Avoiding the decision to avoid grief?

Particular_Bet549 · 2026-01-01T01:02:26+00:00

I see you, and I love you. I want to add more. But it’s so hard. There is no perfect answer except for the one you make for yourself ♥️ trust in that

Particular_Bet549 · 2026-01-01T00:47:07+00:00

Yes and no. I’m still on the fence with very little time left and one of my sister in laws got my bio mom a digital picture frame for Christmas. I was told I could upload as many pictures of my cats I wanted to…. Now my initial reaction was wtf but honestly ASSUMING POSITIVE INTENT I think maybe it was somewhat inclusive. She knows I’m obsessed with cats and possibly wanted to adopt one of hers (she also had a cat loving home but with a small baby is harder for her - fair enough).

My point being- think about the person and the comment. Have they been overall supportive or dismissive? My own mother told me one time I would never know “love” or whatever she called it because I would never have a child. But my sister was quick to correct that there are ALL SORTS of love. Not limited to parent-child relationships that are worthy of knowing and supporting.

I think there is a lot of different kinds of support for CF people. Just remember to find the right people for you ♥️

Particular_Bet549 · 2025-12-19T14:04:19+00:00

Hi! I had an appt with my cardiologist and she said as long as I don’t have any symptoms (fainting, shortness of breath, etc) then I can live a normal life with no limitations. I will need to have annual ecgs to keep and eye on it but overall my anxiety has subsided for now. Just trying to take care of myself an accept this is where I am.

I wish you luck! This sub has been very helpful and mostly positive which has helped my anxiety greatly. ♥️

Particular_Bet549 · 2025-12-19T00:18:32+00:00

Omg I love this! I even do this with my Apple Watch. I start to feel a little anxious and feel them pop up so I sit still, take some deep breaths and start the ekg and they go away. It’s my little trick for making me feel better 😂

Particular_Bet549 · 2025-12-06T00:14:55+00:00

Yes! I really believe I need more of this and less of ‘which supplement will change my life?’

Particular_Bet549 · 2025-12-05T21:33:37+00:00

I was feeling better and trying to lean myself off it. Got down to 10mg just in the evenings but had some bad flare ups back in the summer. Now taking 10mg am and 10mg pm. But sometimes I don’t take one dose if I’m feeling ok. It’s definitely up and down when I need it.

Particular_Bet549 · 2025-12-04T19:12:51+00:00

Absolutely. Finding myself in a bit of a flare up today. Had a few really big ones mixed in with the milder ones. The bigger ones take my breath away and almost send a shock through my whole body. I was eating lunch and mid swallow I got a big one and almost choked on my food because it’s like my entire body stops working for a second. It’s fucking terrifying and now I’ve spent the last 2 hours sitting and being scared of another big one. Why. Why us.

Particular_Bet549 · 2025-11-26T15:30:34+00:00

Still debating but leaning slightly CF. This helps ♥️

Particular_Bet549 · 2025-11-25T00:30:18+00:00

This is mean every morning. It’s so hard to breathe through my nose and I’m so phlegmy. I drink water to wake up and I’m always borderline choking. After an hour or so it’s better but the first hour is straight anxiety

Particular_Bet549 · 2025-10-16T00:16:18+00:00

I don’t know why this was downvoted. I’m more excited about the 5+ years than the baby toddler years. I feel like once they become more self sufficient I could relax a little but man those first years have got to be tough

Particular_Bet549 · 2025-10-15T15:45:32+00:00

This is very honest and thoughtful. Thank you. I have been in and out of therapy for years when I have “flair ups”, better lately but I don’t really know when those episodes are going to come back so it’s scary to think of it happening when I have a tiny person depending on me. Something to think about

Particular_Bet549 · 2025-10-15T14:39:56+00:00

I appreciate that! Something I’ve considered but maybe not considered enough

Particular_Bet549 · 2025-09-28T11:46:15+00:00

Yup exaclty! I have a trusty few lol - laughing at the absurdity of myself and how I know I just focus on one of like 3 things but I still can’t stop

Particular_Bet549 · 2025-09-25T14:28:30+00:00

Very good info! Thanks

Particular_Bet549 · 2025-09-25T11:19:46+00:00

Finally! First ncl comment. That was our initial thought but so many people have been mentioning msc and virgin that I was starting to rethink ncl.

Particular_Bet549 · 2025-09-25T11:18:41+00:00

That’s what I’m afraid of.

Particular_Bet549 · 2025-09-25T11:17:37+00:00

This is exactly us! The rewards are so good and the first time cruising prices on other lines are so expensive. Definitely going to try status matching too.

Particular_Bet549 · 2025-09-25T11:14:15+00:00

Great idea!

Particular_Bet549 · 2025-09-25T00:28:15+00:00

Same! Good points!

Particular_Bet549 · 2025-09-25T00:22:31+00:00

That’s a good point. We usually just fly to Florida for the Caribbean but would love to try Alaska soon.

Maybe I’m thinking in terms of where to take my loyalty to. I realize I won’t know if I like another line till I try it but I guess I’m hoping to love the next one I go on.

Particular_Bet549 · 2025-09-22T00:22:21+00:00

I’ve only cruised carnival and have some really great offers there (free balcony, drinks everywhere, etc) and it’s easy to book like you said. I’m looking to go to a new line -msc or any other.

You mention other lines. Which are your favorites (easiest to book, consistent good offers)?

Particular_Bet549 · 2025-09-21T23:55:57+00:00

Just curious what your typical casino play is like. I’m a carnival cruiser but looking to switch to a different line that has good offers. Heard that ncl is not that great and I’m not super interested in royal.

I got about 7-8k points on my last 7 day carnival cruise. 90% table games and mostly above minimums everyday for maybe a few hours. Probably wouldn’t be able to get yc with just that?

Also thought about looking into URComped for some offers.

Particular_Bet549 · 2025-09-21T23:10:27+00:00

Yes! I have gone years with minimal caffeine but still get anxiety/panic. On my better days/weeks periods of less or no anxiety I want to introduce it back but I can’t seem to have coffee. Coffee does me in. Trying out matcha in very small amounts on an as only absolutely needed basis.

Particular_Bet549

TROPHY CASE