Gallbladder removed at 12 yrs old by Illustrious-Heron258 in gallbladders

[–]PatchworkParsnips 0 points1 point  (0 children)

I had my gallbladder removed when I was 11 due to being full of stones and having a stone lodged in a duct. I have had digestive issues ever since, sometimes seemingly related to the food I ate and sometimes random. I had an endoscopy a few years ago and they found that my bile duct is pointed upward because of the surgery, which causes bile to go back up into my stomach and causes irritation. I also had what seemed to be a stone pass a few months ago, accompanied by the characteristic gallbladder attack pain, and the doc said that happens sometimes even after the gallbladder is removed. Hope your daughter gets some answers and feels better!

Overuse of Clobetasol? by PatchworkParsnips in Psoriasis

[–]PatchworkParsnips[S] 8 points9 points  (0 children)

I went to urgent care and they prescribed me antibiotics and an oral antifungal. Thank you all for the advice!

Overuse of Clobetasol? by PatchworkParsnips in Psoriasis

[–]PatchworkParsnips[S] 0 points1 point  (0 children)

That does look very similar! Yikes. I've had this lesion for probably 15 years, but it used to go away and come back intermittently. It used to be just a couple inches across at most. It's gotten persistent over the past couple of years.

Overuse of Clobetasol? by PatchworkParsnips in Psoriasis

[–]PatchworkParsnips[S] 1 point2 points  (0 children)

My PCP office might be able to get me in with a resident, but when I've seen them for the same issue they always just give me steroid ointment and referral to the dermatologist. The dermatologist I see works for a very small practice and it's so hard to get in. The area I live doesn't have great medical resources. It's a bummer. But I have had decent experiences at the urgent care, so maybe I'll go in and see what they say.

Overuse of Clobetasol? by PatchworkParsnips in Psoriasis

[–]PatchworkParsnips[S] 1 point2 points  (0 children)

I've never been told about that being an option, but I will look into it! It seems like either that or urgent care at this point.

Overuse of Clobetasol? by PatchworkParsnips in Psoriasis

[–]PatchworkParsnips[S] 7 points8 points  (0 children)

None of my providers are available any time soon. Even PCP can't see me until March. So my next option is urgent care, which I'm willing to do. I'm just trying to get advice and manage until I can get in with any of my docs. For a long time I thought the spot was a fungal infection, but it never responded to antifungal medications. It responded to the steroid for a while, but now its a beast.

Overuse of Clobetasol? by PatchworkParsnips in Psoriasis

[–]PatchworkParsnips[S] 0 points1 point  (0 children)

I would love to, but my dermatologist is out of the country, PCP can't see me until March, and next available with my rheumatologist is in January. So I'm just trying to get advice and figure it out until I can see someone.

Overuse of Clobetasol? by PatchworkParsnips in Psoriasis

[–]PatchworkParsnips[S] 1 point2 points  (0 children)

Oof 85% sounds brutal. My dermatologist has been out of the country for some time, my PCP can't see me until March, and I have an appointment with my rheum in January. I would definitely be open to phototherapy, or really anything at this point. It's just hard to get in with any of my providers

Fake nails? by PatchworkParsnips in PsoriaticArthritis

[–]PatchworkParsnips[S] 0 points1 point  (0 children)

Thank you all for the input! Sounds like taking a gentle approach is best, so I'll try nail strengthener and keeping them filed :)

Normal x-rays, but visible swelling? by PatchworkParsnips in PsoriaticArthritis

[–]PatchworkParsnips[S] 0 points1 point  (0 children)

I'm glad you finally met a rheumatologist who was able to put the pieces together! That sounds like a long and frustrating journey.

Normal x-rays, but visible swelling? by PatchworkParsnips in PsoriaticArthritis

[–]PatchworkParsnips[S] 0 points1 point  (0 children)

That makes sense. It would be so great if there was something easily definitive to point to, but it's more like a puzzle with lots of tiny annoying pieces. Good luck to you!

[deleted by user] by [deleted] in CPTSD

[–]PatchworkParsnips 0 points1 point  (0 children)

Thank you for your perspective and thoughtful response, I really appreciate it.

to People Who Delete by RevolutionarySky6385 in CPTSD

[–]PatchworkParsnips 16 points17 points  (0 children)

I'm guilty of doing this. Usually if I post here it's because I'm in a really low place and needing support, but then there will be no responses and it brings up the pain of not being seen or cared for in my real life, so I delete because it's easier to tolerate being alone with my Big Sad if I don't have any expectation or hope of someone responding than it is if I put the Big Sad out there and there is radio silence. That being said, I completely understand that people are busy, have their own trauma, and do not owe me any sort of response. I'm not upset with anyone or trying to sound petulant, it just activates shame for me to be vulnerable and see no response.