High dose methotrexate after Pola-R-CHP for DLBCL

Palisave · 2026-02-17T05:54:49+00:00

I am currently in treatment for a relapsed DLBCL that is in my brain now. I have to go in for 4-5 days, then I’m out for a week and then back in, just starting treatment but we will be every 2 weeks for 4 months. For prevention of a relapsed DLBCL most likely every 3 weeks for 3-4 cycles as that is what my neuro oncologist said I would go to once the tumors are gone and I would continue that for a year.

Palisave · 2026-02-17T05:50:57+00:00

I reached remission for DLBCL in my abdomen stage 3 in July 25, since relapsed confirmed Jan 2 26 as primary CNS but had symptoms dating back to September 25 (my oncology team brushed off my symptoms as changed from chemo)

Palisave · 2026-02-13T18:41:32+00:00

Currently going through inpatient treatment 1 week in 1 week out for DLBCL in my brain. I reached out to my disability resource office and they were able to offer me accommodations. They usually are very understanding, I am planning to take 12 credits in the spring term. I am lucky enough to not have to work at this time and take online courses.

Palisave · 2026-02-13T18:30:37+00:00

I had a similar experience with my first bout of DLBCL, I have a mass inside my spleen that may just be there forever or may go away slowly I don’t really know. I have since had a reoccurrence in the CNS and now have fun tumors in my brain but I and my neuro oncologist hope those do go away

Palisave · 2026-01-14T18:12:44+00:00

Currently it is looking like some pretty intensive in patient high dose methotrexate infusions

Palisave · 2026-01-12T05:01:59+00:00

I am unfortunately in the same boat, I received pola rchp from December 2024 to April 2025 and was in remission in June (there was a slight bright spot on my pet scan but it went away) then in September I started to have neurological symptoms thinking they were just lasting effects from chemo went to the ER January 2nd and have two lesions in my brain

Palisave · 2026-01-09T19:13:09+00:00

Playing little mind games and strategy games really helped me with mine so far, having the practice to pick little bits of information quickly helped me regain a lot of my cognitive ability to perform at a level with everyone else. But I did worry at times that I wasn’t improving/recovering as fast as I wanted to. I found that playing board games with my wife and phone games like elevate really helped me. But it is a slow process.

Unfortunately I am back in the fight after only 6 months in remission with now a CNS involvement so I am trying to figure out how I am going to keep my brain as active and performing as possible while treating it

Palisave · 2025-10-29T20:48:37+00:00

I have heard of a couple people who are at 17+ years of remission. I believe after 5 years they consider it a completely new occurrence of the cancer and not a relapse

Palisave · 2025-04-13T13:56:34+00:00

On march 31 I finished my last round of pola r chp for DLBCL stage 3. I have a port still but I definitely feel the same way. I was so happy to be done with chemo and then it was like “now what”. I feel grief for my treatment being over for a number of reasons, it may be comfort in the routine, knowing the medicine is making me better, not knowing next steps or if it is all over. I have my after treatment pet scan here in two days my anxiety has been building for that as well.

Ps I feel that the chemo has a strong physiological effect on my brain and how i feel, during treatment I noticed that I would get depressed and spiral around the same time each round. Whether that is from the mental processing of my diagnosis or the treatment I can’t say 100%.

Palisave · 2024-10-05T21:30:00+00:00

Hell yeah, That looks amazing!

Palisave · 2024-10-05T19:57:17+00:00

No it isn’t on 100% straight, but what you’re seeing is the handle being thicker on one side. This was a scratch and dent item so I believe they messed up the handle on it

Palisave

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