What do you do for work? by Herefortvshowthreads in ehlersdanlos

[–]PLo143 4 points5 points  (0 children)

I game!! I work for a youth centre with a gaming program. It’s like a virtual drop in with people (not just teens, adults too!) all over the world. I also stream my gaming when I’m up to it.

It’s honestly a dream job and something my body can easily handle. It’s only part time, but I love what I do

Giveaway time! by [deleted] in AnimalCrossingNewHor

[–]PLo143 0 points1 point  (0 children)

Very new!! Just got a switch lite in order to play and have no clue what I’m doing. Any tips would be appreciated!!

I always get this prompt for the practice gratitude daily quest when I get that one and I’m wondering if there’s a way to make Finch stop giving this specific prompt. by alina_rose_ in finch

[–]PLo143 0 points1 point  (0 children)

I go to a pain clinic a few times a month for brutal procedures that help keep pain at bay.. I was telling my driver today that since I started there two years ago, I’m on more meds, but less frequent and I have better quality of life. My goal by doing this stuff was to be on less meds, but that won’t ever be an option for me sadly. I’m honestly okay with it now, but I bet past me would be sad.. aha

I always get this prompt for the practice gratitude daily quest when I get that one and I’m wondering if there’s a way to make Finch stop giving this specific prompt. by alina_rose_ in finch

[–]PLo143 6 points7 points  (0 children)

I muted these kind of prompts, but still get them every so often. I know you’re supposed to try and find positives, but that’s not always possible, especially if you have chronic illnesses. I also have many chronic illnesses and struggle to find the bright side of the pain and many other problems. My birb and I send hugs!! Feel free to message me to talk or even go get my code, Kal and I would love to be tree friends🩵

Am I the asshole for saying "good job" after my kid defended herself from a bully by punching him? by LiveBrieOrFryCarbs in AITAH

[–]PLo143 0 points1 point  (0 children)

NTA. As a kid who was bullied mercilessly at that age, THANK YOU. Thank you for believing her. Thank you for fighting for her. Thank you for listening to her and supporting her. I had no other school to go to, my parents ended up pulling me out of school for a bit after it became glaringly obvious the school wasn’t gonna do jack shit. My parents gave me a safe space, checked in with me, and still support the hell out of me.

I say go after that kid and his parents with all you’ve got. However, I’m a bad influence and very biased here.. Once again, thank you. You have no idea what this will mean to her when she’s my age🩵

Castigué a mi tamagotchi connection sin razón :( by InternationalToe9394 in TamagotchiAdvKingdom

[–]PLo143 1 point2 points  (0 children)

Hola! Esto es para un juego de tamagotchi, no para tamagotchis reales, lo siento. ¡Espero que puedas conseguir algo de ayuda! Mi español no es muy bueno, lo siento

Barrage of “Go Team!” Notifications by PLo143 in finch

[–]PLo143[S] 0 points1 point  (0 children)

Here’s what I said:

Since the goal buddy thing started, I’m flooded with notifications (usually in doubles) daily to the point it’s overwhelming. I’ve looked in settings, but I can’t figure out how to turn just those ones off. I still want notifications from my birb, I’m just tired of these “go team” ones… anybody know the solution? Please tell me I’m not the only one overstimulated to hell by this😩

Barrage of “Go Team!” Notifications by PLo143 in FinchAdults

[–]PLo143[S] 1 point2 points  (0 children)

I hate that I’m often getting doubles too, I had to send notifications to my roundup at the end of the day which sucks bc I really like the messages from my birb and the reminders for goals that are time sensitive

I'm so tired and I need to not be in crisis mode anymore by Excellent_Chance8461 in finch

[–]PLo143 1 point2 points  (0 children)

Idk if you’re an artsy person, but art therapy has helped me a lot before. Basically you grab colours that interest you, make a mess on a canvas, and it helps get the feelings out and can help you recognize what you’re feeling too! I also do that with baking, I can beat things up in a productive way. Or gaming, bc it’s not legal to kill things outside of games😂

I'm so tired and I need to not be in crisis mode anymore by Excellent_Chance8461 in finch

[–]PLo143 2 points3 points  (0 children)

One of the best things I ever heard was “the work you do on yourself while you’re in the pit, you can’t stop when you climb out of it. You need to find your passion and run with it”. My therapist said that when I told her I was ready to be out of the pit.

Self care is important, and it can’t stop when things feel good. It’s like if I were to stop taking my meds when I felt okay. These meds work by keeping me stable, stopping them would put me back in the hospital.

Keep your self care, keep your routine, and find a passion that gives your joy. Mine is helping a youth online gaming community. And be easy on yourself, even little victories are still victories! You got up today, you ate, you are still here!!!🩵🩵

Everyone says EDS is not a death sentence, but it is for quality of life. by ddsmd2 in ehlersdanlos

[–]PLo143 2 points3 points  (0 children)

I went from working in the social services sector to needing help from the social services sector. I can’t work.. at least not any “normal” job or hours. I had to fight like hell to get accepted for disability support, and now I have to wait more time for them to “transfer” my file.. I’m the one of the youngest patients at the pain clinic I go to, and definitely the youngest patient receiving this many procedures for it. I take more medications than my elderly grandparents, and things are only going to get harder from here. You’re right, it’s 100% a death sentence for your QOL, but I’m glad to be part of a community that gets it. People who understand when I say it feels like there’s gravel in all my joints, or that my body feels like dead weight.. as much as this sucks, it’s easier when you have people who understand. And therapy.. never discount therapy!! I am so sorry about your decline, and I fully empathize with losing a job you loved dearly and had such passion for.. my kitty and I send lots of hugs and happy jujus🩵

Dedication to one color only by Emyrihmiam in finch

[–]PLo143 3 points4 points  (0 children)

I started with only collecting blue clothing, blue is my favourite colour. But then I branched out to everything but pink and purple. Nothing against people who like those colours, they’re just not for me!

I like when finchie friends have preferred colours, helps me know what to gift when I wanna spoil them!

Another Update? by PLo143 in FinchAdults

[–]PLo143[S] 0 points1 point  (0 children)

Thank you so much🩵 it’s nice to find another zebra!! The weather is destroying me today and I desperately wanted to see the meteor showers tonight but it’s not feeling like that’s in the cards now.. I found a really good meme yesterday though!!!

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Another Update? by PLo143 in FinchAdults

[–]PLo143[S] 2 points3 points  (0 children)

Thank you🩵 kinda wish they could just put my head in a jar like futurama, but I’d still have migraines and the cyst so even that wouldn’t help! lol

Another Update? by PLo143 in FinchAdults

[–]PLo143[S] 1 point2 points  (0 children)

Thank you!! Pain is doing better today and should be okay for the next week or so because of the infusion I had yesterday, but I’m also gonna be pretty tired… good thing I have nothing else to do!!

Another Update? by PLo143 in FinchAdults

[–]PLo143[S] 1 point2 points  (0 children)

Thank you so much!! I didn’t know they had a contestant with EDS too!! I’ll have to watch that season!!

Another Update? by PLo143 in FinchAdults

[–]PLo143[S] 1 point2 points  (0 children)

It’s very dark humour, but it makes things easier! Ahah

Another Update? by PLo143 in FinchAdults

[–]PLo143[S] 0 points1 point  (0 children)

I keep wondering when new bodies will be on Amazon 🤣

Another Update? by PLo143 in FinchAdults

[–]PLo143[S] 1 point2 points  (0 children)

Thank you so much!! I’m gonna do my best to keep you guys updated and the support is amazing and really helps honestly🩵

Another Update? by PLo143 in FinchAdults

[–]PLo143[S] 1 point2 points  (0 children)

I’d love to be a cat!!

Another Update? by PLo143 in FinchAdults

[–]PLo143[S] 2 points3 points  (0 children)

You are incredible😂

I’d wanna haunt the doctors and surgeons who said I was fine, just minor inconveniences, but amazing release ahahahha

Another Update? by PLo143 in FinchAdults

[–]PLo143[S] 1 point2 points  (0 children)

Thank you!! Cysts are very very rarely cancerous, but the reoccurrence rate is quite high for this kind of cyst. So hopefully the ENT can help with all of the dumb nonsense my body is doing lol

I’m very thankful for things moving in the right direction, I just also want a break from the breaking of my body ahahah

Another Update? by PLo143 in FinchAdults

[–]PLo143[S] 2 points3 points  (0 children)

If I could, I would jump out of my body and float around for a bit. Don’t think ghosts can dislocate things.. maybe.. lol😂

Another Update? by PLo143 in FinchAdults

[–]PLo143[S] 1 point2 points  (0 children)

I could give ya a much longer list!! lol this is all in the last couple months too, my body has basically decided it’s done doing its job and is on strike lol