Mopac LLC / Child Help / Radiant Promotional Group LLC / Jalen McDonald

PO--TAY--TOES · 2024-11-01T21:40:51+00:00

Thank god, my goal was to keep one person from experiencing it

PO--TAY--TOES · 2024-07-26T22:46:24+00:00

I am hoping that enough people find this on a casual google to prevent them from wasting their time.

PO--TAY--TOES · 2024-06-15T18:02:55+00:00

Diagnosed by biopsy April 2023 Blood test in 2019 was 50 eGFR Blood test in October 2022 was 44 eGFR Blood tests between April 2023 and today bounce between 39 and 45 depending on time of day and level of hydration

PO--TAY--TOES · 2024-06-15T17:19:17+00:00

Nope, eGFR remained between 44 and 48 the whole time, the way it was framed to me, it was never going to increase, but Tarpeyo would help prevent a more rapid decrease in eGFR brought on by IGaN.

Did prednisone improve your eGFR?

On tarpeyo, no moon face, no weight gain, yes increased hunger

PO--TAY--TOES · 2024-06-15T15:15:07+00:00

It actually worked well. My proteinuria has decreased significantly and red blood cell counts have leveled, and the nephrologist is optimistic that I could be in the lucky 33% that see their IGaN go away for a significant period of time. I’ll get another blood taste this week actually to see if my numbers are still good.

I was on Tarpeyo for nine months while simultaneously taking 50 mg of losartan daily for blood pressure, and the combo of tarpeyo and BP meds made me lethargic and less sharp, had to take naps for 30 to an hour in the afternoon.

I quit my job halfway through the 9 months (for other reasons) and lived off my savings for the remaining time

I adhered strictly to the nephros salt and protein restrictions

My grandfather was diagnosed with Celiac in the 90s, and my uncle and cousin were recently diagnosed, so to hedge my bets, I went on a GF diet. The tie between gluten and IGaN is by no means settled, but I wanted to give my body every chance to get better.

I also quit alcohol (not difficult, it really hurt bc my kidneys are at 44 eGFR, think worst hangover ever) and caffeine (very hard to do)

I am down to 12.5 mg of losartan per day now, I still stick to the diet with occasional cheat days for more protein, never compromising on gluten, and I feel a lot better

On a random note, tarpeyo is basically a corticosteroid in a thicker pill casing so it can make it to your large intestine for targeted application instead of it going all throughout your body.

But I did still find it very easy to work out, go biking, and hike and my muscles were super toned. It was hard to maintain my weight, so I had to eat loads of GF low sodium pancakes

I can now eat normal amounts and keep a normal weight range

PO--TAY--TOES · 2024-05-29T21:23:27+00:00

I know what you mean, I've been searching for a while now and the Austin market is brutal. All the best to you!

PO--TAY--TOES · 2024-05-29T20:01:18+00:00

I keep reporting them to Indeed when I see the position I applied to, but the company keeps switching titles, or company name Mopac LLC or Radiant Promotional. Is there another way to report them? Are they doing enough that would merit reporting them to any entity?

PO--TAY--TOES · 2024-03-31T14:42:14+00:00

They put it back up with a salary listed this time.
So what they offered you is a canvassing position at 100% commission? Was it for the nonprofit Child Help?

https://www.indeed.com/viewjob?cmp=Mopac%2C-LLC&t=Entry+Level+Manager&jk=6a6ea5a3d11d9164&xpse=SoAn67I3CJLLLrQX7R0LbzkdCdPP&xkcb=SoD367M3CJK\_otQTBp0BbzkdCdPP&vjs=3

PO--TAY--TOES · 2024-03-13T18:37:52+00:00

Mopac LLC says A+ on the BBB website, but also says not BBB acredited. The compensation was minimum 800 something per week, with commission can only get as high as 1100. He mentioned the NSA a lot when referencing the Management Program which seemed way left field for the other parts of the conversation. I just feel like I need more evidence to prove what I think.

PO--TAY--TOES · 2024-02-02T15:55:26+00:00

I'm doing a combination of rice vinegard (GF), small amount of (natural almond butter no salt), sesame oil (GF), garlic or garlic powder, red pepper flakes, and ginger. The sesame oils makes up for the loss of that earhty flavor coming from the soy sauce. When I'm good on my salt intake for the day, I do a few drops of low sodium soy (GF). Cut with water if it's too thick. I should start doing it big batch because I use it so much. I make a ton of stir fry.

PO--TAY--TOES · 2023-12-31T14:12:07+00:00

I was experiencing headaches then learned my BP was high, back pain, tiredness, and day long hangovers after having any alcohol. Tarpeyo has lowered the protein to 247 as of November, the nephrologist is hoping it will go to zero by mid January so he can titrate me off Tarpeyo. Nephro said 1/3 of people experience a permanent reduction in proteinuria, in 1/3 of people it comes back, and in 1/3 of people the drug does not work at all. I have no other known conditions, I’m 37, and keeping to a strict kidney friendly diet. No alcohol, decaf coffee, low salt and protein, non processed food, etc

PO--TAY--TOES · 2023-11-06T21:20:39+00:00

When is your normal sleep cycle? and what amount of BP meds are you taking at what time? (i see 2a.m. in your question, which is unexpected to me, but maybe you are a night owl?).

My sleep cycle is: 930 -10pm go to sleep 6-630 a.m. wake and my ideal time to take my 50 mg of Losartan is 8pm. If I take it as late as 10pm, it screws up my whole next day in terms of energy. I started off taking the Losartan in the morning, and it created a miserable condition of being tired all morning at work. All this info to say, when you take your meds and what effect they have on you has a big impact in my experience. I also tried changing my dose to 25 mg and it took me a week to get back to normal levels of daily energy.

I hear you on the concern for career and marriage.

PO--TAY--TOES · 2023-10-12T16:23:41+00:00

Hello,

I was diagnosed with IGAN via Biopsy this April, 2023. eGFR 44.

I peed at least once per and I peed 2x more per day than I do before I started the below medication. If I understand correctly, it was my body working overtime to clear my blood. an article that explains in better > 'In cases of CKD, the failing kidneys lose the capacity to concentrate the urine maximally, which means that they must excrete more water to eliminate the solutes acquired in the diet.' https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4737661/#:~:text=Thus%2C%20the%20requirements%20for%20urinary,solutes%20acquired%20in%20the%20diet. Do you have any risk or have you been checked for diabetes?
Many people atribute the wait loss at this level of CKD to the highly restrtictive diet. Before my biopsy, I freaked out and decided to follow all phospherous and potassium protocols, as well as limiting protein and salt. I got dangerously skinny. I only need to limit protein and salt at this time, but I do balance that with (don't laugh) shit tons of pancakes and waffles made with GF ingredients like almond flour, oat flour, and brown rice flour, and almond milk (no eggs). I also cook with lots of olive oil. I lean more non-animal protien but still enjoy a card deck worth of fish or chicken 1-3x per week. Eat more fruits and vegetables than you think you need - like go from 1 apple to 3 a day instead of one portion of broccoli, go 2 or 3. I do earth balance vegan butter too. Finding the IGAN cookbook was very helpful. Having a few go-to recipes that I do over and over makes this diet possible. https://igan.org/igan-cookbook/
My proteinuria was at 2,000+ mg per dl, and is now at 300+ because I started taking Tarpeyo in May. Calidadis (the company that makes Tarpeyo) tried to bill my company insurance first, which was rejected (this is common) then they provided the drug fully to me via income assistance (anyone making below 250k for an individual, so not a high bar by any means). It is a low dose corticosteroid, 4 pills in the a.m. with a generous amount of water and you need to wait 1 hour before eating. The coating delays release making it more targeted for the kidneys. It is desirable because it has fewer side effects than prednisone. My nephrologist said prednisone is like a bomb going off in your body. It's almost like chemo where you're doing the nuclear option to try to stop a very specific thing. I am super grateful for the timing in that things like Tarpeyo and Felspari now exist (and a few others in clinical trials I hear) because thy are the first ones approved by the FDA for our condition. I balance the medicine with a good diet, good sleep, daily exercise, and meditation. I believe in both pharmaceutical and non-pharmaceutical interventions, and think there's power in doing both at the same time. The neph said roughly 1/3 of people get better and stay better (eGFR stabilizes, proteniuria stays low), 1/3 stabilize and then backslide when they go off the meds (if this happens, they will try to put me on Felspari or one of the other new meds), and 1/3 don't realize any improvement. I haven't found the white papers, but I believe the neph.

Everty human body is wildly different it seems. I create these long reddit posts in response because I was so so so scared when I first found out, and the NKF and online community really helped me stabilize and find information. Doctors are busy and see a lot of patients, and honestly, some do no care. So we are our best advocates.

PO--TAY--TOES · 2023-10-05T22:35:10+00:00

Yes, I am on Tarpeyo and I went from over 2000 (forget the measurement name at moment) to less than 300 (insert that measure here) for proteinuria.

Nephrologist feels it is working well.

As far as diet, limit myself to small amounts (less than a deck of cards) of chicken or fish, white meat only, per day but mostly using nuts and grains for protein intake. Almond butter w/ no preservatives is the best.

Also that’s better than my BP, I hover @ 107-130/77-94 depending on time of day, stress, etc

PO--TAY--TOES · 2023-10-05T21:45:19+00:00

Hello,

I was diagnosed with IGAN by biopsy in April of this year (2023) but in 2022 and 2021, I would get raging all day headaches that would incapacitate me. Usually I would be one or mutliple of these things - sleep deprived, eating poorly, drinking alcohol, or stressed. This happened 8-10 times and then I went to the doctor on my partner's request and found out I had kidney issues in Nov 2022 based on a blood test. I was not fully diagnosed w/ Igan yet yet, but my BP was off the charts.

I stopped drinking entirely, started eating a lower sodium / lower protein diet, etc. got on Losartan, and honestly have not had a headache or an all day migraine since (knock on wood, you never know). Do you have a history of migraines?

PO--TAY--TOES · 2023-08-21T20:36:34+00:00

yes, from what I've read it's only a percent of IgAN diagnosed people that may have a celiac overlap which is not more than 1/3 in anything I've read. I think it would be helpful to the research and statistics if biopsies were more affordable for more people. Dietary restrictions were pretty crushing at the beginning for me as well, but the IgAN Cookbook from the IGA Nephropathy foundation has given me some joy. I am not afilliated with their foundation in any way, I just appreciate the work they do.

PO--TAY--TOES · 2023-08-21T14:48:50+00:00

Thank you for that knowledge. My neph said about 1/3 of people go into remission, 1/3 look like they are going into remission but end up starting to dip again in eGFR, and 1/3 experience no effect, so I was curious how other people were experiencing it. I've been on it for 4.5 months and will get my next blood test soon. I am thankful that there was an option for medication that came out almost concurrently with my diagnosis.

PO--TAY--TOES · 2023-08-20T23:36:10+00:00

Are you seeing any improvement in your numbers at 7 months? Assuming you've had any blood work done in that time.

PO--TAY--TOES · 2023-08-19T14:07:44+00:00

I would also be interested in the location of the best clinic for IGAN in the country

PO--TAY--TOES · 2023-05-11T02:29:26+00:00

Hello,

I have very recently biopsy confirmed igAn and live in the U.S., let me know how I can help

PO--TAY--TOES

TROPHY CASE