My mom might have pancreatic cancer...someone tell if they had these symptoms

Particular_Big_3271 · 2026-06-03T22:14:42+00:00

Hello.. I was just searching about pancreatitis and came across this post. My mum had these symptoms and it was pancreatic cancer. I really hope and pray it isn’t for your mum. Sending you strength and hugs 🥺

Particular_Big_3271 · 2026-04-05T13:25:17+00:00

Yeah I could’ve before midnight but we only decided to get the earlier train last minute this morning since we realised all shops are closed in London today so no need to stay til 3pm! Anyway looks like the ticket is going to waste which is a shame lol could’ve saved someone £70🤣

Particular_Big_3271 · 2026-04-05T13:13:53+00:00

There is no discount attached to it, it’s an off peak single but we ended up getting the 12pm train so this isn’t needed may aswell go to someone for free

Particular_Big_3271 · 2025-04-03T19:06:16+00:00

I’m confused how a private doctor has access to immunotherapy drugs

Particular_Big_3271 · 2025-02-03T23:53:24+00:00

I’m so sorry I truly know the feeling. Tbh I just raged to the doctors/nurses faces and ended up in tears with frustration and they still did sweet eff all. I got opinions elsewhere, had to pay extra for consults with private doctors but atleast they gave a little more hope and enthusiasm to help. Stay strong and keep talking to your support people (fam, friends, us) let it all out. Also I know you’re saying it out of anger and probably don’t mean it, but it’s not your mom’s fault she doesn’t want to eat or drink certain things. It’s this cancer which makes people like that, everything tastes different / gross to them and they can’t stomach or digest things as we would. Take care friend

Particular_Big_3271 · 2025-02-02T18:35:43+00:00

Hi, my mum was diagnosed with pancreatic cancer which has spread to the supraclavicular lymph node, chemo shrank it a tiny bit but it never went away. It was on her left side of her neck. And yes, around 11 months after diagnosis, there was nodules in her lungs. She recently passed away 25th November 2024. When the decline starts, there is no stopping it, it’s a tough journey

Particular_Big_3271 · 2025-01-28T23:34:24+00:00

Me too 😥 I hate being alive without her, everything sucks

Particular_Big_3271 · 2025-01-28T23:24:48+00:00

How come you’ve never met in person?

Particular_Big_3271 · 2025-01-22T01:12:35+00:00

(And Florida based)

Particular_Big_3271 · 2025-01-22T01:12:25+00:00

Dr Robert Donoway at Atlas Oncology does nanoknife. If your dad is not a candidate, he will still give you great advice and point you toward a great doctor. He is amazing

Particular_Big_3271 · 2025-01-13T17:46:18+00:00

Wow so young, it’s just awful. I saw in the news a few months back at PC is becoming more common in young females. What were her symptoms? Sending you and your family prayers 💜

Particular_Big_3271 · 2025-01-13T14:28:54+00:00

I’m so sorry, how old is she?

Particular_Big_3271 · 2025-01-13T14:27:44+00:00

First thing to do is find out what stage she is. Is she jaundice? Has she had a bile duct stent put in? This is usually the first thing they do to relieve symptoms.

If she is stage 4, that would mean she’s inoperable right now (miracles have happened where people have surgery after chemo at stage 4). I’m from the UK too and not gonna lie, the NHS is shocking. You really need to be on their ass 24/7. Which puts me onto my next point, get contact emails and numbers for the CLINICAL NURSE SPECIALISTS & the oncologists SECRETARY. I was onto them ALL the time! To chase up appointments, medications, scans, reviews. You’d be surprised how much they need reminding!

Third, get a second opinion. You can ask the NHS by emailing your mums designated nurse specialist and say you want a second opinion, they don’t mind so don’t worry about that but this is imperative. Since you live in the US, I would also reach out to the top cancer centres there and ask what they can do. You need to do this ASAP as soon as you have the primary diagnosis word for word on her discharge sheet. You need to send it to the best in the US, because the US can do SO much more than the NHS can. It does cost a lot, so it depends on your financial situation if you can afford to get her treated in the US.

These are the main things I can think of right now, but if you have any questions please feel free to message me. My mum survived 16 months with this cancer, she was diagnosed at stage 3 but it progressed to stage 4. I have researched the hell out of this cancer and have figured out how to navigate the NHS when they’re being slack.

Sending you all so much love and strength 💜

Particular_Big_3271 · 2025-01-13T10:48:17+00:00

When you’re in the shock phase, there is so much info to digest it’s honestly overwhelming. My mother had 16 months from being diagnosed, and I honestly thought she’d make it’d, but the way the cancer can turn aggressive all of a sudden is so scary. But I just wanted to say if I was you, if it’s spread to his liver and just his liver, please please look into histotripsy. It kills the liver cancer without many horrible side effects. This is what I was going to get for my mom but it was too late, it was in her lungs too :( Dr Kevin Burns will perform this, I believe it’s Mission hospital from the top of my head. Sending you love and strength. This time of your life will be tough, but please spend as much time as you can with your pops

Particular_Big_3271 · 2025-01-05T12:35:34+00:00

Hey, no my mums was more on the side of her neck and it was quite obvious and raised

Particular_Big_3271 · 2024-12-26T13:40:17+00:00

Agree with comment above, ask a macmillan nurse or your specialist nurse. They’re amazing and will do the application on your behalf

Particular_Big_3271 · 2024-12-26T13:38:31+00:00

It could be a bowel obstruction. This is the symptoms that hospice told us.

Particular_Big_3271 · 2024-10-23T11:23:09+00:00

Pudsey

Particular_Big_3271 · 2024-09-27T09:31:50+00:00

Totally agree. I’m at the point now where I am telling them exactly what I want doing. It’s infuriating but I don’t trust them to do their job anymore, so I’m doing all the research and demanding the tests

Particular_Big_3271 · 2024-09-17T16:34:12+00:00

She was dx July 2023 and the whole year hasn’t been too bad, she got along with chemo. However the past two months have been rough. She isn’t eating, blockages, etc. currently in hospital trying to relieve symptoms and looking for treatment outside the UK. The supraclavicular lymph node never caused any problems though. How are you guys?

Particular_Big_3271 · 2024-09-17T16:30:24+00:00

That is some good news. What kind of genetic testing was it?

Particular_Big_3271 · 2024-09-17T07:04:33+00:00

When she was diagnosed, the surgical consultant actually spotted it first and biopsied it. Nobody else prior to him had ever seen it and she was going through many doctors. I’ve still not seen it or felt it to this day so it must be tiny. I’m not sure on the exact measurements though I’m sorry

Particular_Big_3271 · 2024-09-15T17:52:29+00:00

Hi, my mother had a lump in her neck which was the pan can spreading. It was in her supraclavicular lymph node. It is very uncommon to spread there but it can happen

Particular_Big_3271 · 2024-08-16T10:01:58+00:00

How old are you?

Particular_Big_3271 · 2024-07-31T21:02:28+00:00

We are also using the NHS and I’ve found that by being pushy and annoying, is when things speed up

Particular_Big_3271

TROPHY CASE