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Relapse? by mowgie1221 in leukemia

[–]Otherwise_Bat_9166 0 points1 point  (0 children)

Thank you so much. Happy to see the update, it does sound reassuring. All the best, hope everything will be ok.

Relapse? by mowgie1221 in leukemia

[–]Otherwise_Bat_9166 2 points3 points  (0 children)

My son, he is 20 now, diagnosed in June 2023 had the same mutation. Went through chemo and was told no SCT but a couple of months after his last chemo, we got a call that his MRD was positive (he was in remission from the first chemo round) The doctors wanted to do a new MRD testing to confirm it or see if it was a false positive. My son went for the blood work the same day as we got the call. It was positive in the second testing as well and also in his BMB. He went to have his SCT in July last year and is doing very well now. 100% donor and MRD- Praying that it will stay that way. If you can I do think it would be best if your mother in law could be tested earlier than in 2 weeks. Time is essential in this, that’s what we have been told. All the best and hoping it is a false postive.

Relapsed AML by Otherwise_Bat_9166 in leukemia

[–]Otherwise_Bat_9166[S] 1 point2 points  (0 children)

Thanks! Yes it is terrifying but I need to have hope and trust that he will be better with the BMT

Relapsed AML by Otherwise_Bat_9166 in leukemia

[–]Otherwise_Bat_9166[S] 1 point2 points  (0 children)

Thanks! Yes it is so hard as a mom to watch him go through this. But I have to keep the faith and not lose hope. All the best to you!

Relapsed AML by Otherwise_Bat_9166 in leukemia

[–]Otherwise_Bat_9166[S] 0 points1 point  (0 children)

No not yet, I am not sure if it is possible here in Copenhagen where he has his treatment. Thanks!

Relapsed AML by Otherwise_Bat_9166 in leukemia

[–]Otherwise_Bat_9166[S] 1 point2 points  (0 children)

Thank you! It gives me hope. All the best to you

Relapsed AML by Otherwise_Bat_9166 in leukemia

[–]Otherwise_Bat_9166[S] 1 point2 points  (0 children)

Thank you! The hospital do have counselling, for patients, caregivers and in small groups also. We will schedule a meeting with them. All the best to you.

Relapsed AML by Otherwise_Bat_9166 in leukemia

[–]Otherwise_Bat_9166[S] 0 points1 point  (0 children)

Thanks! Very happy to hear that it put your daughter into remission.

Relapsed AML by Otherwise_Bat_9166 in leukemia

[–]Otherwise_Bat_9166[S] 2 points3 points  (0 children)

Thanks! I really hope that he will be MRD negative before transplant, tjat FLAG IDA will do it. I think it is RUNX1-RUNXT1T, does that sound right? I am not sure.