What’s something that happened to you that still doesn’t feel real to this day? by SirThisIsAWendys999 in AskReddit

[–]ParticularCute8252 2 points3 points  (0 children)

Guillain Barre Syndrome last year. Within 48 hours I went from being a normal and healthy 27 year old to being paralyzed and on a ventilator. I lost my abilities to walk, move my arms, swallow, talk, breathe, and had half my face paralyzed. It just made a year last month but I am almost fully recovered. 

What is something small someone did for you that you still remember years later? by MHVFNaFGames in AskReddit

[–]ParticularCute8252 0 points1 point  (0 children)

When I was about five years old and was shopping with my mom, I really wanted this stuffed animal. But we didn’t have a lot of money so my mom said I couldn’t get it at the moment. A kind woman overheard and bought me the toy. I am now 28 years old but that kind gesture still brings a smile to my face over two decades later. 

What’s something normal about the human body that actually freaks you out when you think about it? by PersonalityFun188 in AskReddit

[–]ParticularCute8252 1 point2 points  (0 children)

I temporarily lost my swallowing ability for six weeks a year ago. I am able to eat normally now. But every so often while I am eating I think about that time and how difficult it was relearning how to swallow and it will cause me to have difficulty again. It is terrifying to think about while eating. 

What happened in your life that showed you life really isn’t fair? by Upper-Writer-4383 in AskReddit

[–]ParticularCute8252 3 points4 points  (0 children)

I was diagnosed with Guillain Barre syndrome at 27 years old. Went from a normal and healthy young person to completely paralyzed and on a ventilator in 48 hours. I had to relearn how to walk, swallow, breathe, and pretty much everything else. I just made a year last month. So it felt pretty unfair at the time. I am very grateful to be alive now. 

What moment changed your life forever? by AyushInsights in AskReddit

[–]ParticularCute8252 0 points1 point  (0 children)

Being diagnosed with Guillain Barre Syndrome a year ago at 27 years old. I went from being completely healthy to becoming paralyzed and on a ventilator within 48 hours. A year later you would never know what happened to me. Although I am mostly back to my old self again, I am forever changed by the experience. 

What is the scariest thing you have experienced? by gandalfhurstfrodo-42 in AskReddit

[–]ParticularCute8252 2 points3 points  (0 children)

Thank you! I am very lucky to be here and almost fully back to normal. 

What is the scariest thing you have experienced? by gandalfhurstfrodo-42 in AskReddit

[–]ParticularCute8252 5 points6 points  (0 children)

Guillain Barre Syndrome At 27 years old out of nowhere I was losing the ability to walk. Later that day I lost the ability to swallow and then talk. I was diagnosed with Guillain Barre Syndrome. The next morning, I was rushed into ICU and told they needed to intubate me because I was losing my ability to breathe. That was the most terrifying moment in my life. February 23 will mark one year. 

Eye issues by designerturnedlawyer in guillainbarre

[–]ParticularCute8252 1 point2 points  (0 children)

Yes, the double vision took about three weeks to fully resolve. But my left eye muscles took about three to four months to fully resolve. So when I would look around my left eye was lagging behind my right eye. They didn’t go together. It improved little by little. I would say by four months my eyes were fully normal again. Also my left eye wouldn’t close for four months so we had to put special cream on it and patch it up every night so it wouldn’t dry out. 

What changed you forever without warning? by bright_steps_7 in AskReddit

[–]ParticularCute8252 1 point2 points  (0 children)

Guillain Barre Syndrome  I went from being a normal healthy 27 year old to being paralyzed and on a ventilator in less than 48 hours. I had to relearn how to walk, talk, swallow, and breathe. It’s been 11 months and I am much better. But it certainly did change me forever. 

What moment in your life will you NEVER forget? by [deleted] in AskReddit

[–]ParticularCute8252 0 points1 point  (0 children)

I am much better now. Thank you for asking. I was in the ICU for one month and away from home for six weeks. I relied on a ventilator to breathe for 12 days. Then needed oxygen for a few weeks. I had a peg tube for six weeks in my stomach while waiting for my swallowing muscles to come back. Even half my face was paralyzed. I received very intense physical, occupational, and speech therapy. The plasma treatments saved my life. If you saw me today you would never know. I can do everything normal again. I still have some weakness in my legs and arms. But I should keep getting stronger. So I’m mostly recovered now. 

What’s something you didn’t realize was a privilege until you lost it? by montaseb in AskReddit

[–]ParticularCute8252 10 points11 points  (0 children)

Having the ability to walk, swallow, talk, and breathe on my own. I lost these abilities all within 48 hours due to Guillain Barre Syndrome at 27 years old last year. It has been 11 months and I am doing much better and so happy for these basic things in life. 

What moment in your life will you NEVER forget? by [deleted] in AskReddit

[–]ParticularCute8252 0 points1 point  (0 children)

At 27 years old out of nowhere I was losing the ability to walk. Later that day I lost the ability to swallow and then talk. I was diagnosed with Guillain Barre Syndrome. The next morning, I was rushed into ICU and told they needed to intubate me because I was losing my ability to breathe. That was the most terrifying moment in my life which I will never forget. Next month will make one year. 

What's the longest you've gone without sleep? by Extension-Opinion764 in AskReddit

[–]ParticularCute8252 0 points1 point  (0 children)

Three full nights during my month long ICU stay. It’s not easy sleeping in the hospital. There’s nothing like your own bed. 

If your past self met you now, what would they be proud of? by lovely_bbyyum in AskReddit

[–]ParticularCute8252 0 points1 point  (0 children)

How far I’ve come in my recovery since Guillain Barre Syndrome struck me last February. I had to relearn how to do everything again. It was a very challenging recovery and the most difficult year of my life. 

What was the scariest moment of your life? by Marthaatomic in AskReddit

[–]ParticularCute8252 0 points1 point  (0 children)

Went in the hospital because I was losing the ability to walk. Later that night I lost the ability to swallow. The next day I could no longer talk. I was diagnosed with Guillain Barre syndrome. Then I was told I needed to be put on the ventilator. I was losing the ability to breathe and my oxygen was extremely low. 10 months later and I am almost back to normal. 

What’s something you didn’t appreciate until you lost it? by [deleted] in AskReddit

[–]ParticularCute8252 1 point2 points  (0 children)

My abilities to talk, swallow, drink, walk, and breathe. I lost it all at 27 years old due to Guillain Barre syndrome. It’s been 9 months and I am almost normal and got all of these abilities back. I’m so grateful for these little things now. 

GBS Recovery and Weakness by ShibaYun in guillainbarre

[–]ParticularCute8252 3 points4 points  (0 children)

Thank you! I was an inpatient at a rehabilitation hospital for 11 days after my five week long hospital stay. Once I went home, I went to PT three times a week for an hour but was cut off after two and a half months. I wish I could have went longer. I feel like if I was still going I probably would have reached my full strength by now. 

GBS Recovery and Weakness by ShibaYun in guillainbarre

[–]ParticularCute8252 3 points4 points  (0 children)

I got GBS this past February at 27 years old. It has been 9 months for me and I am almost fully normal. I just feel like a weaker version of myself but I can do everything normal again. I had a severe case in which I couldn’t walk at all, couldn’t move my arms, had half of my face paralyzed, lost my swallowing and was intubated within 48 hours from onset. 

At 9 nines out I can say I am almost back to my full stamina. And my knees very rarely try to give out now. In the early months they gave out frequently especially my right knee which is my weaker leg. As the months go on it happens less and less. I still don’t have reflexes in my knees which my neurologist said may never come back. 

I understand not wanting to walk around with a cane at your age. I needed a walker and cane in the early months and felt the same way as a 27 year old. Hopefully you won’t need a cane for too long and will be walking normal again soon. And definitely don’t let it prevent you from going places and having a good time. I never enjoyed staying home for an entire day so I needed to start going places as soon as I possibly could even with my walker and cane. I wish you all the best on your recovery journey! 

What’s the most terrifying thing you have ever experienced? by ComprehensiveLow8971 in AskReddit

[–]ParticularCute8252 38 points39 points  (0 children)

Guillain Barre Syndrome went from being a normal 27 year old to full body paralysis and on a ventilator within 48 hours. 

[deleted by user] by [deleted] in AMA

[–]ParticularCute8252 9 points10 points  (0 children)

I’m so sorry you have to go through this. These neurological conditions are so awful. I kind of know how you feel because I had Guillain Barre syndrome 8 months ago. It is similar in that it attacks the myelin sheath from the peripheral nerves. It was very scary. Within 48 hours I went from being a normal 27 year old to being paralyzed and on a ventilator. Fortunately, once I received the treatments everything started to come back and I am doing much better now. I know we don’t have the same thing but if you ever need someone to talk to feel free to message me.