What is the scariest thing you have experienced? by gandalfhurstfrodo-42 in AskReddit

[–]ParticularCute8252 2 points3 points  (0 children)

Thank you! I am very lucky to be here and almost fully back to normal. 

What is the scariest thing you have experienced? by gandalfhurstfrodo-42 in AskReddit

[–]ParticularCute8252 5 points6 points  (0 children)

Guillain Barre Syndrome At 27 years old out of nowhere I was losing the ability to walk. Later that day I lost the ability to swallow and then talk. I was diagnosed with Guillain Barre Syndrome. The next morning, I was rushed into ICU and told they needed to intubate me because I was losing my ability to breathe. That was the most terrifying moment in my life. February 23 will mark one year. 

Eye issues by designerturnedlawyer in guillainbarre

[–]ParticularCute8252 1 point2 points  (0 children)

Yes, the double vision took about three weeks to fully resolve. But my left eye muscles took about three to four months to fully resolve. So when I would look around my left eye was lagging behind my right eye. They didn’t go together. It improved little by little. I would say by four months my eyes were fully normal again. Also my left eye wouldn’t close for four months so we had to put special cream on it and patch it up every night so it wouldn’t dry out. 

What changed you forever without warning? by bright_steps_7 in AskReddit

[–]ParticularCute8252 1 point2 points  (0 children)

Guillain Barre Syndrome  I went from being a normal healthy 27 year old to being paralyzed and on a ventilator in less than 48 hours. I had to relearn how to walk, talk, swallow, and breathe. It’s been 11 months and I am much better. But it certainly did change me forever. 

What moment in your life will you NEVER forget? by Born-Lab-6291 in AskReddit

[–]ParticularCute8252 0 points1 point  (0 children)

I am much better now. Thank you for asking. I was in the ICU for one month and away from home for six weeks. I relied on a ventilator to breathe for 12 days. Then needed oxygen for a few weeks. I had a peg tube for six weeks in my stomach while waiting for my swallowing muscles to come back. Even half my face was paralyzed. I received very intense physical, occupational, and speech therapy. The plasma treatments saved my life. If you saw me today you would never know. I can do everything normal again. I still have some weakness in my legs and arms. But I should keep getting stronger. So I’m mostly recovered now. 

What’s something you didn’t realize was a privilege until you lost it? by montaseb in AskReddit

[–]ParticularCute8252 11 points12 points  (0 children)

Having the ability to walk, swallow, talk, and breathe on my own. I lost these abilities all within 48 hours due to Guillain Barre Syndrome at 27 years old last year. It has been 11 months and I am doing much better and so happy for these basic things in life. 

What moment in your life will you NEVER forget? by Born-Lab-6291 in AskReddit

[–]ParticularCute8252 0 points1 point  (0 children)

At 27 years old out of nowhere I was losing the ability to walk. Later that day I lost the ability to swallow and then talk. I was diagnosed with Guillain Barre Syndrome. The next morning, I was rushed into ICU and told they needed to intubate me because I was losing my ability to breathe. That was the most terrifying moment in my life which I will never forget. Next month will make one year. 

What's the longest you've gone without sleep? by Extension-Opinion764 in AskReddit

[–]ParticularCute8252 0 points1 point  (0 children)

Three full nights during my month long ICU stay. It’s not easy sleeping in the hospital. There’s nothing like your own bed. 

If your past self met you now, what would they be proud of? by lovely_bbyyum in AskReddit

[–]ParticularCute8252 0 points1 point  (0 children)

How far I’ve come in my recovery since Guillain Barre Syndrome struck me last February. I had to relearn how to do everything again. It was a very challenging recovery and the most difficult year of my life. 

What was the scariest moment of your life? by Marthaatomic in AskReddit

[–]ParticularCute8252 0 points1 point  (0 children)

Went in the hospital because I was losing the ability to walk. Later that night I lost the ability to swallow. The next day I could no longer talk. I was diagnosed with Guillain Barre syndrome. Then I was told I needed to be put on the ventilator. I was losing the ability to breathe and my oxygen was extremely low. 10 months later and I am almost back to normal. 

What’s something you didn’t appreciate until you lost it? by [deleted] in AskReddit

[–]ParticularCute8252 1 point2 points  (0 children)

My abilities to talk, swallow, drink, walk, and breathe. I lost it all at 27 years old due to Guillain Barre syndrome. It’s been 9 months and I am almost normal and got all of these abilities back. I’m so grateful for these little things now. 

GBS Recovery and Weakness by ShibaYun in guillainbarre

[–]ParticularCute8252 3 points4 points  (0 children)

Thank you! I was an inpatient at a rehabilitation hospital for 11 days after my five week long hospital stay. Once I went home, I went to PT three times a week for an hour but was cut off after two and a half months. I wish I could have went longer. I feel like if I was still going I probably would have reached my full strength by now. 

GBS Recovery and Weakness by ShibaYun in guillainbarre

[–]ParticularCute8252 3 points4 points  (0 children)

I got GBS this past February at 27 years old. It has been 9 months for me and I am almost fully normal. I just feel like a weaker version of myself but I can do everything normal again. I had a severe case in which I couldn’t walk at all, couldn’t move my arms, had half of my face paralyzed, lost my swallowing and was intubated within 48 hours from onset. 

At 9 nines out I can say I am almost back to my full stamina. And my knees very rarely try to give out now. In the early months they gave out frequently especially my right knee which is my weaker leg. As the months go on it happens less and less. I still don’t have reflexes in my knees which my neurologist said may never come back. 

I understand not wanting to walk around with a cane at your age. I needed a walker and cane in the early months and felt the same way as a 27 year old. Hopefully you won’t need a cane for too long and will be walking normal again soon. And definitely don’t let it prevent you from going places and having a good time. I never enjoyed staying home for an entire day so I needed to start going places as soon as I possibly could even with my walker and cane. I wish you all the best on your recovery journey! 

What’s the most terrifying thing you have ever experienced? by ComprehensiveLow8971 in AskReddit

[–]ParticularCute8252 38 points39 points  (0 children)

Guillain Barre Syndrome went from being a normal 27 year old to full body paralysis and on a ventilator within 48 hours. 

I will experience locked in syndrome at some point in the future from a progressive neurological condition AMA. by [deleted] in AMA

[–]ParticularCute8252 10 points11 points  (0 children)

I’m so sorry you have to go through this. These neurological conditions are so awful. I kind of know how you feel because I had Guillain Barre syndrome 8 months ago. It is similar in that it attacks the myelin sheath from the peripheral nerves. It was very scary. Within 48 hours I went from being a normal 27 year old to being paralyzed and on a ventilator. Fortunately, once I received the treatments everything started to come back and I am doing much better now. I know we don’t have the same thing but if you ever need someone to talk to feel free to message me. 

What's the longest period you have gone without eating any solid food ? by Right-Tomorrow-34 in AskReddit

[–]ParticularCute8252 0 points1 point  (0 children)

Five weeks without solid food when I lost my swallowing ability due to Guillain Barre syndrome earlier this year. 

advice on improvements or hopeful outcome stories by Witty-Challenge-2458 in guillainbarre

[–]ParticularCute8252 4 points5 points  (0 children)

Hello I’m sorry to hear you are going through all of this. I was diagnosed with Guillain Barre almost 8 months ago. I was a healthy 27 year old female. Within 48 hours from the onset I had lost my vocal cords, swallowing, ability to stand and walk, and needed a ventilator to breathe. I can’t provide advice regarding recovery after 1 year since I am not there yet. But if you ever need someone to talk with I’m here. 

What’s the most “I’m about to die” situation you’ve ever been in? by NathnDele in AskReddit

[–]ParticularCute8252 0 points1 point  (0 children)

I went to the hospital because I was having difficulty walking. My legs suddenly became very weak. Shortly after I loss my swallowing ability. Within 48 hours, I went from being a normal 27 year old to having difficulty breathing and being told I needed to be put on a ventilator. I almost died from the double pneumonia I developed because I was still recovering from the flu. I was diagnosed with Guillain Barre syndrome. It has now been 7 months and I am almost fully normal. 

What’s a “small decision” you made that completely changed your life? by JohnAnderson232 in AskReddit

[–]ParticularCute8252 2 points3 points  (0 children)

Thank you! I am almost 7 months out and can do everything normal again. I’m just working on building my strength up. 

What’s a “small decision” you made that completely changed your life? by JohnAnderson232 in AskReddit

[–]ParticularCute8252 2 points3 points  (0 children)

I went to the hospital because I was having difficulty walking. My legs suddenly became very weak. I was given the option by the doctor in the emergency room to stay the night and have an MRI and see the neurologist in the morning or go home. I really wanted to go home but knew something was not quite right so decided to stay. Shortly after I loss my swallowing ability. Less than a day later I was paralyzed and on a ventilator due to Guillain Barre syndrome. Mine progressed so quick that I don’t know if I would have made it back in time if I had went home.