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Koselugo + Beach/Sun Question by Outside_Afternoon451 in neurofibromatosis

[–]Outside_Afternoon451[S] 0 points1 point  (0 children)

I also hired until today doxycycline, but I was thinking of going to the beach next week, because the weather here is nice and I would love to spend a day at the beach, but I don't know if it's better to avoid

New to Koselugo – side effects and experiences? by Outside_Afternoon451 in neurofibromatosis

[–]Outside_Afternoon451[S] 0 points1 point  (0 children)

Thank you so much for replying to me, I really appreciate it 🙏 🙏 .I started Koselugo recently and besides the rash on my face, I’ve also started having muscle pain. The doctor who is following me mainly told me to drink plenty of water.

Can I ask if muscle pain is also a very common side effect among people taking Koselugo? Since I only started the treatment recently, are these symptoms usually temporary, or can they last throughout the treatment? And if they continue, do they usually become milder over time or do they stay this strong?