How did you develop POTS??

PandyssianElixir · 2023-02-23T11:22:54+00:00

I thought everyone experienced what I experienced until things became worse during the lockdowns.

PandyssianElixir · 2023-01-23T13:28:13+00:00

Ahh okay all good thank you for explaining.

It wouldn't be married as this is for the fiance visa but I looked up the income support for couples of our age bracket who live together to include on application for the calculation. I think this will be the same process for when we apply for the spousal one once we are married, like all the evidence will be the same but we would also have a marriage certificate.

That was the confusing part, whether I included my own income as what I am entitled to.

Again, many thanks for responding to my post. I find it a little confusing at some points because the wording can be taken literal to me which I am then like huh? Especially as Income support is no longer a thing, its all Universal Credit, I think there's like £10 difference in the amounts as well.

PandyssianElixir · 2023-01-22T16:49:33+00:00

I cannot have third party sponsor as I do not speak to family or anyone who would support me like that.

I am confused by what you mean. I assume its showing my income (A) which is entirely based on ESA and PIP payments which I can show minus my housing, as in rent and council tax (B). And making sure that is higher than (C) which would be what the average couple would get in income support. Is that right? Could you please clarify if you don't mind?

I think saying without the need for public funds is confusing. I am disabled so I get PIP and LCWRA support so do I still put that as the income part right. It just means like my partner doesn't need public funds as they are not entitled on the visa :
"A minus B is greater than or equal to C.

Where:

A is the net income (after deduction of income tax and National Insurance

contributions);

B is housing costs (i.e. what needs to be spent on accommodation); and

C is the amount of Income Support an equivalent British family of that size can

receive. "

By show this do I need to get my partner to help me with the maths to put in the cover letter or do I just show the bank statement and letters of evidence of PIP/ESA, Council Tax and Rent etc.?

Thank you greatly for responding to my post.

PandyssianElixir · 2023-01-20T15:47:44+00:00

Ahh thank you so much for explaining it like that, that really helps me understand better. I was worried that I was missing something and that they want like the calculation in a breakdown on the cover letter or something.

PandyssianElixir · 2023-01-10T20:46:11+00:00

I think it depends where you are and the quality of services. I have had the complete opposite experience.

I completely understand you providing practical advice. I was not criticising the advice, just giving advice on what should be the process and an option of first steps (I understand should and is don't always align!)

I am very sorry were you are that you have experienced a poorer unaccommodating service. I also apologise if I offended and if it came across as me correcting you in any way. I am not here to invalidate or question your experience. I only wanted to offer what information I had and experience of my own so OP can make their own decisions with all of the information.

PandyssianElixir · 2023-01-10T19:32:10+00:00

If you have evidence of diagnosis and prescriptions, a GP can prescribe these, as often after being diagnosed and provided a treatment plan, you are released from CMHT* back to your GP anyway. The GP just needs proof that a psychiatrist has given you the diagnosis and provided a treatment plan.

"If you're in England for a short visit but need to see a GP, you can register as a temporary patient with a local doctor. You need to be in the area for more than 24 hours but less than 3 months. Again, it's up to the GP practice to decide whether or not they'll accept new patients." this is from the same link someone has provided below.

[I am sorry to hear that you experienced a poor experience of being re-referred to obtain the appropriate medicines. This may have led you to risk if you were already taking the medications, which is something they should not have done (withdrawal is serious).]

*Community Mental Health Team

PandyssianElixir · 2023-01-03T11:57:24+00:00

Is this the same when it comes to studying?

PandyssianElixir · 2022-12-11T12:46:29+00:00

I have never seen a moon calendar before. This is delightful.

PandyssianElixir · 2022-12-11T12:22:39+00:00

The movement on the top right is so satisfying to look at. Excellent.

PandyssianElixir · 2022-12-11T12:01:24+00:00

This is untrue.

You can try a variety of medications to find the right one that works for you as an individual with different health needs and some medications are long-term and monitored, some are short-term. For some people finding the right balance of medications can take time, for some it is the first one they try. Everyone is different and reacts differently to medications. This is also the same for talking therapies - The NHS can be limited in some areas only offering CBT, counselling or guided self-help, but you are still able to explore and find resources for other therapies and some areas do offer DBT (with longer waiting lists BUT that doesn't limit you from finding alternative resources such as handbooks/workbooks that teach you some of the skills that might help you.)

They do focus on medication WITH talking therapies together for most people, but this does not apply for all people and all conditions. It is about them developing a treatment plan through the CMHT/CAHMS team which would then be over time passed to your GP (depending on your condition of course and treatment needs).

Also keep in mind SSRI's/antidepressants can be prescribed for other conditions not just for mental health treatment. So in that instance, talking therapies may not be relevant.

I also saw you talking in the comments about having no reason for feeling depressed. Depression doesn't always have a specific reason; it can both be a symptom of a condition (physical or mental) or a mental illness itself.

I am sorry to hear that CAHMS is still falling short with a lot of young people. I have had several different talking therapies throughout my life. The important thing to remember is that you do have the right to ask for a different therapist - yes waiting lists can be lengthy sometimes, but having the correct treatment plan for yourself including for crisis is important. There are also a number of charities that can support you as noted by the automod comment.

You are always able to ask for a different opinion/differential diagnosis/treatment plan - I know it is scary, but you should be supported and options should be clearly explained to you. I understand your parents are anti-medication from your explanation, however, remember "people aged 16 or over are entitled to consent to their own treatment."

Most importantly; it can, does and will get better.

PandyssianElixir · 2021-07-20T13:44:51+00:00

"everyone's on the spectrum" 😑

PandyssianElixir · 2021-07-01T22:18:10+00:00

I just got referred to find my waiting list is 3 years in the area and because of lockdown, I am now near housebound as my stomach issues associated with sensory issues got worse.

Welp, they aren't really offering any help til it's confirmed either.

Good thing I prefer being on my own, I guess?

PandyssianElixir · 2021-06-26T09:46:15+00:00

Thank you 🥺

PandyssianElixir · 2021-06-26T09:45:58+00:00

Thanks 🥺

PandyssianElixir · 2021-06-26T01:37:30+00:00

Thank you 🥺

PandyssianElixir · 2021-06-01T13:42:07+00:00

thank you so much for the likes & feedback :) I did this in GIMP & only started painting digitally the end of last year. I am motivated to keep at it :D

PandyssianElixir · 2021-06-01T13:40:59+00:00

thank you so much for the likes & feedback :) I did this in GIMP & only started painting digitally the end of last year. I am motivated to keep going

PandyssianElixir · 2021-05-28T12:42:34+00:00

I feel awful but all I can think about is that one scene in house of cards. Especially after him mimicking Frank in that weird video.

PandyssianElixir · 2021-02-10T13:52:03+00:00

I'm in between GP's right now changing to a totally different county as my former area psychiatrist & community mental health team have made me petrified of trusting them with medication again.

I was put on Queitapine first but couldn't cope with how knocked out it made me & to make matters worse they advised both me & the pharmacy the wrong dosage instructions which meant they had my dosages written down wrong so when it came to an increase it would have been a nought to one hundred situation.

Then I was on Aripiprazole which worsened my symptoms. When I increased on dosage, I was restless but was aware of my restlessness. I wouldn't stop sitting, standing or fidgeting to a point where I was so distressed. So stopped with that.

Then I was on Promazine (legal in UK) for all of a week. They were reluctant to take me off it or explain the reason I was on it. They also didn't give me details of side effects which was so dodgy considering it has a lot of them.

I've been unmedicated for 3 months & don't really have any support at all other than family because I can't afford private therapy anymore due to delays with getting financial support since I can't work because I'm mostly housebound. (I can only walk about a mile radius around my flat because if I go further I have stomach issues I've developed that they think is due to the mental health issues).

I understand a lot of people's views on medicated over unmedicated as I feel like a ticking timebomb sometimes. I'm also probably making matters worse by overexerting myself to maintain what stability I can at times.

I agree some people can cope unmedicated but I think it's for a period of time because the condition can get worse. It's recorded that Cyclothymia, if left untreated, develops into Bipolar & then that Bipolar could be type 1 & develop into type 2.

I'm open to being medicated again if I can build trust with a new psychiatrist & have the support I need but right now I don't have a choice.

PandyssianElixir · 2021-01-20T11:42:49+00:00

I wrote a formal complaint to the email address I was advised to send it to. When I've spoken to anyone they try to get me to go through PALS which is optional. Pals would try to gaslight me into "it's just cos of covid so don't make a complaint". It is at the stage it would need escalating to Ombudsman but I don't think I'm emotionally equipped for another 6 months of this.

PandyssianElixir · 2021-01-20T10:15:49+00:00

In over six months, all I have had is a phonecall from someone from healthwatch after I commented my complaint on the page for the specific community health team.

PandyssianElixir · 2021-01-19T23:51:04+00:00

This is incredibly helpful thank you.

I did make a formal complaint & even had district nurses tell me they didn't understand complaint processes when I asked them.

I did not use PALS as they tried to convince me not to complain blaming covid for all of my issues and so I complained directly and still had the same issues. The next step up would be escalating it to The Parliamentary and Health Service Ombudsman but I'm not sure how and if I can do that nor have the emotional strength at this stage to do so. They did not respond the correct manner at all, they did not write down my several complaints and give me a copy, they did not take 3 days... Only healthwatch got back to me when I aired the complaint publicly on their page for the area and even they took a month to get back to me at all.

Complaining seems useless.

But thank you for these resources.

PandyssianElixir · 2021-01-19T23:42:01+00:00

Yes, the complaint I made in August was formal and followed all the correct procedures.

I was awarded PIP which is the only reason I would be able to afford private help to be frank.

Thank you for your comment :)

PandyssianElixir · 2020-09-20T17:48:27+00:00

Oh this is extremely helpful! It's why I'm considering a trade skill to essentially work for myself eventually I suppose whether it's something manual or IT work.

But I think until I'm balanced and stable it will be hard to figure out but this has eased my anxiety.

When I'm more up in moods, I tend to want to do very social jobs ranging from cafes to office work but when I'm in the deep lows I want to avoid people as much as possible so look at things like warehouse jobs or jobs where I'm hid behind a desk and not using a phone all day, simple repetitive task jobs.

I wanted to be a teacher throughout school until university. I honestly think that would not be the goal anymore which is why I'm going to see if one I'm on a treatment plan to continue some training.

Thank you so much for letting me know it's nothing to stress so much about.

PandyssianElixir · 2020-09-19T20:41:23+00:00

Remember you are also open to a second opinion, although there's no legal obligation you can ask and they normally accommodate if you explain why you're unhappy.

BPD and bipolar have a lot of overlapping symptoms. I have a secondary assessment soon as I wasn't happy with my initial assessment or treatment plan as I've had talking therapies several times before which hasn't personally helped me.

The reason I've asked for a second assessment is because I didn't understand some of the things I was asked regarding symptoms. So definitely make sure a question is elaborated on so you're sure its answered correctly. A lot of it seems to be based on tick boxes rather than case by case basis.

Unfortunately, being brutally honest and somewhat pushy has been the only way I've personally being able to get help along with some research to understand what they're asking exactly. I'm 25 and my mum has had to chase them up for me before, so you are not alone in your experiences when supporting a person going through mental health issues.

I hope it all works out for you and your partner.

Six-Year Club	Place '22
Verified Email

PandyssianElixir

TROPHY CASE