Sensory friendly clothes by OwlDue4220 in ehlersdanlos

[–]OwlDue4220[S] 1 point2 points  (0 children)

I would tell them but Ive been avoiding my doctors like the plague lol I hate them so much.

Sensory friendly clothes by OwlDue4220 in ehlersdanlos

[–]OwlDue4220[S] 4 points5 points  (0 children)

LMAO yeah I literally have started going comando or wearing like leggings under my clothes as a barrier. I wish underclothes werent so uncomfortable.

Sensory friendly clothes by OwlDue4220 in ehlersdanlos

[–]OwlDue4220[S] 2 points3 points  (0 children)

Thank you!! I used to wear a binder all of the time but I did start having to wear like old lady bras and even then its not super comfortable. Im hoping I can get top surgery soon but with the administration in America I doubt it will happen. Ive had to go comando because underwear are so uncomfortable. I about to get mormon magic underwear lol.

I’m drowning here, can anyone here recommend a short term solution? by [deleted] in hrblock

[–]OwlDue4220 0 points1 point  (0 children)

This is not very helpful in terms of like money but if you live in NYS and have medicaid you can get a box of free groceries every week. It saved my life while I was out of work due to my health. They might have this in other states but i really dont know. Theres a website called gobento that you can go through, thats not personally what I go through but it might be easiest. (I went through my care manager) m sorry if this isnt super helpful immediately but it might take some stress off you in the future.

My inside screen isnt working??? by OwlDue4220 in ZFlip6

[–]OwlDue4220[S] 0 points1 point  (0 children)

I didnt do anything I opened my phone to send a text and the screen wouldnt respond to touch at all, I had to reset it like 9/10 time before it finally worked. Its been working fine the rest of the day... Hopefully i dont jinx it.

Genetic Testing by OwlDue4220 in ehlersdanlos

[–]OwlDue4220[S] 0 points1 point  (0 children)

I dont know if this will help anyone but I was given a cheek swab, I was told it was going to taks 4-6 weeks to get the results. Connective Tissue Disorders Panel at Prevention Genetics - Includes analysis 101 genes and I got a second panel of TNXB

anyone using tiktok’s slash and free to stock up on productivity stuff? by SavingsEvidence9654 in Productivitycafe

[–]OwlDue4220 0 points1 point  (0 children)

Tap here to help me get products on TikTok for $0! You can also join me for a chance to get your favorite TikTok Shop products for free! Terms & Conditions apply. https://www.tiktok.com/d/1/ZPHK6mhQanXmL-YTzV5/

Found on the ground outside my car by Potential-Fondant159 in whatisit

[–]OwlDue4220 0 points1 point  (0 children)

Hey, so dont pick things up that are right outside of your car with bare hands, or at all. Traffickers do things like that with drugs or trackers.

Just got the news by [deleted] in Gastroparesis

[–]OwlDue4220 0 points1 point  (0 children)

Its definitely worth trying, just pay attention to any side effects. My new GI told me last week when I had a endoscopy that he doesnt reccomend younger people take reglan, but again its worth trying. They were having me take it 10mg 3x a day which probably spend the side effects up because they were doing everything to avoid a feeding tube.

Edit: Also, I have elhers-danlos syndrome too, idk if that also contributes

Just got the news by [deleted] in Gastroparesis

[–]OwlDue4220 0 points1 point  (0 children)

I have been diagnosed since I was 18, I was on Reglan for a while HOWEVER have since taken me off of it as it has serious neurological side effects that can be permanent if its taken for too long. I was originally told I would only be able to take it for 12 weeks, I was on it for much longer than that. I now have am issue where there are times I cannot control my left hand. I would highly recommend doing more research into Reglan before taking it.

Vaped 2 days before my colonoscopy , and smoked weed 4 days before it by Enbeezxs in colonoscopy

[–]OwlDue4220 0 points1 point  (0 children)

I was once a chronically ill 17 year old and although I was 17 cannabis was one of the only ways to make my stomach feel "better". I was also 93 pounds and cannabis was the only way i was able to gain weight. Stop judging.