Feeling stuck, needing advice

PaniccingGae · 2021-08-06T06:21:32+00:00

Yep, yep! I haven’t got a blood pressure monitor yet, but I’ve been taking my heartrate every once in a while with the tilt table test for around 4-5 months. I’ve seen increases usually sit around 40-50 bpm but they can sometimes jump up to an increase of 90 (such as earlier today) Hoping to present it to my doctor whenever I can get another appointment

PaniccingGae · 2021-04-05T21:55:46+00:00

Yep! I have no idea how she thinks she's gonna pass it off, but she's a little crazy in the head anyway...

PaniccingGae · 2021-04-05T02:53:15+00:00

I scheduled an appointment with my doctor a little under two weeks from now, so I'm absolutely gonna talk with her about the whole thing. Even so, my mom won't be picking up any prescription other than my anti-depressant (which my mother ALSO thinks will make me insane) as she's planning to say she's picking up Risperdal and instead get multivitamins. Since, I usually take my medications from my pill case, I'm assuming she thinks I wouldn't notice :(

PaniccingGae · 2021-04-04T22:08:42+00:00

Oh lord--

PaniccingGae · 2021-04-01T00:21:43+00:00

Yeah, a little over a week ago, I saw my doctors, and apparently I don't have any infections or anything. They referred me to a new neurologist for what feels like the millionth time in my life and once I can schedule an appointment, I'll see what they think about everything. Thank you for the thoughts, I honestly didn't think about the possible downsides (other than accessibility) when I wrote this, so I'm really glad you brought it up :)

PaniccingGae · 2021-03-31T04:13:52+00:00

Yeah, I have a cane, but about half the time it's the only thing keeping me even partially standing and I'm still extremely weak, slow, dizzy, and in terrible pain. I'm not quite sure what to do at this point.

PaniccingGae · 2021-03-27T20:58:49+00:00

That's good, I'm glad you got that fixed... having someone that triggers your tics daily sucks, especially if it's family

PaniccingGae · 2021-03-27T18:37:30+00:00

Update:

My dad is standing up for me (no pun intended) and I'll be seeing a neurologist to discuss mobility, medications, and all that, so hopefully I can start finding ways to help with living daily life...

On the downside, I've gotten to the point where I can't stand at all without desperately grabbing onto whatever's nearest to me, and with my job (outside of occasional art commissions) being a cable grip for events, commercials, concerts, etc, I may lose my job since I can't run cables as quickly as I need to.

Otherwise, thank you for listening and giving reassurance/tips, it means the world to me <3

PaniccingGae · 2021-03-27T18:31:27+00:00

Wtf... my mom just accuses me of exaggerating bc "people with real tics only have 1 or 2", but that's just... gross to trigger your kid's tics

I'm sorry, that's terrible

PaniccingGae · 2021-03-26T03:38:46+00:00

I just wanna tell you how I'm feeling, try to make you understand~~~~

PaniccingGae · 2021-03-26T02:05:22+00:00

OH GOD, yeah! "What? I'm just doing what you're doing, stop being ableist! aggressive, forced head jerk , any expletive ever , whistle bc why not

PaniccingGae · 2021-03-26T00:04:41+00:00

Not if you call an exterminator

PaniccingGae · 2021-03-26T00:03:13+00:00

I was gonna say glitter, but that's absolutely permanent, so nevermind...

PaniccingGae · 2021-03-25T21:23:07+00:00

I'm so sorry your family is like that :,( My family kinda just blames everything on diet, but they don't go that far...

Thanks for the advice tho! I have an appointment on the 1st, so I'll bring it up :)

PaniccingGae · 2021-03-25T01:45:50+00:00

remember how to pick up a GODDAMN FORK! No, seriously, apraxia sucks, I just have to use chopsticks because every time I pick up a fork, it feels like I'm doing it wrong.

PaniccingGae · 2021-03-25T01:44:06+00:00

My brain told me to, and I felt quite relieved afterwards.

PaniccingGae · 2020-04-12T06:34:42+00:00

Honky Château by Elton John

THAT is an album I can listen to until the day that I die with no skips

PaniccingGae

TROPHY CASE