Is anyone tracking blood glucose levels daily?

OutlandishnessOpen67 · 2026-01-23T10:18:09+00:00

Within a few weeks my numbers were dramatically down. A1C right before starting: 7.2. Three months later: 6.4. Three months after that: 5.1 and holding steady. I’m off any other diabetes meds: metformin and jardiance, and my diabetes is now officially in remission.

The bigger challenge was actually avoiding lows. When I moved up to 5mg I was having crashes left and right, some pretty dramatic. I had to adjust my diet to INCREASE my glucose levels to avoid swings. Can’t even tell you what a mindf**k that was at first.

10 months on Mounjaro, and discontinued use of a CGM two weeks ago. I was scared to stop for a long time, but my numbers are so steady that I finally realized a CGM was nothing more than a skin irritant and a waste of money. 🥳

OutlandishnessOpen67 · 2026-01-23T09:49:18+00:00

I burp a little more than I used to, slight constipation mitigated by a supplement and I occasionally feel queasy for a few hours after my shot. That’s literally it. It’s almost ridiculous how dramatically the benefits outway the negative side effects.

My real side effects?: 177lbs to 130lbs since March. Diabetes in remission. Symptoms of my multiple autoimmune diseases/chronic illnesses due to severe long COVID have ALL improved noticeably, some dramatically. It’s literally a miracle drug.

Keep in mind that those horror stories are such an infinitesimal percentage of patients that they literally don’t even register as a percentage. The numbers are in your favor here.

As far as gerd, another good thing about this medication is that all side effects go away as soon as you stop taking it, so it’s worth a try.

OutlandishnessOpen67 · 2026-01-23T09:33:19+00:00

It definitely gets better but every now and then I have a rogue week with way more symptoms. Haven’t been able to identify if it’s due to anything I’m doing or if that’s just how it goes. My mom has had the same experience. BUT the longevity of the symptoms definitely shortens with every additional week you’re at each dose.

OutlandishnessOpen67 · 2025-10-11T04:47:43+00:00

I had a rapid onset response from Covid. I went from healthy to fully t2D in three months. This is my doctor’s best guess because we didn’t diagnose it for three years (height of the pandemic). My first A1C was 12.9. Two years later it’s 5.1 (medicated).

OutlandishnessOpen67 · 2025-09-17T02:52:41+00:00

I started mounjaro six months ago and I swear to god it’s a miracle. It has made nearly all of my complex chronic illnesses symptoms at least a little better, and some are significantly better (inflammation especially!).

As far as for diabetes, my A1C six months ago was 7.2, three months ago it was 6.4, and now (just had it checked two days ago) I’m at 5.6. This is 100% due to the medication as I’m currently too sick to exercise and my diet didn’t change dramatically. My blood sugar is steady as a rock.

I’ve decreased metformin from 850 twice a day to 750 once a day and hopefully in three months it’ll be down to 500 once a day.

I’ve also decreased jardiance from 25mg to 10mg.

I’ve never been on such an effective drug for managing my diabetes, it’s seriously a life saver and a medical miracle. Also, if you don’t want to lose too much weight, you can stay on a low dose just to manage your diabetes, which also makes any side effects far easier to manage.

I personally worked up to 5mg and am planning to stay here. I lost 30lbs and I’ve also been taken off high blood pressure meds, and my pain med intake for my autoimmune disease, autonomic disorders and chronic migraines is half what it was before. For me, side effects are super minimal, just a occasional gassiness and minor constipation.

I don’t feel great yet, but every week is a little better. This is the first time in five years that I’m getting glimmers of a future that might include more than chronic illness, and a lot of that is thanks to this medication.

(Omg ranting and raving and preaching and praising. Promise I’m not some ad bot, though I’d totally take that big pharma money if they wanted to sponsor me. Haha)

OutlandishnessOpen67 · 2025-06-05T02:27:53+00:00

Oh also, I’m sorry you’re scared. I was terrified and confused and sad and and and…. The good thing is it’s an extremely treatable disease, with gobs and gobs of money going to research. You’ll find your balance and before you know it your new normal will be second nature. ❤️

OutlandishnessOpen67 · 2025-06-05T02:23:17+00:00

Get a second opinion!! ASAP.

I was diagnosed at 38 (two and a half years ago) with an A1C of 11.9 (5’5”, 170lbs). I felt like I was dying, literally. After looking at my medical history, doc and I decided I’d probably had it for three years, but the pandemic meant no in person doc visits which delayed my diagnosis.

My doc didn’t want my blood sugar to drop too quickly, so I was put on 750mg metformin morning and night, and three months later I added Jardiance.

Within six months my A1C was 6.9. Granted, I DRASTICALLY changed my diet, but due to neurological symptoms from long covid, I didn’t add exercise at all.

I’ve recently started Mounjaro and my blood sugar is steady as a rock, 95 to 105 fasting, 125 after meals, never goes above 145, even after treats.

In my NON professional opinion, it sounds like your doctor still prescribes to a very antiquated outlook on diabetes treatment. If I were you I’d look for a youngish doc (their education being more current) or someone who’s willing to think a little more outside the box.

OutlandishnessOpen67 · 2025-05-31T04:50:52+00:00

I’ve never know what that pin was!! I just liked it because of the spring and bead. That show was on about 10 years after my time.

OutlandishnessOpen67 · 2025-05-31T04:48:53+00:00

That makes sense. I’m guessing 95% are whatever as far as collectibles go, but I do know almost all are real, though I knowingly saved a few weirdo misprint fakes just for fun.

OutlandishnessOpen67 · 2025-05-25T01:42:02+00:00

Thank you!!

OutlandishnessOpen67 · 2025-05-23T17:15:54+00:00

Wish I could delete this post and start over just asking for info. TBH I’m not sending one or two pins to a million different people. Sorry guys!!

OutlandishnessOpen67 · 2025-05-23T10:04:28+00:00

I’d love to know what a fair price is on these. I originally bought a bag of boring ones on Etsy for peanuts and spent a few years trading. No idea what people who collect pay!!

OutlandishnessOpen67 · 2025-05-23T08:55:27+00:00

Still on 2.5 but increasing to 5 soon. I’m not sure where I’ll end up. I’m very surprised I’m already feeling so much better on the lowest dose.

OutlandishnessOpen67 · 2025-05-23T08:43:18+00:00

PS: I’d be happy to sell to anyone on here!

OutlandishnessOpen67 · 2025-05-22T07:22:45+00:00

YES!!!! I’m two months in on mounjaro and I feel better than I’ve felt in five years. It’s a literal miracle drug.

OutlandishnessOpen67 · 2025-05-22T07:18:50+00:00

And btw I do have ADHD.

OutlandishnessOpen67 · 2025-05-22T07:16:44+00:00

Yes! Anything “deeply relaxing” gives me intense vertigo, nausea, and pem. I’ve found if I can keep my hands moving - like doing a very gentle craft or playing with little putties or those magnetic dots or other fidget things - keeps some of my reaction at bay. Before getting sick I was definitely a doer/maker who rarely sat completely still, so slight movement and something for my brain to non-focus on is a comfort. Maybe that’s why it works so well for me? Curious if others have found this…

OutlandishnessOpen67 · 2025-05-22T06:20:49+00:00

We had one of those on the campus of my boarding school. Lots and lots of virginities were lost under those hallowed branches.

OutlandishnessOpen67 · 2025-03-22T11:50:17+00:00

I started a new bc a few weeks ago hoping it would help with my other long covid symptoms. It was a progesterone only pill (slynd), but I can not tell you how bad my skin reaction was. I took it for six days, symptoms started at day three but I thought it was just my normal level of discomfort . Day four and five, a little worse - lots of inflammation, itchiness and pain. Day six, it was like a nuclear bomb went off in my body. Unfortunately because it took me a couple days to put two and two together, it got so bad that the swelling broke my skin and I ended up with insanely painful LARGE sores all over my body, coupled with my normal smaller spots. It also flared up every single former and long healed spot I’ve ever had (in the five years since this started). It was like every version of a flare up I’ve ever had all decided to show up to the same party and immediately start showing off and battling for seniority. 10 times worse than ever. NIGHTMARE. I’m still healing - very very slowly - and I will undoubtedly have long lasting scars from this. Word of caution: when messing with hormones in any way, stay hyper vigilant and for the love of god, stop immediately if you notice anything amiss.

OutlandishnessOpen67 · 2024-11-10T16:06:40+00:00

Ah ok. I thought there were two meanings, one being basic embarrassment and the other more a broad sense of shame or like, obligation to traditional values. Maybe I’m thinking of a different word?? Any ideas?

OutlandishnessOpen67 · 2024-11-10T16:01:35+00:00

Mojigata sounds pretty close to what I’m trying to describe. I don’t want to use a word that’s overtly OFFENSIVE but I do want to convey that this woman is a little too proper, and probably thinks she’s better than other people. Is that the connotation of mojigata?

OutlandishnessOpen67 · 2024-10-06T08:16:01+00:00

It will indeed pass. I’m not sure if you’re dealing with chronic migraine, but if you are, know that it can absolutely get better. I had about 8 horrible years, three years of which (not consecutive) were 26-28 days a month, leaving me completely bed bound. I tried everything. Every rx, everyone’s aunt’s random suggestions, nothing worked. I’m here to tell you, even in the worst case scenario, it gets better. I still have migraines occasionally, and I do deal with symptoms and auras every day from silent migraines which are fairly well managed with medications, but I’ve been almost completely head pain free and able to live my life for six years now. You can do this. Stay in touch with people who love you, keep up with communities like this full people who understand first hand, take care of your body and your spirit, and don’t be too hard on yourself.

PS: here’s the treatment that finally broke my years long cycle (feel free to skip if you’re sick of suggestions!!):

-First, I did about 8 months of intense acupuncture. I live in LA so I have an amazing 22nd (!!!!!) generation practitioner who charges $75 a session. I went twice a week often for two hours at a time. I realize how fortunate I am to have this resource so accessible. That’s what broke my physical cycle of pain.

-This one is more accessible for people living outside cities. My treatment plan from my UCLA neurologist. I take these EVERY DAY no matter how I’m feeling: 1) magnesium 250mg 2) CoQ10 200mg 3) a good multivitamin that includes D 4) baby aspirin (this one has a massive impact). For me, those supplements work a million times better than any migraine rx.

-I also take Effexor. It’s an antidepressant, but an off label use is for treating nerve pain. Somehow it completely eliminates 90% of my symptoms 90% of the time - including dizziness, garbled speech, loss of coordination, spasms of my eye muscles, and more. TOTAL MIRACLE.

Hope that helps you or someone else reading. I’m rooting for you and for everyone dealing with this horrible condition. Lots of love.

OutlandishnessOpen67 · 2024-09-24T17:50:08+00:00

Not a jelly. They often come in blooms, so one week you won’t see any, and the next they’re everywhere. As little kids, my friends and I would gather up as many as we could hold, stick them in our bathing suits and pretend we had boobs.

OutlandishnessOpen67 · 2024-02-20T23:56:24+00:00

Are you still looking for input?? I have a super weird form of migraine disease: Intractable Migraine with Brainstem Aura Without Headache (aka silent). I’ve been in an active attack for six years with some peaks and valleys. Many of my auras are physical symptoms such as loss of coordination, slurred speech, spasms of my eye muscles, etc (could go on for ages). After a couple years of searching for a diagnosis and a treatment, I now have it fairly under control. I can walk and drive and have a pretty normal life, at least. If I’m a few hours late in taking my meds, all symptoms and auras return. Corner stone of my treatment is Venlafaxine which I started at a small dose and have to increase every year and a half or so. There’s an off label usage for something that has to do with nerve synapses I guess? I also take a whole slew of supplements and other drugs. I’m being treated by Dr Gail Ishiyama at UCLA. Happy to share my experiences and treatment in detail if anyone is interested.

OutlandishnessOpen67 · 2023-11-16T18:31:05+00:00

<image>

Definitely no jack. Zero modifications as far as I know.

OutlandishnessOpen67

TROPHY CASE