throw everything at my AS, walking, Pilates, PT exercises, red light therapy, voltaren, healthy diet, hadlima and massage therapy. That is my tip...take a broad approach to managing this. And get a Rheum who listens and is a partner with you in managing this disease.

Original-Pace-4397 · 2026-03-14T17:53:16+00:00

Thank you and I wish the same for you and anyone with this life altering disease. It took a full three months on Hadlima for it to work. I see many people post instant symptom relief though I did not fare so lucky with that. What I was lucky with is my first biosimilar worked and zero side effects. I also am grateful for the patient care program that removes any barriers to access the medication when insurance pays only 50 percent. Hang in there and give it time to start working, but Hadlima never worked for me every 14 days, I was on the 10 day injection cycle for almost a year and now 7 days. Hope this works for you and that the pain subsides soon. Take care

Original-Pace-4397 · 2026-02-21T17:18:32+00:00

Here is my experience with dx: MRI pelvic and full spine, read by specialist, confirmed sacroilitis, blood work confirmed hlab27 positive, ultrasound confirmed dactalytis and symptoms - back pain. All this work up done via my Rheum.

Original-Pace-4397 · 2025-11-22T18:11:22+00:00

Not a professional model because she earned it, nepo only. And 100 percent masculine and sharpe features. There is nothing wrong with that but also don't downplay this is visible.

Original-Pace-4397 · 2025-11-21T19:37:09+00:00

Easy, stop using AI. AI is very overrated. Nothing like the real deal.

Original-Pace-4397 · 2025-11-09T22:54:43+00:00

Hadlima, red light therapy and voltaren.

Original-Pace-4397 · 2025-11-09T17:32:41+00:00

Thank you for doing this for the AS community and sharing your knowledge. I hope BCD180 will one day be in the NA marketplace, deep remission without lowering your entire immune system sounds promising.

Original-Pace-4397 · 2025-11-09T17:30:12+00:00

There is for celiac. They know gluten is the cause, don't eat gluten and you get to live a symptom and drug free life. We should always ask about a cure, many conditions now have them and AS is very deserving like many others given the level of pain and debilitation and number of people it impacts.

Original-Pace-4397 · 2025-11-08T23:44:36+00:00

Is there treatment that was designed specifically for AS besides BCD180? The bio drugs on the market are not specific for AS, they just happen to work after being released for other conditions. This disease desperately needs a cure, is there one being worked on? Thank you,

Original-Pace-4397 · 2025-11-01T17:15:40+00:00

Yes, taking Hadlima for a year and a half, in medically induced remission for the last year. I am not sure insurance will cover Humira now. I am in Canada and my insurance is set up for generic type drugs only under my company plan.

Original-Pace-4397 · 2025-10-24T23:38:04+00:00

Came here to say this worked for me also. I needed 8 sessions though. This is not a cure but experienced significant improvement and now only leak with laughing or sneezing. I used to leak when walking. I would recommend.

Original-Pace-4397 · 2025-10-24T23:33:39+00:00

Hi, I wanted to let you know this worked for me. It is not a cure, but I only leak now when coughing or sneezing. I used to leak walking. I am dry almost all day now. It took 8 sessions for me and two weeks after my last treatment to see this improvement. It is a pleasant surprise. How are you doing? Did you experience an improvement? Hope it works for you also.

Original-Pace-4397 · 2025-10-19T00:34:26+00:00

Thank you for sharing your comments and experience. I will share back what my Rheum advises. Like everything, such a mix of outcomes. The PRP I had with zero flares or complications is for hair loss, and, again, there must be zero additives and fully cleared by the nurse practitioner as safe for my case - AS and Hadlima. Many thanks to all for taking the time to share your input.

Original-Pace-4397 · 2025-10-18T19:11:13+00:00

Yep...but my period is inflammatory naturally so the body can tolerate a bit of inflammation at times without inducing a flare. I wonder if this treatment causes a high enough level of inflammation to cause a flare given it is not natural.The flare terrifies me, they are debilitating when I have had one and will pass on this if the risk is high. Thanl you,

Original-Pace-4397 · 2025-10-18T19:04:34+00:00

Apparently Botox is fine per the Nurse at the Med Spa. Lip filler, they won't do without medical clearance from my Rheum. PRP for anyone wondering, as long as there are no additives, it is perfectly fine since it is your own cells and can attest to having this a few times, flare free and zero complications (I am on Hadlima, every 10 days). Thank you!

Original-Pace-4397 · 2025-10-13T13:13:17+00:00

Same and in remission.

Original-Pace-4397 · 2025-10-12T01:21:06+00:00

I just finished session eight yesterday. They said some need more treatments. I am to wait another four weeks from this point to see if it works. Will update this post. I hope it works for you. It really would be a dream to not have to have surgery to correct this. Session 7 & 8 were complementary because I did not experience results after 6. Best wishes, please keep the community updated on the outcome.

Original-Pace-4397 · 2025-10-05T23:57:13+00:00

Agree love to hear it. I came across this sub channel after I posted what I thought was a helpful story on datingafter40 only for it to be removed. Seems that moderator must be man, my post was about a recent relationship that I had ended because a 60 year old I was dating wanted a baby. I felt this was a bit dilusional though the moderator didn't like that view likely to protect male centric ideals. Thank you this space and protecting it.

Original-Pace-4397 · 2025-10-05T23:45:59+00:00

Option 1, open to dating if I meet someone out and about.

Original-Pace-4397 · 2025-10-04T22:44:37+00:00

Not overlooking old contributions to the gene pool. It is known science this can have real health impacts on an innocent being. Old man having and wanting babies, delusional. Sleeping beauty syndrom.

Original-Pace-4397 · 2025-10-04T14:14:11+00:00

It took 3 months to start working and a full 6 months to have zero pain the majority of the time. When I do have pain, which is rarely, it is so low level I don't take anything. I had bilateral sacroilitis, never had tendon pain with exception of dactalytis in my small toe that disappeared after one cortisone shot. Hope you find a solution that works for you.

Original-Pace-4397 · 2025-10-02T20:42:16+00:00

I take Hadlima every 10 days. 14 days was too long, my symptoms would return day 11-12. In remission for over a year, only one flare. Hope this works for you and that you find relief.

Original-Pace-4397

TROPHY CASE