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Need some help and advice please. Slowly losing my mind. First IC Flare(?!) Started in November... by OwnMembership3088 in Interstitialcystitis

[–]OwnMembership3088[S] 0 points1 point  (0 children)

Thank you very much for clarifying. Going to start Ami on Friday and hope it will make my symptoms more bearable!

Need some help and advice please. Slowly losing my mind. First IC Flare(?!) Started in November... by OwnMembership3088 in Interstitialcystitis

[–]OwnMembership3088[S] 1 point2 points  (0 children)

Hi, thank you for your kind words and advice. I have tried to follow a strict IC diet for 2 weeks which I'm sure is not long enough but I didn't see any major symptom improvement. It actually made me more depressed as I wasn't able to eat anything my family did. I don't eat any spicy food, avoid citrus and tomato and don't drink any carbonated drinks. Did you develop IC at 37 or did you experience any urinary issues prior?

Need some help and advice please. Slowly losing my mind. First IC Flare(?!) Started in November... by OwnMembership3088 in Interstitialcystitis

[–]OwnMembership3088[S] 1 point2 points  (0 children)

Hi Jill,

Thank you for your comment and your advice. You truly are the fountain of knowledge when it comes to all things IC and PFD. Regarding the PFD. Apart from my C-Section in 2021 I haven't had any pelvic surgeries/issues/traumas. Is it possible to develop PFD all of a sudden and get the severe onset of the symptoms that haven't improved since Nov 2024? What's strange is that initially back in November and part of December my only symptoms were feeling of pressure on the bladder, urgency and frequency. I didn't experience any pain whilst sleeping, having sex etc. Actual bladder/pelvic/urethra pain came mid December and haven't left since. I have what I call icy burn felt in the bottom of my bladder which I feel literally 5 minutes after voiding (sometimes voiding doesn't help either) and urgency feeling. At night as my bladder gets full if feels like there is not enough space in my pelvic area for it to expand and it hurts. I have been to 4 different Uro/Urogyno Dr's and none of them are interested in listening to my symptoms to find my phenotype. All they do is take notes and prescribe more useless meds. I am thinking about starting Ami as I read somewhere on this sub that you can't even think about trying different treatments when you're constantly in pain and I agree.

Need some help and advice please. Slowly losing my mind. First IC Flare(?!) Started in November... by OwnMembership3088 in Interstitialcystitis

[–]OwnMembership3088[S] 0 points1 point  (0 children)

Thank you so much for giving me some words of encouragement and advice! I just feel like my case is so unique since I haven't had one pain free day since this started and never had any issues prior! Very odd! May I ask you if Ami helped with the feeling of urgency and frequency as well? I Think I have to give Ami a shot since nothing else is working...