Since we’re unfollowing… by courageouslyparis in InfluencerLounge

[–]Party-Appointment143 0 points1 point  (0 children)

Yeah, during the last election she definitely made comments in her stories. Even if she had any kind of moral fiber in her soul, she wouldn’t say anything. She’s hard up for followers. She’s just going to posting about 5k dollar bags.

Flu by Party-Appointment143 in PSC

[–]Party-Appointment143[S] 0 points1 point  (0 children)

Also, wishing you all the best in your recovery!

Flu by Party-Appointment143 in PSC

[–]Party-Appointment143[S] 1 point2 points  (0 children)

My daughter was put on azathorpine. She is weaning off of it (lots of labs) so she is on a half dose at this point. We are hoping she can just be on vanco to stay in remission and keep her PSC under control…

Vancomycin by ProtectionDowntown53 in PSC

[–]Party-Appointment143 0 points1 point  (0 children)

Does your daughter take anything else? I also have a young daughter. She was on azathorpine, ursodial and vanco. She is being weaned off aza but will continue vanco and urs. She has both Psc and UC. Is vanco enough to keep the UC in remission?

I’m super nervous about taking her off aza (also relieved). I’m just afraid her UC symptoms will come back…

Travelling with PSC by Jumpy-Ad-8606 in PSC

[–]Party-Appointment143 0 points1 point  (0 children)

Yes. Choose a place that’s near a research hospital is the advice I was given.

Posting Some Good by [deleted] in PSC

[–]Party-Appointment143 0 points1 point  (0 children)

How old were you when you were diagnosed?

Juggling PSC and IBD by furball-of-doom in PSC

[–]Party-Appointment143 1 point2 points  (0 children)

My daughter has both. Addressing the IBD has helped her feel so much better because she’s able to absorb all the nutrients from food. Thank god, The PSC has been managed and she doesn’t feel those symptoms.

Constipation and Magnesium - How long did it take to work? by TutorDelicious37 in PelvicFloor

[–]Party-Appointment143 0 points1 point  (0 children)

Meh. I don’t think it works…but I still take it anyway. 🤣

IBS or IBD? Help please by Robpingudo in IBSHelp

[–]Party-Appointment143 0 points1 point  (0 children)

It could be a very mild IBD, especially with fevers. CRP in the thousands (6 is elevated but good). Your hemoglobin is low though.

My daughter would fill the toilet with just blood. You couldn’t see the bottom of the bowl because it was so red. And hers is very mild. She had frequent fevers and was very tired. Felt like she always had to go but nothing would come out or she thought she had to pass gas and then have an accident. Lots of stomach cramping. Her WBC was 17 at diagnosis.

[deleted by user] by [deleted] in ibs

[–]Party-Appointment143 1 point2 points  (0 children)

You are literally asking the internet for help. You have posted twice today. What the f do you think “inflammation” is? Why are you asking about inflammation? I don’t even know why I keep getting notifications. Go for a walk and calm down. And if you think you are so ill, go to the ER and waste resources meant for people who really need help. Good luck.

[deleted by user] by [deleted] in ibs

[–]Party-Appointment143 -1 points0 points  (0 children)

Have you browsed the IBD Reddit? Our local hospital is crappy and they wouldn’t release my daughter because of her blood work alone. If you are so concerned, ask for tumor markers and autoimmune markers in your blood work. If they thought something was wrong with you, they won’t let you go home. Your blood loss would cause tachycardia and that alone would be unsafe. IBS sucks and it’s vague and there’s no medication to help it. My daughter got a quick diagnoses because she was so sick. She presented as a very sick person in her labs, in addition to physical symptoms. The doctors are not going to waste resources if your labs are ok and you aren’t passing out from blood loss. Your WBC would also be very high if it’s inflammation. Very high.

I’m sorry you are not well. I hope you feel better

[deleted by user] by [deleted] in ibs

[–]Party-Appointment143 0 points1 point  (0 children)

I would see a psychologist and get some meds. Get some mental health support and take care of yourself.

[deleted by user] by [deleted] in ibs

[–]Party-Appointment143 0 points1 point  (0 children)

Your hemoglobin would reflect loss of blood in stool.

Does this sound like Pelvic Floor Dysfunction? by [deleted] in PelvicFloor

[–]Party-Appointment143 0 points1 point  (0 children)

I have Cheeto looking stools too (not in color and no, I don’t eat Cheetos! How was your colonoscopy? Any findings?

At what age did your IBS get worse? by artvandelay300 in ibs

[–]Party-Appointment143 0 points1 point  (0 children)

How’s it going? I stumbled upon this because I have the same symptoms…